Recent content by harvey

Dumb question...but if one parent has the Delta508 mutation and the other has the <b><a href=...

Thanks for sharing this great article.<br> <br> Harvey

Is the sweat test really accurate for those who are older and show relatively few CF symptoms?<br> <br> Harvey

Thanks,<br> <br> This is very helpful information...but scary at the same time.  What if someone with PA in a waiting room coughed on you, would you likely get it?  Do you think doctors could carry the bug from patient to patient on their clothes or stethoscope? There's not much you can do about...

I've heard a lot about the dangers of Cepacia and some mention of Pseudomonas.  Just how bad can Pseudomonas be?  What are the best practices for not getting Pseudomonas?  Does it spread easily?  What organs does it effect?  Are there various strains? Some bad...some not so bad?<br> <br> What's...

Is there any advantage to listing hospitals that might have Cepacia lurking around and where Docs/nurses/waiting rooms may not be making a best effort to adhere to the highest standards to prevent transmission?  I've heard that a clinic in Eastern Washington is treating two patients with Cepacia...

That's one cute baby!!!! John Harvey....great name too!<br> <br> Harvey

1) For example, my grandson has the CF mutation 1717-G>A which we assume probably came though my line.  Would this mean that some of my siblings, and my son would have the same 1717-G>A?  Or could it be the 508 strain just as easily?<br> <br> 2) My grandson has both the 1717-G>A and the delta...

We had a friend who  had 6 CF kids and one non-CF. Another friend had 4 kids, two CF and two non-CF.  It all has to do with averages and luck but with a larger sampling the above percentages are comforting.<br> <br> Harvey

I've offered to pay for CF tests for all my children (or their spouses) since I'm probably the carrier of a recessive gene that got passed to my son who has a CF baby.  Are these tests complicated blood tests? Expensive?  Thanks.<br> <br> Harvey

Congratulations!<br> <br> You're now old enough to have experienced about all the major CF treatment approaches.  Do you have words of advice for those CFers just starting out as children?<br> <br> Harvey<br> Grandfather to month-old CF baby

Thanks, all. I appreciate the candid replies about CF and Day Care as it's not a simple issue and there are seldom simple answers.<br> <br> Harvey

Please pardon the sensitive question but we're new to the CF scene and are learning all we can as fast as we can.  I'd heard that certain bacteria are worse for CF patients than others...and that if one CF patient happens to be fighting this bacteria...that its transmission to another CF kid...

Is sending  young CF children to day care just asking for trouble? Infections, etc?  What are suggested practices?<br> <br> Harvey

I've heard that mortality rates vary from hospital to hospital for CF patients and that this may be related to the cleanliness/training/conscientious that varying hospitals have. Sometimes it may be related to a particular cutting-edge doctor.  Anyone care to list the top 10 CF hospitals?  Top 5...