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Beautifulsoul, A symptom of hearing loss I discovered was the sensation of the frustrated mother next door biffing me on the head for ignoring her! Really, I was just playing around the sidewalk in front of the houses on my block, the lady next door, had kids about the same age and I knew her...

Atrippet, I'm glad you are feeling better. Thanks for letting me know that you read my post. We CFers can go from hot to NOT, in no time, your absence was felt. It's a lesson for me to let people know why I drop off the radar. In fact I began to post this the day after you last posted and I...

Kenna, Thank you for sharing your experience with Marinol. Not long after Marinol (dronabinal) came out I discovered that doctors weren't exactly on board with writing prescriptions. My doctor at the time, wasn't writing prescriptions for anyone, as we're probably all of them short of doctors...

I'm constantly fighting for weight gain and I live in Colorado. Since my 2014 post on the use of Medical Marijuana (MM) my neighbor found herself fighting for the next ounce of body mass. Strangely enough I have been in the same fight for over a year now. My neighbor, Tina, has chronic...

BSJ1993, Not to yank your chain, but the two of you are also new to a long term commitment, in relative terms. This in itself is a major challenge when there's no real problems in health and financial security. Most couples have a full time job working through the distribution of...

As always, you have the ability to make me feel good. Everything comes down to attitude and you embody the best attitude possible. The things we find ourselves grateful for sometimes need some explaining. I can appreciate the win-win situation in a compatible donor in the one person who would...

Yeah, adrenal insufficiency and all other stress hormones can overwork the systems producing them with chronic illness. My experience with endocrinologists has been sketchy. Historically, endocrinologists have added years of education, rivaling the most educated of all doctors. I have a...

Given the opportunity to live in Denver or central Texas, my choice has been Denver since the early '70's. We're retired and to that end have a modest brick home in Denver City limits, that's paid for. (Please accept my apologies, it was my idiot generation that destroyed the housing market...

Manuka Honey, being dyslexic, the missing "n" wasn't even noticed by me. I'll bite, or whatever you do with honey, I guess swallowing it is the point. Just so I didn't sound like a complete idiot, I Googled "Manuka Honey". It's another very interesting and natural product. In general...

LunaFaith, I was surprised that UNC has such a large CF department at their medical school. A rather shy friend of mine asked me to join her for her appointment with a new primary care doctor, who it turns out he graduated from UNC's medical school. He had seen possibly hundreds of CF...

My knowledge of ports isn't first hand, rather the ward nurse at the infusion center I use. In Christy's opinion, she believes that the port has many advantages over IV or a PICC line or IV. She's been doing this for some 20 odd years and she was of the opinion that doctors don't often...

When you're hot you're hot! Your creation embodies a human being with a rare occurrence in nature, a gem of a life for sure. It's astonishing, how beautiful and original! I don't have Facebook, I keep resisting the urge to but I'm weakening. I'm out of touch with so many people, which I am...

Congratulations! This really is a right of passage and more or less one that we all get to experience. From what I can see, knowing friends with their own children, the ordeal from your side of the bargain, not mothering from a distance but leaving her in charge is an accomplishment, and wise...

According to the CFTR2 Database, 971 people have been put in the database that have 2789+5g. With another CF causing mutation you will have CF. In other words, it's a disease causing/contributing mutation. If you Google "CFTR2" and enter your mutation and be sure to press the search tab it...

Pulmosal is 7% salt, (sodium chloride) solution for nebulizing. I am using it as are many if not most CFers as part of an airway clearance protocol. There's a little controversy over it's use but it's rare occurrences when changing the pH in the lungs could give certain pathogens an improved...

I'm sorry you're caught up in a medical dilemma that is not that common. It's generally pretty extreme to be fighting onset of osteoporosis and impacted wisdom teeth are tormenting your kid with the pain. I could easily be wrong but I suspect that you have encountered some extreme caution with...

Momto2girls, My wife plays the flute. It's not the kind of music instrument that you find laying around unless you are interested in buying one. Always curious about how something works, I asked to have her show me how to make a tone. I don't have CF lungs and at the time I tried out her...

Amen to the average CFer or CFer's parents/caregiver being well above average with regard to knowledge about everything CF including the respective CFer's response to the treatment for her/his current issues. Doctors and nurses are often astonished by my data packet I attach to the forms you...

I wonder how many people pop a salivary stone into the mouth and bite it, never knowing that it was a stone. I've done this just enough to suspect that I just crushed a stone and remove it from my mouth rather than swallow it, assuming that it was a bit of food or something. Like most CFers...

My first problem was convincing my doctor that salivary stones exist. Hopefully you don't have that problem, but I have serious concerns about using steroids to break up a stone. You are certain that your doctor agrees with you/told you that you have salivary stone(s)? I'm kidding, but I...