You know who your real friends are...

Sheridan · Jun 9, 2008

Its so funny but our best support, and we now have 2 CFer's, is both hubby and my workplaces. He is a soldier and I am a teacher. I have already had 5 weeks of this year with our youngest hospitalisation for 3 weeks and another 2 weeks with him having a gastro problem. No dramas or questions were asked and I only started at this school at the beggining of the year. My last school, when I only had the one CF'er were great too, my boss even used to keep some of his pills at her house so if we went over we could stay and eat. One time i was on a excursion with the school and they ran outta of pills (I got cranky with the school and his teacher about that), she drove home and got her bottle of pills and brought them in for him. Chris's work (Australian Defence Force) are brilliant, when Aidan was admitted in March he was away on exericse I rang his unit to tell him about it. I didn't want him to come home because I had organised his mum to fly up and help out, but when they found out why I rang they packed him up and drive him 2.5hrs back to town and told him to come back for a week.

Asides from workplaces our parents are the best supports, although my live in another country most of the time. Our siblings are a little more involved with their own stuff, but will lend an ear to listen or talk about things if you need a sounding board. But we live at least 15 driving hours away from the closet family now.

Sheridan · Jun 9, 2008

Its so funny but our best support, and we now have 2 CFer's, is both hubby and my workplaces. He is a soldier and I am a teacher. I have already had 5 weeks of this year with our youngest hospitalisation for 3 weeks and another 2 weeks with him having a gastro problem. No dramas or questions were asked and I only started at this school at the beggining of the year. My last school, when I only had the one CF'er were great too, my boss even used to keep some of his pills at her house so if we went over we could stay and eat. One time i was on a excursion with the school and they ran outta of pills (I got cranky with the school and his teacher about that), she drove home and got her bottle of pills and brought them in for him. Chris's work (Australian Defence Force) are brilliant, when Aidan was admitted in March he was away on exericse I rang his unit to tell him about it. I didn't want him to come home because I had organised his mum to fly up and help out, but when they found out why I rang they packed him up and drive him 2.5hrs back to town and told him to come back for a week.

Asides from workplaces our parents are the best supports, although my live in another country most of the time. Our siblings are a little more involved with their own stuff, but will lend an ear to listen or talk about things if you need a sounding board. But we live at least 15 driving hours away from the closet family now.

Sheridan · Jun 9, 2008

Its so funny but our best support, and we now have 2 CFer's, is both hubby and my workplaces. He is a soldier and I am a teacher. I have already had 5 weeks of this year with our youngest hospitalisation for 3 weeks and another 2 weeks with him having a gastro problem. No dramas or questions were asked and I only started at this school at the beggining of the year. My last school, when I only had the one CF'er were great too, my boss even used to keep some of his pills at her house so if we went over we could stay and eat. One time i was on a excursion with the school and they ran outta of pills (I got cranky with the school and his teacher about that), she drove home and got her bottle of pills and brought them in for him. Chris's work (Australian Defence Force) are brilliant, when Aidan was admitted in March he was away on exericse I rang his unit to tell him about it. I didn't want him to come home because I had organised his mum to fly up and help out, but when they found out why I rang they packed him up and drive him 2.5hrs back to town and told him to come back for a week.

Asides from workplaces our parents are the best supports, although my live in another country most of the time. Our siblings are a little more involved with their own stuff, but will lend an ear to listen or talk about things if you need a sounding board. But we live at least 15 driving hours away from the closet family now.

Sheridan · Jun 9, 2008

Its so funny but our best support, and we now have 2 CFer's, is both hubby and my workplaces. He is a soldier and I am a teacher. I have already had 5 weeks of this year with our youngest hospitalisation for 3 weeks and another 2 weeks with him having a gastro problem. No dramas or questions were asked and I only started at this school at the beggining of the year. My last school, when I only had the one CF'er were great too, my boss even used to keep some of his pills at her house so if we went over we could stay and eat. One time i was on a excursion with the school and they ran outta of pills (I got cranky with the school and his teacher about that), she drove home and got her bottle of pills and brought them in for him. Chris's work (Australian Defence Force) are brilliant, when Aidan was admitted in March he was away on exericse I rang his unit to tell him about it. I didn't want him to come home because I had organised his mum to fly up and help out, but when they found out why I rang they packed him up and drive him 2.5hrs back to town and told him to come back for a week.

