young adult being tested for cf

texlnghrn2005

New member
I'm a young adult about to be tested for CF. I've never really heard of this disease before... I don't really know much about it... most things i've read online talks about childern being diagnosed at birth and etc. To be honest, I'm kind of scared. I'm not really short.. i'm 5 feet 2. I'm not really skinny... 130 pounds. I have always known i was lactose intolerent, but within the last 6 months it has gotten horribly worse. If i touch dairy without digestive enzymes i'm curled up in a ball holding my stomach for hours. With digestive enzymes my stomach hurts, but i'm not in large amounts of pain. I also have always suffered a protein shortage. As a child and teenager i rarely ate meat. Not that i didn't like the taste, but it always kind of bothered my stomach. well within the last several months, I can't eat meat at all without digestive enzymes or my stomach hurts horribly. I also noticed my food is not being digested well despite how much chewing i do. i have always had "asthma" but none of the medications ever really helped much at all. All of my life i sware i'm always getting sick. It is always with upper respiratory infections, throat infections, and sinus infections, usually all together. My doctor could never find the "root" of the problem... we assumed allergies. I have gotten tested for allergies several times yet they couldn't find much i was all that allergic to. Just mold and pollen.. but not severely. I have always had alot of trouble sleeping due to breathing difficulties due to large amounts of mucus in my throat at night. I always constantly swallowing to keep from choking on mucus. I was never aware of this till recently. one of my friends mentioned the fact that i am always making swallowing sounds... thinking this was odd i asked my father if he ever noticed it... he replied "yes, you have always done that." then i started to pay attention and realized i at minimum every 10-15 seconds. I love to exercise, but the first 45 mins or so is very hard for me to breathe. I cough and sneeze out very large amounts of mucus and get a running nose. my periods are always off. Sometimes i have them... sometimes i don't... sometimes for a day... sometimes for seven... i also have a family history of all the problems listed above and diabetes. I'm literally one of the "healthiest" people i know as far as how much i exercise... what i eat... I always take vitamins... etc. Yet in many ways, such as infections, i'm one of the unhealthiest people i know. I don't know if this is even an issue of importance, but i bruise very easily and stay bruised for quite sometime. what are my chances of having CF? Are all people with CF very skinny? despite all of my digestive problems i've always had more trouble keeping off weight than putting it on... mostly due to things i don't properly digest. (when i don't eat them i very quickly lose weight... when i do eat them i very quickly gain weight...esspecially diary.... not really sure about meat..) well thank you very much for having the patience to read all the way through... (sorry for misspellings i'm dyslexic). Any advice you can give on the matter i really appreciate.
 

texlnghrn2005

New member
I'm a young adult about to be tested for CF. I've never really heard of this disease before... I don't really know much about it... most things i've read online talks about childern being diagnosed at birth and etc. To be honest, I'm kind of scared. I'm not really short.. i'm 5 feet 2. I'm not really skinny... 130 pounds. I have always known i was lactose intolerent, but within the last 6 months it has gotten horribly worse. If i touch dairy without digestive enzymes i'm curled up in a ball holding my stomach for hours. With digestive enzymes my stomach hurts, but i'm not in large amounts of pain. I also have always suffered a protein shortage. As a child and teenager i rarely ate meat. Not that i didn't like the taste, but it always kind of bothered my stomach. well within the last several months, I can't eat meat at all without digestive enzymes or my stomach hurts horribly. I also noticed my food is not being digested well despite how much chewing i do. i have always had "asthma" but none of the medications ever really helped much at all. All of my life i sware i'm always getting sick. It is always with upper respiratory infections, throat infections, and sinus infections, usually all together. My doctor could never find the "root" of the problem... we assumed allergies. I have gotten tested for allergies several times yet they couldn't find much i was all that allergic to. Just mold and pollen.. but not severely. I have always had alot of trouble sleeping due to breathing difficulties due to large amounts of mucus in my throat at night. I always constantly swallowing to keep from choking on mucus. I was never aware of this till recently. one of my friends mentioned the fact that i am always making swallowing sounds... thinking this was odd i asked my father if he ever noticed it... he replied "yes, you have always done that." then i started to pay attention and realized i at minimum every 10-15 seconds. I love to exercise, but the first 45 mins or so is very hard for me to breathe. I cough and sneeze out very large amounts of mucus and get a running nose. my periods are always off. Sometimes i have them... sometimes i don't... sometimes for a day... sometimes for seven... i also have a family history of all the problems listed above and diabetes. I'm literally one of the "healthiest" people i know as far as how much i exercise... what i eat... I always take vitamins... etc. Yet in many ways, such as infections, i'm one of the unhealthiest people i know. I don't know if this is even an issue of importance, but i bruise very easily and stay bruised for quite sometime. what are my chances of having CF? Are all people with CF very skinny? despite all of my digestive problems i've always had more trouble keeping off weight than putting it on... mostly due to things i don't properly digest. (when i don't eat them i very quickly lose weight... when i do eat them i very quickly gain weight...esspecially diary.... not really sure about meat..) well thank you very much for having the patience to read all the way through... (sorry for misspellings i'm dyslexic). Any advice you can give on the matter i really appreciate.
 

