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Julie -- I've never encountered anyone who recommended the use of antibacterial soap for cleaning nebulizers. In fact, the Centers for Disease Control and Prevention have expressed concern about the use of antibacterial soaps even for handwashing (in most cases, alcohol-based hand sanitizers...

Dear Chris, Yes, you should <u>always</u> question professionals if you are unsure or uncomfortable about something they have recommended. I totally agree with you that a CT scan makes no sense at this time. Why would you expose your child to a substantial amount of radiation when he has no...

Hi Amy, We have the <u>Food Values of Portions Commonly Used</u>, which is a standard reference for nutritionists. All fruits and vegetables have a small amount of both fat and protein -- but not enough to require enzymzes. One medium banana has approximately 1.2 grams of protein and 0.5...

My son, who is almost 16, has had the Vest for four years. He uses it for 20-30 minutes in the morning and gets his Pulmozyme dose during that time. In the evening, though, we usually do standard percussion (CPT). If we're away from home, Jordan uses the Acapella, which works much like the...

Actually, it appears to be a myth that milk causes increases mucus production. There was a recent test of this notion in people with colds, and there was no difference in the amount of mucus made by those who drank milk than by those who did not. Also, the latest evidence is that people with...

Yes -- please see my posts to Amy, Allie's mom, under "Has anyone else had this happen?" If my son doesn't avoid all dairy products except yogurt and other cultured foods, he ends up in the hospital with an intestinal blockage. The available evidence indicates there is no effect of dairy...

Dear Amy, I cannot tell you how much I appreciate your kind words. Sometimes when you are parenting a teenager, you really wonder about your competence as a mom! Do let me know how the clinic visit goes. I'm hoping for the very best for you and Allie. Take care, Bambi

Hi Rodney, We had exactly the same problem when our son was about 2. What I would do was stop the physio when he started to cry, explain why it was important that we do it every day ("I know you don't like this, but..."), and then continue. Sometimes it would take a very long time to...

Dear Ahmed's mom, My heart goes out to you and your family for all you have had to go through this year. I know how awful it is to watch your child suffer when he is so little and vulnerable. All kids with cf have a hard time gaining weight when they have a lung infection. So it's really...

Dear Amy, The doctors didn't identify casein as the culprit. We took Jordan to three different CF centers and no one could figure out why he kept blocking up. They prescribed lots of laxatives, pugatives and tests, culminating in an upper GI series with barium that aggravated a partial...

Hi, We had similar problems with my son when he was little. Every six months or so for some three years he would have terrible abdominal pain and vomiting and would end up in the hospital with an intestinal blockage. The diagnosis was "distal intestinal obstruction syndrome" (DIOS), which...

Thanks to ladybug, Eva, Debbie, and the others who posted suggestions. We discussed this with our CF doctor last week and he believes my son's problem is due to a eustachian tube defect. That's the little channel that connects the nose and throat to the ears -- it's what makes it possible for...

We're hoping to compare notes with people w cf who run. My 15-year-old son runs cross-country and finds that if he tries to breathe through his nose when he's running, he immediately gets a wave of nausea. There is no problem as long as he breathes through his mouth. Also, when he gets up...