Recent content by zoeg

Hello! We are planning a trip to Disney next summer. I know it is very early, but I wanted to get any tips/advice on places you have stayed with your CFer. I have heard something that Disney allows people with CF to not wait in line- is this true for their whole group?! Any hotels that are...

Hello! We are planning a trip to Disney next summer. I know it is very early, but I wanted to get any tips/advice on places you have stayed with your CFer. I have heard something that Disney allows people with CF to not wait in line- is this true for their whole group?! Any hotels that are...

<P>Hello!  </P> <P>My daughter just turned 6 and at her last clinic they said since she is 6 we can consider adding Pulmozyme to her daily routine.  (Which right now is the vest twice a day, enzymes, and prilosec).  They said it can help with breathing, but Kate doesn't really struggle with that...

<P>Hello! </P> <P>My daughter just turned 6 and at her last clinic they said since she is 6 we can consider adding Pulmozyme to her daily routine. (Which right now is the vest twice a day, enzymes, and prilosec). They said it can help with breathing, but Kate doesn't really struggle with that at...

<P><BR>Hello! </P> <P>My daughter just turned 6 and at her last clinic they said since she is 6 we can consider adding Pulmozyme to her daily routine. (Which right now is the vest twice a day, enzymes, and prilosec). They said it can help with breathing, but Kate doesn't really struggle with...

Thanks for all the suggestions. I talked to the CF center today and they said she really does need them before lunch, not recess (I suspected this would be the case). The school seems very helpful so I did email them today and am waiting to hear back. I'm sure they will have a good system...

Thanks for all the suggestions. I talked to the CF center today and they said she really does need them before lunch, not recess (I suspected this would be the case). The school seems very helpful so I did email them today and am waiting to hear back. I'm sure they will have a good system...

Thanks for all the suggestions. I talked to the CF center today and they said she really does need them before lunch, not recess (I suspected this would be the case). The school seems very helpful so I did email them today and am waiting to hear back. I'm sure they will have a good system...

<P>Hello!  I have a new kindergartner (yikes!) this year.  The school nurse is great and we just met this summer to do a health plan for my daughter (we also have an IEP).  I just found out at kindergarten orientation tonight that they will go out to recess first for about 20 min. then straight...

<P>Hello! I have a new kindergartner (yikes!) this year. The school nurse is great and we just met this summer to do a health plan for my daughter (we also have an IEP). I just found out at kindergarten orientation tonight that they will go out to recess first for about 20 min. then straight to...

<P><BR>Hello! I have a new kindergartner (yikes!) this year. The school nurse is great and we just met this summer to do a health plan for my daughter (we also have an IEP). I just found out at kindergarten orientation tonight that they will go out to recess first for about 20 min. then straight...

<P>Hello,</P> <P> </P> <P>I have been getting more and more annoyed over the past year with CF services.  Overall I think they are great and very easy to deal with.  My one big problem is that my daughter's enzymes are left on our door despite the temps.  We live in Missouri so we have very hot...

<P>Hello,</P> <P></P> <P>I have been getting more and more annoyed over the past year with CF services. Overall I think they are great and very easy to deal with. My one big problem is that my daughter's enzymes are left on our door despite the temps. We live in Missouri so we have very hot...

<P><BR>Hello,</P> <P></P> <P>I have been getting more and more annoyed over the past year with CF services. Overall I think they are great and very easy to deal with. My one big problem is that my daughter's enzymes are left on our door despite the temps. We live in Missouri so we have very hot...

Thanks everyone. Been so stressed- this is our first time with TOBI and I am a nervous wreck- both because of the meds but more so the fact that my daughter cultured something. Can I ask what type of nebulizer you all use? We have a Phillips respironics that I am now worried about. I just...