Recent content by Ryleigh

The biggest thing that helped me was that 'I Wanted to Live'!!!!!!!!! And to live as long as we can, and to live so we don't stand out too much from our friends (coughing etc..) we have to do all our treatments and meds! So that's what motivated me, although my brothers had a hard time accepting...

Why it's "good We use my 'health' as an excuse if we don't want to go out with friends or miss a day of school!!!!!!!

Welcome! This a great site because everyone else has problems like you do!!!!!

I feel my doctors listen to me, I guess the biggest thing is let them know you know your body and you listen to it! Learn all you can so you know what they are talking about and then always ask lots of questions and don't feel bad about taking their time, you pay them!!!!!

I think you are such an inspiration! Please write a book so you can share with all of us and uplift us all.

I wonder if enough people emailed Oprah and other 'big' people we would get a response! Great Idea, I would love to see CF getting attention in May!

I really can't remember how long I've been doing my own meds, I guess about 10, I really took over my own health at that age and always did my therapy, though I'm sure my parents still checked-up on me and made sure I was doing it right. Definately by 15 though. I did my own IV therapy around 18.

I always do my vest during my nebs so that helps cut time but still takes an hour morn. and night.<img src="i/expressions/face-icon-small-smile.gif" border="0">

I always do my vest during my nebs so that helps cut time but still takes an hour morn. and night.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Also remember that studies showed Tobi (and Pulmozyme I think) to be the cause of some hemoptysis, I haven't taken either of them in two years because of the major hemoptysis I was having.

you and your daughter are so pretty! Thanks for the picture!

It's late but Happy Birthday Melissa! And many more to celebrate! Congrats!

Teri, will you post before hand what time you'll start? I want to be there!

yeah, it's available every where, you can even get it at Costco! They do taste better than Ensure. I like choc.

I have a mini trampline, but a big one is much better! But yes it is very good exercise!