Recent content by AmyKins

Thanks for the info - I have had many sleep studies done- & they found my CO2 is high a lot- (you can not mistake a CO2 headache- so I have one done & a blood gas when I start getting those headaches). So, if I sleep with it on I let off the CO2. I have also been on it in the ICU before too...

I don't hear much about bi-paps in here except when it comes to the "end". I have been on a bi-pap at night for like 10 months now. I was just wondering if I am just much sicker or if other people use one too?

I think its perfectly normal to feel this way when you are dealing with what we have to deal with. I think these feelings just come with the territory of a chronic illness. I have these feelings a lot too, it really does help to talk to someone if you think thats something you might want to do...

I have this problem, thats why I sleep with a bi-pap. The only way I can describe is like my head is going to explode & then really tired all day- its an intense pain and it goes down my neck. I would DEF. suggest having the doc check his blood gas if it continues. I had this a week ago & I went...

I know I have depression at times. I have been diagnosed with anxiety so Im on prozac for it ( & atarax as needed) at first I was embarassed by this, but I think it totally goes with the territory of what we have to deal with everyday. I think its very normal for people with chronic illnesses to...

the person who this is written about goes to the same clinic as I do, My doc has been telling me about the book for months and says its really good.

yea, my doc just told me its something they worry about- she wasn't saying I had it. I highly doubt I have it because I just had a normal heart test in April. I was just wondering what the symptoms were because Im in the transplant eval. so its something I worry about, but thats just me - when...

Is it common for people with CF to have heart problems too? Yesterday my doc asked me if my feet are ever swollen & then she mentioned conjestive heart failure- I have never noticed it, but I do notice that sometimes my ankles are sore and look a little puffy. I was looking up the symptoms of...

I know some of you have gone here for the transplant program- I had my first visit today & I am going to be starting the eval. soon- they told me it takes 3 months for the process...is that true? I thought it would be a lot shorter than that. I know there is a lot of testing to do. Just wondering...

yea I have heard that is true. I went to the transplant clinic today & I am clear of the cepicia, but also she did say they have done some transplants with cepicia because there are different types I guess- a "good" one and a "bad" one. I guess if its the "good" one they will do it. I was very...

I had this problem too and I took reglan for it as well. I think it worked, but the real problem for me was the g-tube was just making me sooo full & I would throw up all the time from it- I had to have a j-tube put in- what a world of difference. I have gained about 15 pounds since May when I...

I think my doc had told me the same thing- that the "bugs" can over take eachother. I am glad they are so cautious where I am going, but I so worried about if I have cepicia or not (because this is a transplant eval.)- My nurse told me my last 2 came back neg.- I am confused if I have it or...

well Im going to the transplant clinic to start the eval. & its one day for everyone I guess. I haven't cultured it in a long time, so I don't know why they are making be do this, but I will do it. I know its to protect everyone else, but my last 2 cultures were neg. for it.

Does anyone know if this can come and go? I am going to a new clinic on Wed. and they called me to tell me I have to wait in the hallway when I go there because I cultured it back in 2003, but I guess only once more since then and all the rest have come back neg. for it. Its really concerning me =(

My dad always used to call me amykins & he passed away so I like to remember him that way...