texlnghrn2005

New member
I'm a young adult about to be tested for CF. I've never really heard of this disease before... I don't really know much about it... most things i've read online talks about childern being diagnosed at birth and etc. To be honest, I'm kind of scared. I'm not really short.. i'm 5 feet 2. I'm not really skinny... 130 pounds. I have always known i was lactose intolerent, but within the last 6 months it has gotten horribly worse. If i touch dairy without digestive enzymes i'm curled up in a ball holding my stomach for hours. With digestive enzymes my stomach hurts, but i'm not in large amounts of pain. I also have always suffered a protein shortage. As a child and teenager i rarely ate meat. Not that i didn't like the taste, but it always kind of bothered my stomach. well within the last several months, I can't eat meat at all without digestive enzymes or my stomach hurts horribly. I also noticed my food is not being digested well despite how much chewing i do. i have always had "asthma" but none of the medications ever really helped much at all. All of my life i sware i'm always getting sick. It is always with upper respiratory infections, throat infections, and sinus infections, usually all together. My doctor could never find the "root" of the problem... we assumed allergies. I have gotten tested for allergies several times yet they couldn't find much i was all that allergic to. Just mold and pollen.. but not severely. I have always had alot of trouble sleeping due to breathing difficulties due to large amounts of mucus in my throat at night. I always constantly swallowing to keep from choking on mucus. I was never aware of this till recently. one of my friends mentioned the fact that i am always making swallowing sounds... thinking this was odd i asked my father if he ever noticed it... he replied "yes, you have always done that." then i started to pay attention and realized i at minimum every 10-15 seconds. I love to exercise, but the first 45 mins or so is very hard for me to breathe. I cough and sneeze out very large amounts of mucus and get a running nose. my periods are always off. Sometimes i have them... sometimes i don't... sometimes for a day... sometimes for seven... i also have a family history of all the problems listed above and diabetes. I'm literally one of the "healthiest" people i know as far as how much i exercise... what i eat... I always take vitamins... etc. Yet in many ways, such as infections, i'm one of the unhealthiest people i know. I don't know if this is even an issue of importance, but i bruise very easily and stay bruised for quite sometime. what are my chances of having CF? Are all people with CF very skinny? despite all of my digestive problems i've always had more trouble keeping off weight than putting it on... mostly due to things i don't properly digest. (when i don't eat them i very quickly lose weight... when i do eat them i very quickly gain weight...esspecially diary.... not really sure about meat..) well thank you very much for having the patience to read all the way through... (sorry for misspellings i'm dyslexic). Any advice you can give on the matter i really appreciate.
 