Asides from workplaces our parents are the best supports, although my live in another country most of the time. Our siblings are a little more involved with their own stuff, but will lend an ear to listen or talk about things if you need a sounding board. But we live at least 15 driving hours away from the closet family now.

Sheridan · Jun 9, 2008

Its so funny but our best support, and we now have 2 CFer's, is both hubby and my workplaces. He is a soldier and I am a teacher. I have already had 5 weeks of this year with our youngest hospitalisation for 3 weeks and another 2 weeks with him having a gastro problem. No dramas or questions were asked and I only started at this school at the beggining of the year. My last school, when I only had the one CF'er were great too, my boss even used to keep some of his pills at her house so if we went over we could stay and eat. One time i was on a excursion with the school and they ran outta of pills (I got cranky with the school and his teacher about that), she drove home and got her bottle of pills and brought them in for him. Chris's work (Australian Defence Force) are brilliant, when Aidan was admitted in March he was away on exericse I rang his unit to tell him about it. I didn't want him to come home because I had organised his mum to fly up and help out, but when they found out why I rang they packed him up and drive him 2.5hrs back to town and told him to come back for a week.
 
 Asides from workplaces our parents are the best supports, although my live in another country most of the time. Our siblings are a little more involved with their own stuff, but will lend an ear to listen or talk about things if you need a sounding board. But we live at least 15 driving hours away from the closet family now.

BabyBeauty · Jun 9, 2008

Thanks to everyones responses! Somehow it feels better knowing that my situation is not unlike many others out there.

I find most of my support comes from my family, mainly my parents. They love my daughter so much and they empathize with everything. I can call and cry and vent and scream and they understand.

My friends are all at different stages in their lives. I guess I need to accept that some will be good friends and call and see how things are going and some will not. I am not going to change them.

Again thanks for the responses!

BabyBeauty · Jun 9, 2008

Thanks to everyones responses! Somehow it feels better knowing that my situation is not unlike many others out there.

I find most of my support comes from my family, mainly my parents. They love my daughter so much and they empathize with everything. I can call and cry and vent and scream and they understand.

My friends are all at different stages in their lives. I guess I need to accept that some will be good friends and call and see how things are going and some will not. I am not going to change them.

Again thanks for the responses!

BabyBeauty · Jun 9, 2008

Thanks to everyones responses! Somehow it feels better knowing that my situation is not unlike many others out there.

I find most of my support comes from my family, mainly my parents. They love my daughter so much and they empathize with everything. I can call and cry and vent and scream and they understand.

My friends are all at different stages in their lives. I guess I need to accept that some will be good friends and call and see how things are going and some will not. I am not going to change them.

Again thanks for the responses!

BabyBeauty · Jun 9, 2008

Thanks to everyones responses! Somehow it feels better knowing that my situation is not unlike many others out there.

I find most of my support comes from my family, mainly my parents. They love my daughter so much and they empathize with everything. I can call and cry and vent and scream and they understand.

My friends are all at different stages in their lives. I guess I need to accept that some will be good friends and call and see how things are going and some will not. I am not going to change them.

Again thanks for the responses!

BabyBeauty · Jun 9, 2008

Thanks to everyones responses! Somehow it feels better knowing that my situation is not unlike many others out there.
 
 I find most of my support comes from my family, mainly my parents. They love my daughter so much and they empathize with everything. I can call and cry and vent and scream and they understand.
 
 My friends are all at different stages in their lives. I guess I need to accept that some will be good friends and call and see how things are going and some will not. I am not going to change them.
 
