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Yucky news today for Zoe...
- Thread starter zoe4life
- Start date
my son was sick for 2 weeks with fever while he is on iv meds, we ran fevers all the time of 100-102, finally after many phone calls the doctor tested him, and yes it was c-diff, after 2 days on the antibiotic the fevers went away and he began feeling 100% better, why dont they check for this right away, we felt like we were in a nightmare. we are finally on the right road and hope to have our iv out by may 25, if we continue to improve. good luck with zoe, I will say a prayer for her tonight. tbw18
my son was sick for 2 weeks with fever while he is on iv meds, we ran fevers all the time of 100-102, finally after many phone calls the doctor tested him, and yes it was c-diff, after 2 days on the antibiotic the fevers went away and he began feeling 100% better, why dont they check for this right away, we felt like we were in a nightmare. we are finally on the right road and hope to have our iv out by may 25, if we continue to improve. good luck with zoe, I will say a prayer for her tonight. tbw18
my son was sick for 2 weeks with fever while he is on iv meds, we ran fevers all the time of 100-102, finally after many phone calls the doctor tested him, and yes it was c-diff, after 2 days on the antibiotic the fevers went away and he began feeling 100% better, why dont they check for this right away, we felt like we were in a nightmare. we are finally on the right road and hope to have our iv out by may 25, if we continue to improve. good luck with zoe, I will say a prayer for her tonight. tbw18
OH Dam*!!!! I was soooooo hoping it wasn't c-diff! Emily has been culturing it pretty steadily since we were hospitalized with it in January. It goes away, we get a neg. culture, then it comes back...over and over again. This time around, though, I have her on a probiotic, and I am hoping that it is going to help us break this nasty cycle. Our pedi. said at our last visit that some people will colonoize with it and always culture it, but be pretty much asymptomatic except for flare ups. LIke with psuedomonas, I guess. I do have to say that this last time around has been much easier on emily that the previous. She is keeping food down, and onoly had loose stools for a couple days. Her mood has been much better, too.
We got good at "dxing" it ourselves by the smell, consisitency an color of the poop. harder to do with a big girl like Zoe, I suppose, but we have been able to catch it early and get her on Flagyl right away the last two times. She starts to feel better with in a day or two of starting Flagyl. The worst was the first time when she just kept getting sicker and sicker and we had no idea why. Now we know what to look for.
I strongly encourage you to look into probiotics. Hang in there, it will subside, and she will feel so much better after starting the meds. (Out of curiousity, what med is she on?) I will be sending you good thoughts. I have a little visualization I do where I "See" the good bacteria attacking and overtaking the c.diff in Em's tummy. I'll do one for Zoe tonight. It's goofy, I know, but I do these things before I fall asleep...makes me feel like I"m getting in one last punch against all the crap we deal with every day.
Keep in touch and pm me if you want.
Give Zoe a hug from Em and me!
We got good at "dxing" it ourselves by the smell, consisitency an color of the poop. harder to do with a big girl like Zoe, I suppose, but we have been able to catch it early and get her on Flagyl right away the last two times. She starts to feel better with in a day or two of starting Flagyl. The worst was the first time when she just kept getting sicker and sicker and we had no idea why. Now we know what to look for.
I strongly encourage you to look into probiotics. Hang in there, it will subside, and she will feel so much better after starting the meds. (Out of curiousity, what med is she on?) I will be sending you good thoughts. I have a little visualization I do where I "See" the good bacteria attacking and overtaking the c.diff in Em's tummy. I'll do one for Zoe tonight. It's goofy, I know, but I do these things before I fall asleep...makes me feel like I"m getting in one last punch against all the crap we deal with every day.
Keep in touch and pm me if you want.
Give Zoe a hug from Em and me!
OH Dam*!!!! I was soooooo hoping it wasn't c-diff! Emily has been culturing it pretty steadily since we were hospitalized with it in January. It goes away, we get a neg. culture, then it comes back...over and over again. This time around, though, I have her on a probiotic, and I am hoping that it is going to help us break this nasty cycle. Our pedi. said at our last visit that some people will colonoize with it and always culture it, but be pretty much asymptomatic except for flare ups. LIke with psuedomonas, I guess. I do have to say that this last time around has been much easier on emily that the previous. She is keeping food down, and onoly had loose stools for a couple days. Her mood has been much better, too.
We got good at "dxing" it ourselves by the smell, consisitency an color of the poop. harder to do with a big girl like Zoe, I suppose, but we have been able to catch it early and get her on Flagyl right away the last two times. She starts to feel better with in a day or two of starting Flagyl. The worst was the first time when she just kept getting sicker and sicker and we had no idea why. Now we know what to look for.
I strongly encourage you to look into probiotics. Hang in there, it will subside, and she will feel so much better after starting the meds. (Out of curiousity, what med is she on?) I will be sending you good thoughts. I have a little visualization I do where I "See" the good bacteria attacking and overtaking the c.diff in Em's tummy. I'll do one for Zoe tonight. It's goofy, I know, but I do these things before I fall asleep...makes me feel like I"m getting in one last punch against all the crap we deal with every day.
Keep in touch and pm me if you want.
Give Zoe a hug from Em and me!
We got good at "dxing" it ourselves by the smell, consisitency an color of the poop. harder to do with a big girl like Zoe, I suppose, but we have been able to catch it early and get her on Flagyl right away the last two times. She starts to feel better with in a day or two of starting Flagyl. The worst was the first time when she just kept getting sicker and sicker and we had no idea why. Now we know what to look for.
I strongly encourage you to look into probiotics. Hang in there, it will subside, and she will feel so much better after starting the meds. (Out of curiousity, what med is she on?) I will be sending you good thoughts. I have a little visualization I do where I "See" the good bacteria attacking and overtaking the c.diff in Em's tummy. I'll do one for Zoe tonight. It's goofy, I know, but I do these things before I fall asleep...makes me feel like I"m getting in one last punch against all the crap we deal with every day.