texlnghrn2005

New member
I'm a young adult about to be tested for CF. I've never really heard of this disease before... I don't really know much about it... most things i've read online talks about childern being diagnosed at birth and etc. To be honest, I'm kind of scared. I'm not really short.. i'm 5 feet 2. I'm not really skinny... 130 pounds. I have always known i was lactose intolerent, but within the last 6 months it has gotten horribly worse. If i touch dairy without digestive enzymes i'm curled up in a ball holding my stomach for hours. With digestive enzymes my stomach hurts, but i'm not in large amounts of pain. I also have always suffered a protein shortage. As a child and teenager i rarely ate meat. Not that i didn't like the taste, but it always kind of bothered my stomach. well within the last several months, I can't eat meat at all without digestive enzymes or my stomach hurts horribly. I also noticed my food is not being digested well despite how much chewing i do. i have always had "asthma" but none of the medications ever really helped much at all. All of my life i sware i'm always getting sick. It is always with upper respiratory infections, throat infections, and sinus infections, usually all together. My doctor could never find the "root" of the problem... we assumed allergies. I have gotten tested for allergies several times yet they couldn't find much i was all that allergic to. Just mold and pollen.. but not severely. I have always had alot of trouble sleeping due to breathing difficulties due to large amounts of mucus in my throat at night. I always constantly swallowing to keep from choking on mucus. I was never aware of this till recently. one of my friends mentioned the fact that i am always making swallowing sounds... thinking this was odd i asked my father if he ever noticed it... he replied "yes, you have always done that." then i started to pay attention and realized i at minimum every 10-15 seconds. I love to exercise, but the first 45 mins or so is very hard for me to breathe. I cough and sneeze out very large amounts of mucus and get a running nose. my periods are always off. Sometimes i have them... sometimes i don't... sometimes for a day... sometimes for seven... i also have a family history of all the problems listed above and diabetes. I'm literally one of the "healthiest" people i know as far as how much i exercise... what i eat... I always take vitamins... etc. Yet in many ways, such as infections, i'm one of the unhealthiest people i know. I don't know if this is even an issue of importance, but i bruise very easily and stay bruised for quite sometime. what are my chances of having CF? Are all people with CF very skinny? despite all of my digestive problems i've always had more trouble keeping off weight than putting it on... mostly due to things i don't properly digest. (when i don't eat them i very quickly lose weight... when i do eat them i very quickly gain weight...esspecially diary.... not really sure about meat..) well thank you very much for having the patience to read all the way through... (sorry for misspellings i'm dyslexic). Any advice you can give on the matter i really appreciate.
 

texlnghrn2005

New member
I'm a young adult about to be tested for CF. I've never really heard of this disease before... I don't really know much about it... most things i've read online talks about childern being diagnosed at birth and etc. To be honest, I'm kind of scared. I'm not really short.. i'm 5 feet 2. I'm not really skinny... 130 pounds. I have always known i was lactose intolerent, but within the last 6 months it has gotten horribly worse. If i touch dairy without digestive enzymes i'm curled up in a ball holding my stomach for hours. With digestive enzymes my stomach hurts, but i'm not in large amounts of pain. I also have always suffered a protein shortage. As a child and teenager i rarely ate meat. Not that i didn't like the taste, but it always kind of bothered my stomach. well within the last several months, I can't eat meat at all without digestive enzymes or my stomach hurts horribly. I also noticed my food is not being digested well despite how much chewing i do. i have always had "asthma" but none of the medications ever really helped much at all. All of my life i sware i'm always getting sick. It is always with upper respiratory infections, throat infections, and sinus infections, usually all together. My doctor could never find the "root" of the problem... we assumed allergies. I have gotten tested for allergies several times yet they couldn't find much i was all that allergic to. Just mold and pollen.. but not severely. I have always had alot of trouble sleeping due to breathing difficulties due to large amounts of mucus in my throat at night. I always constantly swallowing to keep from choking on mucus. I was never aware of this till recently. one of my friends mentioned the fact that i am always making swallowing sounds... thinking this was odd i asked my father if he ever noticed it... he replied "yes, you have always done that." then i started to pay attention and realized i at minimum every 10-15 seconds. I love to exercise, but the first 45 mins or so is very hard for me to breathe. I cough and sneeze out very large amounts of mucus and get a running nose. my periods are always off. Sometimes i have them... sometimes i don't... sometimes for a day... sometimes for seven... i also have a family history of all the problems listed above and diabetes. I'm literally one of the "healthiest" people i know as far as how much i exercise... what i eat... I always take vitamins... etc. Yet in many ways, such as infections, i'm one of the unhealthiest people i know. I don't know if this is even an issue of importance, but i bruise very easily and stay bruised for quite sometime. what are my chances of having CF? Are all people with CF very skinny? despite all of my digestive problems i've always had more trouble keeping off weight than putting it on... mostly due to things i don't properly digest. (when i don't eat them i very quickly lose weight... when i do eat them i very quickly gain weight...esspecially diary.... not really sure about meat..) well thank you very much for having the patience to read all the way through... (sorry for misspellings i'm dyslexic). Any advice you can give on the matter i really appreciate.
 

bagged2drag

Active member
Wait for the tests. Thats probably the best advice. Some of the things you talk about are symptoms of cf, but by no means does that mean you have it. I wouldn't stress out and look into it too hard until you know for sure. That, I would think, would just cause a lot of unneeded stress. Keep us updated and good luck.
 

bagged2drag

Active member
Wait for the tests. Thats probably the best advice. Some of the things you talk about are symptoms of cf, but by no means does that mean you have it. I wouldn't stress out and look into it too hard until you know for sure. That, I would think, would just cause a lot of unneeded stress. Keep us updated and good luck.
 