 Again thanks for the responses!

sdelorenzo · Jun 9, 2008

What I realized early on after my infant daughter was diagnosed was that everyone has their issues and problems in life. While (in my opinion) they don't compare to what I am going through, others are not and can't bare my burdens. If I would even try, I know I would alienate others. I remember sitting through a bible study and a lot of my friends all shared their biggest struggles they had had in life. I was shocked at what people keep to themselves and how thankful I didn't have an alcoholic father growing up, being sexually abused, bulimia, marriage falling apart, etc.

What I decided to do was to have a positive attitude and outlook on my life and concentrate on what I am blessed with and give the rest to God. I want others to see how well my children are doing with the medications and treatments we have been given. People really don't want to always hear the negative, I know I don't.

I would really love to let everyone I run across have some idea of how much effort and time it takes to keep my children well. But it is not going to change anything. I choose to let other mom's be room moms, run Vacation Bible school, volunteer for all of the school, baseball, softball, etc committees. Things I thought I would do when I had kids but now leave it to the mom's who lives appear much easier.

Thankfully my sister always is willing to listen to me. Sometimes my husband. Also, my neighbor has a child with cf and it has helped tremendously sharing our struggles.

I also share through Great Strides and a letter we send out each year our struggles that we have gone through that year. Through the years and the many letters we have sent out, there is no question that everyone we know knows exactly what we go through. That way instead of me talking a lot about our problems to many people I get one chance to let everyone know how cf affects our lives and how they can help. Click <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5350&idUser=3802">HERE</a> if you want you can see my letter that I sent out this year.

Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Jun 9, 2008

What I realized early on after my infant daughter was diagnosed was that everyone has their issues and problems in life. While (in my opinion) they don't compare to what I am going through, others are not and can't bare my burdens. If I would even try, I know I would alienate others. I remember sitting through a bible study and a lot of my friends all shared their biggest struggles they had had in life. I was shocked at what people keep to themselves and how thankful I didn't have an alcoholic father growing up, being sexually abused, bulimia, marriage falling apart, etc.

What I decided to do was to have a positive attitude and outlook on my life and concentrate on what I am blessed with and give the rest to God. I want others to see how well my children are doing with the medications and treatments we have been given. People really don't want to always hear the negative, I know I don't.

I would really love to let everyone I run across have some idea of how much effort and time it takes to keep my children well. But it is not going to change anything. I choose to let other mom's be room moms, run Vacation Bible school, volunteer for all of the school, baseball, softball, etc committees. Things I thought I would do when I had kids but now leave it to the mom's who lives appear much easier.

Thankfully my sister always is willing to listen to me. Sometimes my husband. Also, my neighbor has a child with cf and it has helped tremendously sharing our struggles.

I also share through Great Strides and a letter we send out each year our struggles that we have gone through that year. Through the years and the many letters we have sent out, there is no question that everyone we know knows exactly what we go through. That way instead of me talking a lot about our problems to many people I get one chance to let everyone know how cf affects our lives and how they can help. Click <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5350&idUser=3802">HERE</a> if you want you can see my letter that I sent out this year.

Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Jun 9, 2008

What I realized early on after my infant daughter was diagnosed was that everyone has their issues and problems in life. While (in my opinion) they don't compare to what I am going through, others are not and can't bare my burdens. If I would even try, I know I would alienate others. I remember sitting through a bible study and a lot of my friends all shared their biggest struggles they had had in life. I was shocked at what people keep to themselves and how thankful I didn't have an alcoholic father growing up, being sexually abused, bulimia, marriage falling apart, etc.

What I decided to do was to have a positive attitude and outlook on my life and concentrate on what I am blessed with and give the rest to God. I want others to see how well my children are doing with the medications and treatments we have been given. People really don't want to always hear the negative, I know I don't.

