Recent content by ashamalie

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    momma's trying not to give up...

    He has to go to the nurses office to get them. He's been pretty good about it so far this year. Some days he sneaks it in but they hunt him down. Our biggest argument is treatments and Aerobika, because he has to stop playing outside with them. We're going to get a liquid antibiotic and try it...
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    momma's trying not to give up...

    Thank you all for your suggestions! I never considered skyping, as we've never done it. I'm definitely getting the book. We have asked for a referral at clinic with psych if necessary, but are thinking that social might have some other options to try first. I think it would be helpful, even if...
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    momma's trying not to give up...

    I am going to get the book. Getting him to do the treatments without a fight, and taking the antibiotics like he should are just something he has to do. I don't like forcing him because it always ends with him more angry than we started. But, it's his life. This isn't going to change for him any...
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    momma's trying not to give up...

    Thank you for that tip. I'd never heard of that. I will definitely be looking for it!!!
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    momma's trying not to give up...

    This may not be the correct place for this...but I didn't see another forum that would fit, with my very tired eyes. I have a 7 year old son who was diagnosed at 2 weeks old. Recently, he cultured PA for the third time in his life. I'm not sure what changed but this has sparked absolute...
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    Bacterial intestinal overgrowth

    Bill, I hadn't thought of that. But that's a valid point. He does seem to be most stinky after cereal! Investigation time! Thanks!!!
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    Bacterial intestinal overgrowth

    Yes, he is. He takes a capful every other day. Anymore than that and we're having adverse effects.
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    Bacterial intestinal overgrowth

    Bill, Would you associate this with frequent belly aches? Also, would say that CF stool shouldn't ALWAYS smell? Reading through this I'm noticing a few similarities with my own CFer, and thinking that maybe this is something to look at to help with his belly. We have just recently increased...
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    CF on Tattoo Nighmares!

    I would be interested in seeing this. DEFINITELY let us know!!
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    DF508/i507del I have just been thrown off phase 3 combo trial.

    I don't have any additional info for you, but my son has the same genes. I would be interested in seeing other information on the way meds work with the genes, and the way the genes are compared to each other. We have always been told that everyone is different, even when they have the same...
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    Sinus rinses?

    It almost sounds like you may have an obstruction. Have you ever had polyps? My son has that happen when his polyps return, along with the same snoring horrible sounds.
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    Starting school - kindergarten

    My son will be 6 in October, he just started full day Kindergarten as well. One of the things we did when he started Pre-K, was we wrote a letter to the teacher, outlining a few things we felt important for her to know, even though he was only there for 3 hours. We do have a small school, so the...
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    Thinking things through - Little Lab? Faust? others?

    Wow, totally unrelated thought here... I wish I were HALF as intelligent as OP! :D That was very well put together and informative.
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    Kicked out of school for being a CF carrier???

    Okay, so initially I reacted in anger...are you kidding me?! but reading the newspaper article changes that for me. I'm glad I did so. I think more investigating should be done. Are the other two students in the same grade as this boy? If my son weren't the only one in his school that had this...
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    researching doctors?

    thank you both. I get mixed results when I ask about our dr. But the it comes up a little tossed. just about half of the people i ask like and the other don't lol. So i guess it's just one of those, it's a personal preference. I know I do NOT like our dietician. She made it seem like we were...
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