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  1. S

    Leaving

    I would also be interested in the new forum <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. S

    Daughter without CF

    Thank you... I never knew you had to train yourself to sweat. I will be trying that before her next test. Iam going to call the Toronto Hospital just have been so busy. I have hopes that when I express my concern again to my daughters CF doctor that he will listen and try something new!
  3. S

    Favorite fiction books?

    I just finished reading Divergent!! Amazing! As well as The Hunger Games series. I am right now reading City of Bones which is book 1 of a trilogy.
  4. S

    Daughter without CF

    Im going to try! It can't hurt and if we get a result than even better!!!
  5. S

    Daughter without CF

    I will ask about an appeal. It does seem like we are really gettin no where with the sweat test and I am getting frustrated. I will try feeding her salt before her sweat August 1st. Not too sure if it will be easy to get a 5 year old who I never add salt to her food to eat it tho :s. Worth a try...
  6. S

    Daughter without CF

    The doctor says that here it is an issue of having to get a positive sweat test done in order to qualify so to speak for a genetic test. I think you would want to know sooner than later especially with her younger sister having cf and being diagnosed at 5 weeks old. I just find it so stressful...
  7. S

    Daughter without CF

    It just really scares me because CF has never been ruled out. In alberta her younger sister was tested at birth but when she was born it was in BC and a year before they started testing at birth. I just dont want it to slip through the cracks!!
  8. S

    Daughter without CF

    I am going to give her some of her sisters enzymes since they are all free anyways it shouldn't hurt to give her a few. I also take them since I have had my gall bladder removed if I am eating anything extra fatty. I am going to try to call the hospital in Toronto see what they say. She has...
  9. S

    Daughter without CF

    we are in Canada and he says it is different here. I'e been trying to figure out since Nov 2010 <img src="i/expressions/face-icon-small-sad.gif" border="0">
  10. S

    Daughter without CF

    My 5 year old daughter has never been diagnosed but has never had it officially ruled out. She has had over 10 sweat test but they are all incinclusive because they can not collect enough sweat. I have asked our cf doctor if there is any other tests we can do or genetic testing. He say that he...
  11. S

    Daughters Throat Swab POSITIVE for first time ever :(

    Thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. S

    Daughters Throat Swab POSITIVE for first time ever :(

    Thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. S

    Daughters Throat Swab POSITIVE for first time ever :(

    Any one know anything about this? CF clinic said they are just going to monitor it for now.
  14. S

    Daughters Throat Swab POSITIVE for first time ever :(

    Any one know anything about this? CF clinic said they are just going to monitor it for now.
  15. S

    Any Canadians on here?

    I am from Edmonton, This drug doesn't target my daughters mutation but I would be more than willing to sign the petition!
  16. S

    Any Canadians on here?

    I am from Edmonton, This drug doesn't target my daughters mutation but I would be more than willing to sign the petition!
  17. S

    Any Canadians on here?

    I am in Edmonton, Kalydeco doesnt help my daughter but I would be more than willing to sign a petition to get it here faster!
  18. S

    Any Canadians on here?

    I am in Edmonton, Kalydeco doesnt help my daughter but I would be more than willing to sign a petition to get it here faster!
  19. S

    looking for parents with CF children to talk with

    I have a 18 month old daughter with cf. You can message me or add me to fb if you would like.
  20. S

    looking for parents with CF children to talk with

    I have a 18 month old daughter with cf. You can message me or add me to fb if you would like.
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