bagged2drag

Active member
Wait for the tests. Thats probably the best advice. Some of the things you talk about are symptoms of cf, but by no means does that mean you have it. I wouldn't stress out and look into it too hard until you know for sure. That, I would think, would just cause a lot of unneeded stress. Keep us updated and good luck.
 

bagged2drag

Active member
Wait for the tests. Thats probably the best advice. Some of the things you talk about are symptoms of cf, but by no means does that mean you have it. I wouldn't stress out and look into it too hard until you know for sure. That, I would think, would just cause a lot of unneeded stress. Keep us updated and good luck.
 

bagged2drag

Active member
Wait for the tests. Thats probably the best advice. Some of the things you talk about are symptoms of cf, but by no means does that mean you have it. I wouldn't stress out and look into it too hard until you know for sure. That, I would think, would just cause a lot of unneeded stress. Keep us updated and good luck.
 

kayleesgrandma

New member
I would take Kristoffer's advice. Don't stress untill you have to for sure. Wait for the results, and if it's true, you have a great support community here, and people to talk to. Please come back and let us know either way, how your tests turn out. Good luck.
 

kayleesgrandma

New member
I would take Kristoffer's advice. Don't stress untill you have to for sure. Wait for the results, and if it's true, you have a great support community here, and people to talk to. Please come back and let us know either way, how your tests turn out. Good luck.
 

kayleesgrandma

New member
I would take Kristoffer's advice. Don't stress untill you have to for sure. Wait for the results, and if it's true, you have a great support community here, and people to talk to. Please come back and let us know either way, how your tests turn out. Good luck.
 

kayleesgrandma

New member
I would take Kristoffer's advice. Don't stress untill you have to for sure. Wait for the results, and if it's true, you have a great support community here, and people to talk to. Please come back and let us know either way, how your tests turn out. Good luck.
 

kayleesgrandma

New member
I would take Kristoffer's advice. Don't stress untill you have to for sure. Wait for the results, and if it's true, you have a great support community here, and people to talk to. Please come back and let us know either way, how your tests turn out. Good luck.
 
T

TonyaH

Guest
You have recieved good advice here. Let me add that I am sorry you are feeling so crummy. If you have felt this way since you were little, then I think you are right to pursue a diagnosis to find out what is going on. Should your test come back positive for CF, Terri was right in telling you what a great site this is. You will find tons of information and support here.

Please let us know how things are going. Are they sweat testing you, or running a genetic test? If they are running a genetic test, the most comprehensive is the Ambry test. They test for the largest number of known CF mutations to date. (FYI)

Good luck!
 
T

TonyaH

Guest
You have recieved good advice here. Let me add that I am sorry you are feeling so crummy. If you have felt this way since you were little, then I think you are right to pursue a diagnosis to find out what is going on. Should your test come back positive for CF, Terri was right in telling you what a great site this is. You will find tons of information and support here.

Please let us know how things are going. Are they sweat testing you, or running a genetic test? If they are running a genetic test, the most comprehensive is the Ambry test. They test for the largest number of known CF mutations to date. (FYI)

Good luck!
 
T

TonyaH

Guest
You have recieved good advice here. Let me add that I am sorry you are feeling so crummy. If you have felt this way since you were little, then I think you are right to pursue a diagnosis to find out what is going on. Should your test come back positive for CF, Terri was right in telling you what a great site this is. You will find tons of information and support here.

Please let us know how things are going. Are they sweat testing you, or running a genetic test? If they are running a genetic test, the most comprehensive is the Ambry test. They test for the largest number of known CF mutations to date. (FYI)

Good luck!
 
T

TonyaH

Guest
You have recieved good advice here. Let me add that I am sorry you are feeling so crummy. If you have felt this way since you were little, then I think you are right to pursue a diagnosis to find out what is going on. Should your test come back positive for CF, Terri was right in telling you what a great site this is. You will find tons of information and support here.

Please let us know how things are going. Are they sweat testing you, or running a genetic test? If they are running a genetic test, the most comprehensive is the Ambry test. They test for the largest number of known CF mutations to date. (FYI)

Good luck!
 
T

TonyaH

Guest
You have recieved good advice here. Let me add that I am sorry you are feeling so crummy. If you have felt this way since you were little, then I think you are right to pursue a diagnosis to find out what is going on. Should your test come back positive for CF, Terri was right in telling you what a great site this is. You will find tons of information and support here.

Please let us know how things are going. Are they sweat testing you, or running a genetic test? If they are running a genetic test, the most comprehensive is the Ambry test. They test for the largest number of known CF mutations to date. (FYI)

Good luck!
 
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