I would really love to let everyone I run across have some idea of how much effort and time it takes to keep my children well. But it is not going to change anything. I choose to let other mom's be room moms, run Vacation Bible school, volunteer for all of the school, baseball, softball, etc committees. Things I thought I would do when I had kids but now leave it to the mom's who lives appear much easier.

Thankfully my sister always is willing to listen to me. Sometimes my husband. Also, my neighbor has a child with cf and it has helped tremendously sharing our struggles.

I also share through Great Strides and a letter we send out each year our struggles that we have gone through that year. Through the years and the many letters we have sent out, there is no question that everyone we know knows exactly what we go through. That way instead of me talking a lot about our problems to many people I get one chance to let everyone know how cf affects our lives and how they can help. Click <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5350&idUser=3802">HERE</a> if you want you can see my letter that I sent out this year.

Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Jun 9, 2008

What I realized early on after my infant daughter was diagnosed was that everyone has their issues and problems in life. While (in my opinion) they don't compare to what I am going through, others are not and can't bare my burdens. If I would even try, I know I would alienate others. I remember sitting through a bible study and a lot of my friends all shared their biggest struggles they had had in life. I was shocked at what people keep to themselves and how thankful I didn't have an alcoholic father growing up, being sexually abused, bulimia, marriage falling apart, etc.

What I decided to do was to have a positive attitude and outlook on my life and concentrate on what I am blessed with and give the rest to God. I want others to see how well my children are doing with the medications and treatments we have been given. People really don't want to always hear the negative, I know I don't.

I would really love to let everyone I run across have some idea of how much effort and time it takes to keep my children well. But it is not going to change anything. I choose to let other mom's be room moms, run Vacation Bible school, volunteer for all of the school, baseball, softball, etc committees. Things I thought I would do when I had kids but now leave it to the mom's who lives appear much easier.

Thankfully my sister always is willing to listen to me. Sometimes my husband. Also, my neighbor has a child with cf and it has helped tremendously sharing our struggles.

I also share through Great Strides and a letter we send out each year our struggles that we have gone through that year. Through the years and the many letters we have sent out, there is no question that everyone we know knows exactly what we go through. That way instead of me talking a lot about our problems to many people I get one chance to let everyone know how cf affects our lives and how they can help. Click <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5350&idUser=3802">HERE</a> if you want you can see my letter that I sent out this year.

Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Jun 9, 2008

What I realized early on after my infant daughter was diagnosed was that everyone has their issues and problems in life. While (in my opinion) they don't compare to what I am going through, others are not and can't bare my burdens. If I would even try, I know I would alienate others. I remember sitting through a bible study and a lot of my friends all shared their biggest struggles they had had in life. I was shocked at what people keep to themselves and how thankful I didn't have an alcoholic father growing up, being sexually abused, bulimia, marriage falling apart, etc.
 
 What I decided to do was to have a positive attitude and outlook on my life and concentrate on what I am blessed with and give the rest to God. I want others to see how well my children are doing with the medications and treatments we have been given. People really don't want to always hear the negative, I know I don't.
 
 I would really love to let everyone I run across have some idea of how much effort and time it takes to keep my children well. But it is not going to change anything. I choose to let other mom's be room moms, run Vacation Bible school, volunteer for all of the school, baseball, softball, etc committees. Things I thought I would do when I had kids but now leave it to the mom's who lives appear much easier.
 
 Thankfully my sister always is willing to listen to me. Sometimes my husband. Also, my neighbor has a child with cf and it has helped tremendously sharing our struggles.
 
 I also share through Great Strides and a letter we send out each year our struggles that we have gone through that year. Through the years and the many letters we have sent out, there is no question that everyone we know knows exactly what we go through. That way instead of me talking a lot about our problems to many people I get one chance to let everyone know how cf affects our lives and how they can help. Click <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5350&idUser=3802">HERE</a> if you want you can see my letter that I sent out this year.
 
 Sharon, mom of Sophia, 6 and Jack, 4 both with cf

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