how often do you miss treatments?

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view
 

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view
 

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view
 

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view
 

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view
 

Ricky123

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view
 

Jennifer1981

New member
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Jennifer1981

New member
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.
 

Ratatosk

Administrator
Staff member
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.
 

Ratatosk

Administrator
Staff member
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.
 

Ratatosk

Administrator
Staff member
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.
 

Ratatosk

Administrator
Staff member
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.
 

Ratatosk

Administrator
Staff member
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.
 
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