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Any military people I could use your help. We were stationed at Ft. Campbell and I went to Vanderbilt in nashville which was about 50 miles away for treatment for 6 years. Last year we decided to leave the unit he was at and were stationed at Ft. Lewis. On Dec 31st we have been here 12 months...

Ok, Went on IV's. Tried orals for about 5 weeks, luck then no luck, we all know the routine. So I said lets do IV's before I get to run into the ground. I start them and oh my gosh I feel like I have literally been hit by a bus. I am sleeping at least 15 hours a day. All I am is tired. No energy...

How far away can I live? Is 70 miles ok? Im sure I could get a medivac from the army base to the hospital but afterwards will they let me live 70 miles away to come for visits

HI, My husband is in the army and in 2 years we will be moving and I need to prepare for where we will go. I have to find a hospital that has an army base near it. Otherwise they could kick my husband out because he cant be with me for that much time for a transplant and not at work. If people...

Hi, My husband is in the army. We will be moving in 2 years to our next station. I want to prepare for what can happen and we would HAVE to live near the hospital so I need to know the best hospitals for transplants so I can try to find bases near it. Other wise my husband could be kicked out...

I am so sorry but I can not find your info anywhere. If you were the mom that I talked to about zenpep and you were saying that your sons shipments always seemed late could you please PM me. I need to talk to you. Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Last night I coughed and up came the blood, now it was never stright liquid blood but it was liquid blood with a tiny bit of mucus, heck it may of been just spit. I didnt make me cough like it normally does. Normally when I bleed it makes me cough and up it comes, and keeps comming. I had to...

Does it work for you?

Im wondering how bad the cost of zenpep is going to be

Is it expensive with and without the whole insurance ordeal?

So since I moved they do not use the NHANES III they used another type. When I researched it I saw that my latest numbers were very off in comparing them. We are all using different versions so how do we really tell where we are at? Knudson Hankison Predicted FVC -4.14 4.54 FEV1 - 3.38 3.78...

We jsut moved here and I am trying to get established at a clinic. Seattle hasnt put the best outlook towads me but who knows. I am about 60 miles from seattle and 120 from portland. I could really use some advice good and bad from people at both clinics. THANK YOU!!!

Thank you to all of you who told me to go to the ER. I did last night but nothing good came out of it, except the did move my CF appt to March 19th. The doctor did not want to admit me due to the fact that they would not change anything on the drugs im on or give me anything for pseaudo because...

Ok guys long story short we just moved to WA. The seattle clinic can not get me in untill April 3rd. Since we have moved I have had a big exaserbation. One to where my numbers have dropped to the lowest point they have ever been in my life. I can not get into the CF doctor so the pulmonary...

We just moved to WA with the army. There is a newspaper here who is doing a contest on how you deal with hard things in life and why you could use a weekend vacation. I entered and am a fianlist now <img src="i/expressions/face-icon-small-smile.gif" border="0"> Here is a link if you all wouldnt...

Ok I have been at the same clinic for the past 6 years. We just moved and I went to do a PFT test at the local hospital pulmonary clinic. I freaked out, my FEV 25-75 was at 36%. I have never been lower then 55 in my life. Also all my other numbers were lower too. I know im sick but this is...

I was blessed with my beautiful baby boy who just turned 2 in Jan. Latley I have had thoughts of number 2 running in my mind. I never thought that we would be able to have one child in the first place. I was blessed that my health did not take a hugh hit from pregnancy and now I wonder. I have...

Could anyone use a Pari ProNeb Ultra? Every 5 years my insurance gets me a new nebulizer and I just got a new one so I was wondering if anyone could use this, maybe someone who cant get one with their insurance.

Ok I would like to try and take a poll and ask everyone how many hours of sleep do you need a day? My husband and I are having a disagreement on this issue, so I told him I would post a poll here so I can see how much sleep a day each person usually gets or need. This inculdes night sleep and...

Anyone watch army wifes on lifetime??? The lawyers daughter dies of CF. I about fell of the couch when he said she had CF. WHOOO HOOOO another show talking about CF