Recent content by jbrandyn

Hey, I have the same issue. My rhinologist did reconstructive surgery in my nose to make it more accessible so that he can clean them out during an office visit, it is great. Granted I am chillin' in the ED right now for sinus issues :(. That said I think that surgery is good given the ease and...

With the exception of my current exile to St. Louis for grad school I have always been at UW. Sounds like normal new patient frustration, most new patients have it when going to a new place,, I had it when I move out here. It will get better. Do feel free to tell them your concerns, they will...

I personally have no experience keeping things organized, the one thing I do do is keep a dorm fridge specifically for meds and beer. I think that if I were pressed to I would make an armoire to fit all my stuff in with shelves for pill bottles, space for rt stuff and cloth baskets for neb...

I got the Afflo through SSI and my student health insurance plan. It was covered because I have not gotten a new vest in over 5 years and the tech is new so mine was covered. It is a lot more comfortable for me because the old vests used air compression and oscillation which hurt my port...

I swam for years and am trying to get back into it. It was wonderful. Way more comfortable than other aerobics. The only problem I had was with APBA getting exacerbated because the warm & moist conditions in a pool house have a high risk of having mold, so you should exercise due diligence in...

Funny, I was just talking to the Afflo rep in St. Louis today about how they can reach us outside doctor's offices.

Sounds like some professional counseling would be a good idea, your CF center should have established relationships with clinicians whom they can refer you to. I would also recommend talking to your human resources representative about preparing for the impact CF might have on your ability to...

So I have noticed lately that when I get coughing spasms then I black out for a few seconds anyone else have this problem? B

One time they sent me home with a TPA vial of dilaudid.... had to report that one to the feds lol.

Keep in mind that they could be unrelated, a lot of us get obstruction, obstopation, or intersusseption (small intestine slipping into the large intestine) as a normal result of CF. So it could very well be the case that you just have to see a GI doc and get a regimen to keep your bowels moving...

Hey everybody, So I just moved to StLouis from Seattle for Grad School at Washington University. My doctors said I would be ok living out here, but so far the heat and humidity are doing everything in their power to send me to the hospital. I just started some more dietary supplements, but I...

Thanks for the advice you two, I will take it. B

Hey all, So I was wondering if anyone has had a family member who seals their pain meds from them? I am currently having that problem and I don't know what to do about it. My brother 38 is stealing my pain meds that I use for my chronic belly pain he has done this at least once before and I...

I had this keep happening to me and it turned out to be alot of scar tissue around my intestines. So if you have had abdominal surgery it might be good to ask about that. Best wishes, B.

It is the best place. I love it here. The hospitals are great too. We have a good healthcare infrastructure, UWMC and Seattle Children's are two of the best hospitals in the country where alot of research is being done. Plus the local hospitals in Tacoma, Everett, & Bellingham are also pretty good.