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No, the CFF has not approved the eFlow because it has not undergone proper clinical trials in people. That means that no one is really sure whether it will deliver the proper dose of medication to your lungs. Also, it's not clear that it can be truly sterilized the way you can disinfect...

No, the CFF has not approved the eFlow because it has not undergone proper clinical trials in people. That means that no one is really sure whether it will deliver the proper dose of medication to your lungs. Also, it's not clear that it can be truly sterilized the way you can disinfect...

No, the CFF has not approved the eFlow because it has not undergone proper clinical trials in people. That means that no one is really sure whether it will deliver the proper dose of medication to your lungs. Also, it's not clear that it can be truly sterilized the way you can disinfect...

I just talked to the people who make the Germ Guardian. What you need to know before you buy is that the equipment can't be used to sterilize anything that is wet. That means you'd still have to clean and dry your nebulizers first. Also, from my microbiology training I'm a little skeptical...

I just talked to the people who make the Germ Guardian. What you need to know before you buy is that the equipment can't be used to sterilize anything that is wet. That means you'd still have to clean and dry your nebulizers first. Also, from my microbiology training I'm a little skeptical...

I just talked to the people who make the Germ Guardian. What you need to know before you buy is that the equipment can't be used to sterilize anything that is wet. That means you'd still have to clean and dry your nebulizers first. Also, from my microbiology training I'm a little skeptical...

Hi Amy, Yep, I've started to dispense the saline directly using the measures on the side of the ampoules. I mix approximately 1.7 ml of 3% with 2.3 ml of 10%, which yields 4 ml of 7%, eliminating the need to get rid of the extra ml you get when you mix 2 ml of 3% with 3 ml of 10%. I've...

Actually, there is at least one small study showing the effectiveness of Pulmozyme in children under the age of five (published in <u>Pediatric Pulmonology</u>, volume 32, pp 377-382, 2001.) Researchers from the University of Michigan treated patients ranging from 1 to 5 years old with either...

Here is the latest on glyconutrients from the scientists at the Berkeley Wellness Letter: <blockquote>Quote<br><hr>Q: Can so-called ?glyconutrients? boost immunity and cure illness, as claimed? A: There?s no convincing evidence that these supplements enhance the immune system, let alone fight...

Hi Leanne, I'm sorry this reply has been so long in coming, but I haven't been on the forum for a few weeks. You're right that the LD50 issue is a red herring. For one thing, yes, everything (even pure water) should have an LD50. For another, the people making this argument seem not even to...

Dear Jess, You and Allan have both shown incredible courage in facing a treacherous future with openness and grace. Please know how much we all admire you. Even with the enormity of the grief, you have enriched our lives. We will not forget. Thank you. Bambi

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Hi Kelli, Yes, wood burning is a serious risk, even for people without cf. Here's what the American Lung Association says in its fact sheet: <blockquote>Quote<br><hr>The health effects of woodsmoke exposure include increased respiratory symptoms, increased hospital admissions for lower...

Hey guys, I know you are all just trying to suggest anything that might be helpful against colds. But the Food and Drug Administration considers colloidal silver to be unsafe and ineffective for anyone, much less little kids. Some people who have taken it have found that their skin has turned...

It would be the same gene pairing. But the symptoms could be very different, anyway. No one knows for sure why, but there are probably modifier genes that influence the expression of the CF mutation and that can differ from child to child in the same family Bambi, mom of Jordan, 16 w cf

You're not alone. My 16-year-old son started blocking up as soon as we put him on milk when he was a baby, and still cannot take most dairy products. He would end up in the hospital with intestinal blockages every time we tried milk; we know other families where the kids don't block entirely...

Kathy's right. Check the strand labeled "gluconutrients" in the family section. Bambi, mom of Jordan, 16 w cf

To Anonymous posting at 6:32 AM, I wonder if you could ask your pulmonologist what his source of information is regarding the safety of gylconutrients? I certainly haven't been able to find anything demonstrating safety in the peer-reviewed medical literature. And Mannatech itself has...

<a target=new class=ftalternatingbarlinklarge href="http://www.ornl.gov/sci/techresources/Human_Genome/elsi/patents.shtml">http://www.ornl.gov/sci/techresources/Human_Genome/elsi/patents.shtml</a> Try this link. It covers genetics and patenting and was updated much more recently (September...

Hi Emilee, It's great that you are feeling so much better. I can totally relate to your trying the ambrotose if you felt you had nothing more to lose. But although your improvement could be due to the ambrotose, it could also reflect some other (coincidental) change in your life or even...