Recent content by jamey

  1. J

    Past Message, I need help finding

    oops goofed up..sorry
  2. J

    Past Message, I need help finding

    thanks for your comments on my analogy i made up and posted along time ago.. my cf team at barnes went to a cf conference a few months ago and my social worker read it up in front of everybody...i thought that was pretty cool...just curious if you dont mind me asking..what made you decide to dig...
  3. J

    thank you all for the thoughts and prayers

    i made it home yesterday and actually am feeling pretty good on 5-6 liters02...the bipap has made a world of difference for me....though it took me 2 weeks to get weaned off needing it 24/7...now i just need it at night set at 50% o2 and a pressure of 17-5...but other than needing that i made a...
  4. J

    thank you all for the thoughts and prayers

    i made it home yesterday and actually am feeling pretty good on 5-6 liters02...the bipap has made a world of difference for me....though it took me 2 weeks to get weaned off needing it 24/7...now i just need it at night set at 50% o2 and a pressure of 17-5...but other than needing that i made a...
  5. J

    cf centers

    i go to barnes hospital in st.lois missouri...i live about 1 hour away in illinois
  6. J

    Need advice about St.Louis CF program

    i go to st.loius...i see rosenbluth and atkins....but i get along good with all of them....i've been on 3200 about every other month the past two years, so i deal with them on a pretty regular basis, but never any problems with them.
  7. J

    Do you share a room in the hospital?

    where i go we get private rooms with our own bathroom/shower and also a mini fridge in each room for sodas or whatever.
  8. J

    Meripenum and Tobramycin together?

    i just got out of hospital saturday from a 19 day stay and i was on meropenum and tobramycin ivs together, plus minocycline orally
  9. J

    What kind of car do u drive?

    black 2002 pontiac sunfire
  10. J

    Refrigerate Enzymes?????

    i take ultrase mt20 and the label says store between 59f-77f in dry place, do not refrigerate
  11. J

    What state do you live in?

    illinois, but go to doctor in missouri
  12. J

    A little off topic, but in a good way..

    i ordered that along with 2 of those t-shirts and some other stuff awhile back. she was pretty quick with my order.
  13. J

    A New Game!!!

    cube sugar...
  14. J

    Exercise survey

    i go to pulmonary rehab 3 days a week for exercise. i do 20-30 minutes treadmill at 2mph,25 minutes on recumbant bike and 15 minutes of the arm crank thing. im normally on 5 liters of o2 but when i exercise i use 6 liters
  15. J

    Best/Worst?

    i have several worst things. one that bothers me most is as i was growing up i always wanted to be an ironworker like all the rest of the men in my family, i would be with my cousins in the 5th generation of ironworkers in our family. but of course that kind of work is to hard for me. also...
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