Recent content by seasprite

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    eflow

    No, the CFF has not approved the eFlow because it has not undergone proper clinical trials in people. That means that no one is really sure whether it will deliver the proper dose of medication to your lungs. Also, it's not clear that it can be truly sterilized the way you can disinfect...
  2. S

    eflow

    No, the CFF has not approved the eFlow because it has not undergone proper clinical trials in people. That means that no one is really sure whether it will deliver the proper dose of medication to your lungs. Also, it's not clear that it can be truly sterilized the way you can disinfect...
  3. S

    eflow

    No, the CFF has not approved the eFlow because it has not undergone proper clinical trials in people. That means that no one is really sure whether it will deliver the proper dose of medication to your lungs. Also, it's not clear that it can be truly sterilized the way you can disinfect...
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    Germ Gaurdian!

    I just talked to the people who make the Germ Guardian. What you need to know before you buy is that the equipment can't be used to sterilize anything that is wet. That means you'd still have to clean and dry your nebulizers first. Also, from my microbiology training I'm a little skeptical...
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    Germ Gaurdian!

    I just talked to the people who make the Germ Guardian. What you need to know before you buy is that the equipment can't be used to sterilize anything that is wet. That means you'd still have to clean and dry your nebulizers first. Also, from my microbiology training I'm a little skeptical...
  6. S

    Germ Gaurdian!

    I just talked to the people who make the Germ Guardian. What you need to know before you buy is that the equipment can't be used to sterilize anything that is wet. That means you'd still have to clean and dry your nebulizers first. Also, from my microbiology training I'm a little skeptical...
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    Out of H. Saline

    Hi Amy, Yep, I've started to dispense the saline directly using the measures on the side of the ampoules. I mix approximately 1.7 ml of 3% with 2.3 ml of 10%, which yields 4 ml of 7%, eliminating the need to get rid of the extra ml you get when you mix 2 ml of 3% with 3 ml of 10%. I've...
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    Pulmozyme

    Actually, there is at least one small study showing the effectiveness of Pulmozyme in children under the age of five (published in <u>Pediatric Pulmonology</u>, volume 32, pp 377-382, 2001.) Researchers from the University of Michigan treated patients ranging from 1 to 5 years old with either...
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    Glyconutrient update

    Here is the latest on glyconutrients from the scientists at the Berkeley Wellness Letter: <blockquote>Quote<br><hr>Q: Can so-called ?glyconutrients? boost immunity and cure illness, as claimed? A: There?s no convincing evidence that these supplements enhance the immune system, let alone fight...
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    gluconutrients

    Hi Leanne, I'm sorry this reply has been so long in coming, but I haven't been on the forum for a few weeks. You're right that the LD50 issue is a red herring. For one thing, yes, everything (even pure water) should have an LD50. For another, the people making this argument seem not even to...
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    Allan died this morning.

    Dear Jess, You and Allan have both shown incredible courage in facing a treacherous future with openness and grace. Please know how much we all admire you. Even with the enormity of the grief, you have enriched our lives. We will not forget. Thank you. Bambi
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    Allan died this morning.

    [No message]
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    Synagis Vaccination

    Hi Kelli, Yes, wood burning is a serious risk, even for people without cf. Here's what the American Lung Association says in its fact sheet: <blockquote>Quote<br><hr>The health effects of woodsmoke exposure include increased respiratory symptoms, increased hospital admissions for lower...
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    Older siblings bringing the "germs" home from school

    Hey guys, I know you are all just trying to suggest anything that might be helpful against colds. But the Food and Drug Administration considers colloidal silver to be unsafe and ineffective for anyone, much less little kids. Some people who have taken it have found that their skin has turned...
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    gene question...

    It would be the same gene pairing. But the symptoms could be very different, anyway. No one knows for sure why, but there are probably modifier genes that influence the expression of the CF mutation and that can differ from child to child in the same family Bambi, mom of Jordan, 16 w cf
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