Keep in touch and pm me if you want.
Give Zoe a hug from Em and me!
OH Dam*!!!! I was soooooo hoping it wasn't c-diff! Emily has been culturing it pretty steadily since we were hospitalized with it in January. It goes away, we get a neg. culture, then it comes back...over and over again. This time around, though, I have her on a probiotic, and I am hoping that it is going to help us break this nasty cycle. Our pedi. said at our last visit that some people will colonoize with it and always culture it, but be pretty much asymptomatic except for flare ups. LIke with psuedomonas, I guess. I do have to say that this last time around has been much easier on emily that the previous. She is keeping food down, and onoly had loose stools for a couple days. Her mood has been much better, too.
We got good at "dxing" it ourselves by the smell, consisitency an color of the poop. harder to do with a big girl like Zoe, I suppose, but we have been able to catch it early and get her on Flagyl right away the last two times. She starts to feel better with in a day or two of starting Flagyl. The worst was the first time when she just kept getting sicker and sicker and we had no idea why. Now we know what to look for.
I strongly encourage you to look into probiotics. Hang in there, it will subside, and she will feel so much better after starting the meds. (Out of curiousity, what med is she on?) I will be sending you good thoughts. I have a little visualization I do where I "See" the good bacteria attacking and overtaking the c.diff in Em's tummy. I'll do one for Zoe tonight. It's goofy, I know, but I do these things before I fall asleep...makes me feel like I"m getting in one last punch against all the crap we deal with every day.
Keep in touch and pm me if you want.
Give Zoe a hug from Em and me!
We got good at "dxing" it ourselves by the smell, consisitency an color of the poop. harder to do with a big girl like Zoe, I suppose, but we have been able to catch it early and get her on Flagyl right away the last two times. She starts to feel better with in a day or two of starting Flagyl. The worst was the first time when she just kept getting sicker and sicker and we had no idea why. Now we know what to look for.
I strongly encourage you to look into probiotics. Hang in there, it will subside, and she will feel so much better after starting the meds. (Out of curiousity, what med is she on?) I will be sending you good thoughts. I have a little visualization I do where I "See" the good bacteria attacking and overtaking the c.diff in Em's tummy. I'll do one for Zoe tonight. It's goofy, I know, but I do these things before I fall asleep...makes me feel like I"m getting in one last punch against all the crap we deal with every day.
Keep in touch and pm me if you want.
Give Zoe a hug from Em and me!
good thing they caught it when they did, even though it could've been checked for before. I'm no doctor and I've never had c. diff, but someone I had a conversation with about IV antibiotics a while ago told me that when he had c. diff, he was pumped full of meds that weren't working. Finally he was put on vancomycin as a last resort and it knocked the stuff right out of his system. Maybe ask the doc about it if that isn't the first choice of meds.
good thing they caught it when they did, even though it could've been checked for before. I'm no doctor and I've never had c. diff, but someone I had a conversation with about IV antibiotics a while ago told me that when he had c. diff, he was pumped full of meds that weren't working. Finally he was put on vancomycin as a last resort and it knocked the stuff right out of his system. Maybe ask the doc about it if that isn't the first choice of meds.
good thing they caught it when they did, even though it could've been checked for before. I'm no doctor and I've never had c. diff, but someone I had a conversation with about IV antibiotics a while ago told me that when he had c. diff, he was pumped full of meds that weren't working. Finally he was put on vancomycin as a last resort and it knocked the stuff right out of his system. Maybe ask the doc about it if that isn't the first choice of meds.
What's amazing to me is how differently every individual reaxts to various meds. Vanco did nothing for Emily. She was put on it first and it had absolutely no effect. Flagyl works well and works quickly, for her. One of the things I value most about this site is learning what meds are out there. I always feel better when the doctor fives us something I've at least heard of. Thanks, Erin, for bringing up vanco. I had forgotten all about it!
What's amazing to me is how differently every individual reaxts to various meds. Vanco did nothing for Emily. She was put on it first and it had absolutely no effect. Flagyl works well and works quickly, for her. One of the things I value most about this site is learning what meds are out there. I always feel better when the doctor fives us something I've at least heard of. Thanks, Erin, for bringing up vanco. I had forgotten all about it!
What's amazing to me is how differently every individual reaxts to various meds. Vanco did nothing for Emily. She was put on it first and it had absolutely no effect. Flagyl works well and works quickly, for her. One of the things I value most about this site is learning what meds are out there. I always feel better when the doctor fives us something I've at least heard of. Thanks, Erin, for bringing up vanco. I had forgotten all about it!
CFHockeyMom
New member
For those of you wondering what c-diff is...
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Clostridium_difficile">http://en.wikipedia.org/wiki/Clostridium_difficile</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Clostridium_difficile">http://en.wikipedia.org/wiki/Clostridium_difficile</a>
CFHockeyMom
New member
For those of you wondering what c-diff is...
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Clostridium_difficile">http://en.wikipedia.org/wiki/Clostridium_difficile</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Clostridium_difficile">http://en.wikipedia.org/wiki/Clostridium_difficile</a>
CFHockeyMom
New member
For those of you wondering what c-diff is...
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Clostridium_difficile">http://en.wikipedia.org/wiki/Clostridium_difficile</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Clostridium_difficile">http://en.wikipedia.org/wiki/Clostridium_difficile</a>
T
tammykrumrey
Guest
I am sorry that she is having to deal with this, on top of everything else. My girls have not had this problem, although my grandmother did and she felt just miserable. I really am sorry and hope she is feeling better soon.