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  1. H

    Involved in research studies?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hopefullmom</b></i> Thanks for letting me know. Maci is being evaluated for the epic study right now, I hope she can be involved. They have to get all her medical records first. I am a strong believer that if we don't do studys...
  2. H

    Involved in research studies?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hopefullmom</b></i> Thanks for letting me know. Maci is being evaluated for the epic study right now, I hope she can be involved. They have to get all her medical records first. I am a strong believer that if we don't do studys...
  3. H

    Involved in research studies?

    Thanks for letting me know. Maci is being evaluated for the epic study right now, I hope she can be involved. They have to get all her medical records first. I am a strong believer that if we don't do studys how will they get any further with meds for our children and everyone else. I...
  4. H

    Involved in research studies?

    Thanks for letting me know. Maci is being evaluated for the epic study right now, I hope she can be involved. They have to get all her medical records first. I am a strong believer that if we don't do studys how will they get any further with meds for our children and everyone else. I...
  5. H

    Involved in research studies?

    Thanks for letting me know. Maci is being evaluated for the epic study right now, I hope she can be involved. They have to get all her medical records first. I am a strong believer that if we don't do studys how will they get any further with meds for our children and everyone else. I...
  6. H

    Mutated form of CF

    Hi, I just saw your post and I know what you guys are going through sometimes it feels like your on a rollercoaster with all the ups and downs before getting diagnosed. My little girl went through the same thing she had a positive sweat test and a negative one, and we had no history of CF in...
  7. H

    Mutated form of CF

    Hi, I just saw your post and I know what you guys are going through sometimes it feels like your on a rollercoaster with all the ups and downs before getting diagnosed. My little girl went through the same thing she had a positive sweat test and a negative one, and we had no history of CF in...
  8. H

    Mutated form of CF

    Hi, I just saw your post and I know what you guys are going through sometimes it feels like your on a rollercoaster with all the ups and downs before getting diagnosed. My little girl went through the same thing she had a positive sweat test and a negative one, and we had no history of CF in...
  9. H

    Pictures of Yourself!

    Thanks, Kayleesgrandma, It is comforting to know that other people know what we go through. Talk to ya'll soon.
  10. H

    Pictures of Yourself!

    Thanks, Kayleesgrandma, It is comforting to know that other people know what we go through. Talk to ya'll soon.
  11. H

    Pictures of Yourself!

    Thanks, Kayleesgrandma, It is comforting to know that other people know what we go through. Talk to ya'll soon.
  12. H

    Pictures of Yourself!

    Hi this is Maci she is 4 yrs old, I am new to the site. She has CF, W182X and DF508. Christa
  13. H

    Pictures of Yourself!

    Hi this is Maci she is 4 yrs old, I am new to the site. She has CF, W182X and DF508. Christa
  14. H

    Pictures of Yourself!

    Hi this is Maci she is 4 yrs old, I am new to the site. She has CF, W182X and DF508. Christa
  15. H

    cf centers

    I would really love to talk to you about the ptc124 trial if you can e-mail me cmddrewry@yahoo.com. I have a little girl with the X mutaion. Christa
  16. H

    cf centers

    I would really love to talk to you about the ptc124 trial if you can e-mail me cmddrewry@yahoo.com. I have a little girl with the X mutaion. Christa
  17. H

    cf centers

    I would really love to talk to you about the ptc124 trial if you can e-mail me cmddrewry@yahoo.com. I have a little girl with the X mutaion. Christa
  18. H

    Photo

    Hi I donated and sent my little girls picture< I want ot make sure you got it .
  19. H

    Photo

    Hi I donated and sent my little girls picture< I want ot make sure you got it .
  20. H

    Photo

    Hi I donated and sent my little girls picture< I want ot make sure you got it .
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