You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Your opinions on nebulisers please
- Thread starter anonymous
- Start date
I would think steam may pose a risk of carrying bacteria in it... just a thought, but i know even sitting in a steamy bath or hot shower ups your chances of getting different air-borne bacteria that like it nice and hot and moist. Then, you breathe it in. CFF warns to immediately remove treatment parts from the dishwasher after the wash cycle, and I thought that was so they aren't suceptible to the warm, humid air of the "drying" cycle. As far as which are boilable.... I think only PARI nebs are (correct me if I'm wrong)... I've tried boiling other kinds and they were destroyed. That's why I only ask for PARI when I need nebs.... or I order them from CF pharmacy.
SR
SR
Luke's absolutely right. Don't even try to boil the disposable nebulizers. The Pari LCs can be boiled, and these are the recommended nebulizers for TOBI. I believe the makers of the Pulmo-Aide also have a reusable nebulizer that may be boilable, and there are probably a few others on the market. In general, though, if the instructions don't say you can boil a plastic component, don't do it -- at least not without first checking with the manufacturer. Same for steam disinfection.
Diluted bleach (see the CF Foundation's recommendations for the recipe) will kill just about anything; but I, too, would be concerned about resudue left after rinsing. Also, you would want to use sterile water if you wanted to be sure not to reintroduce more germs in the rinsing process.
On balance, I think it's probably easiest and most effective to go with the Pari or other reusable nebulizers and boil them. For those in the US, the CF Services Pharmacy provides a free Pari LC-Plus nebulizer every few months with TOBI and Pulmozyme orders. You can buy extras for just $11. If cost is a problem, I bet your CF center or the TOBI group at Chiron would give you one or more free.
Bambi, Jordan's mom
Diluted bleach (see the CF Foundation's recommendations for the recipe) will kill just about anything; but I, too, would be concerned about resudue left after rinsing. Also, you would want to use sterile water if you wanted to be sure not to reintroduce more germs in the rinsing process.
On balance, I think it's probably easiest and most effective to go with the Pari or other reusable nebulizers and boil them. For those in the US, the CF Services Pharmacy provides a free Pari LC-Plus nebulizer every few months with TOBI and Pulmozyme orders. You can buy extras for just $11. If cost is a problem, I bet your CF center or the TOBI group at Chiron would give you one or more free.
Bambi, Jordan's mom
We use the Pari nebulizer kits and boil them almost after each use. They were purchased at American Allergy Supply and were $14.90 per set. I have heard recently that the doctor's will supply you with new kits, if you ask. I plan on doing just that real soon. We have about 12 nebulizer sets and just rotate them.
Ok, this may be a dumb question, but here goes - Lysol Professional disinfectant spray kills almost all of the main viruses/bacteria that give cfers problems. Namely, b.cepacia, pseudomonas, various strains of strep and staph, including MRSA, plus a number of other strains, including HIV, RSV, and Rotovirus. If you didn't have time or the energy to do a full scale cleaning afterwards, what if you rinsed it quickly, sprayed it liberally with this stuff, then just thoroughly rinsed it and dried it just prior to use. Wouldn't take long. If you rinsed it thoroughly, there shouldn't be any residue left that could be irritating to your lungs, right? I would think it shouldn't be anymore irritating than bleach anyway. BTW, I won't be admitted to the hospital without taking lysol spray because it's such an effective disinfectant and much cheaper than lysol wipes (and doesn't ruin fabrics like bleach can/will.) Anyone have any opinions?
Very interesting question! Maybe you could email CFF and ask their opinion. That would sure be great if we could just do that (especially if traveling and not able to fully wash with soapy water). I sure wish someone would develop a spray we could just spray them with between treatments.... would be so much easier than all the washing, rinsing, boiling, drying!
SR<img src="i/expressions/face-icon-small-wink.gif" border="0">
SR<img src="i/expressions/face-icon-small-wink.gif" border="0">
Ok this is it guys...the real truth is
you must wash out your masks every day because if you dont bacteria will grow on it and your making ur lungs worse...if you do the pep mask for physio then you clean that out once a week and that should do it for you.
For anyone who is doing this differently i would consult your docs...not that im a doc but i tend to ask a lot of questions and these r the answers my docs gave me..so hope it helps
Ashley 20 w/ cf
you must wash out your masks every day because if you dont bacteria will grow on it and your making ur lungs worse...if you do the pep mask for physio then you clean that out once a week and that should do it for you.
For anyone who is doing this differently i would consult your docs...not that im a doc but i tend to ask a lot of questions and these r the answers my docs gave me..so hope it helps
Ashley 20 w/ cf
you do not want to you lysol or any cleaner thing like it.Please keep it mind that stuff is very posionous as well as irritating to your lungs. I will encourage you just to let it soak in peroxide, it is cheap and easy.
By the way, when I worked as a RT I had a pateint die because he ingested lysol!
Luke MBA RRT 29/cf on PO antibioitcs
By the way, when I worked as a RT I had a pateint die because he ingested lysol!
Luke MBA RRT 29/cf on PO antibioitcs
My mom works at a hospital so she has access to the employee store.. i just buy disposible neb cups like they have at the drs office.. new cup, tubing and mouthpiece.. i think they are like a dollar each; they come packaged individualy and sterile.. i just buy them 1 case at a time so i dont bother with washing them i just get a new one.. i also buy medicine cups and medicine syringes by the case they come sterilized and individually wrapped as well...... Thats just what i do....
Melissa mom to caleb 3wcf and dylan 6 nocf
Melissa mom to caleb 3wcf and dylan 6 nocf
Thanks everyone<img src="i/expressions/face-icon-small-happy.gif" border="0"> I can't believe I didn't know this before.<img src="i/expressions/face-icon-small-blush.gif" border="0"> but theres no better time to learn from your mistakes then the present!<img src="i/expressions/rose.gif" border="0">
vickysmommy
New member
Cleaning them every day I dont think is necessary. I used to be perinoid about that too until I started going to the hospital. I noticed the whole week I was there they didn't clean or change my nebulizer equipment once, except for the TOBI one. You have to clean that cause it does get sticky after one use. I think its only once a week though, its always good to rinse them with warm water though
This is the bottom line.
There is no point is re-infecting yourself with bacteria after spending so much time doing meds every day.
The way to avoid re-infecting yourself is BOILING..... boiling is the only way to kill the virulent bacteria we all carry. There is no other way.
If bleech sufficed, or if it was safe for the nebs, then this would be the CFF recommendations.
The CFF recommends procedures not just for fun, but because they are best practices. So do what they say to do and you will hedge your bets for better health.
There is no point is re-infecting yourself with bacteria after spending so much time doing meds every day.
The way to avoid re-infecting yourself is BOILING..... boiling is the only way to kill the virulent bacteria we all carry. There is no other way.
If bleech sufficed, or if it was safe for the nebs, then this would be the CFF recommendations.
The CFF recommends procedures not just for fun, but because they are best practices. So do what they say to do and you will hedge your bets for better health.
Hello
We used to wash Kait's nebs in vinegar and water after each use , now we clean them in warm water and liquid dish soap, rinse with warm water, and then air dry. Every other day soak in white vinegar and hot water for 1 hour, rinse all parts with warm tap water and dry.
kaitsmom<img src="i/expressions/rose.gif" border="0">
We used to wash Kait's nebs in vinegar and water after each use , now we clean them in warm water and liquid dish soap, rinse with warm water, and then air dry. Every other day soak in white vinegar and hot water for 1 hour, rinse all parts with warm tap water and dry.
kaitsmom<img src="i/expressions/rose.gif" border="0">