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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i> We pimp Sean out for as many studies as he's invited to participate in. His first was when he was two. The study was to investigate the benefits of Pulmozyme on kids under six. Back then Pulmozyme was only...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i> We pimp Sean out for as many studies as he's invited to participate in. His first was when he was two. The study was to investigate the benefits of Pulmozyme on kids under six. Back then Pulmozyme was only...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i> We pimp Sean out for as many studies as he's invited to participate in. His first was when he was two. The study was to investigate the benefits of Pulmozyme on kids under six. Back then Pulmozyme was only...

Hi Leah, It is wonderful to hear how encouraged you are about the new drugs. I also think things are moving in the right direction. I try to look at the positive and think that we are all pulling for cures together as moms and dads. Have you heard any new on the ptc124 trials with the X...

Hi Leah, It is wonderful to hear how encouraged you are about the new drugs. I also think things are moving in the right direction. I try to look at the positive and think that we are all pulling for cures together as moms and dads. Have you heard any new on the ptc124 trials with the X...

Hi Leah, It is wonderful to hear how encouraged you are about the new drugs. I also think things are moving in the right direction. I try to look at the positive and think that we are all pulling for cures together as moms and dads. Have you heard any new on the ptc124 trials with the X...

Hello , I am trying to follow ptc124 as close as I can my little girl has one of the X mutations, I have talked with doctors in Alabama and Jeruselem, and the drug is very promising - they will soon start trials on ages 5 and up. Just thought I would let you know a little of what I have found...

Hello , I am trying to follow ptc124 as close as I can my little girl has one of the X mutations, I have talked with doctors in Alabama and Jeruselem, and the drug is very promising - they will soon start trials on ages 5 and up. Just thought I would let you know a little of what I have found...

Hello , I am trying to follow ptc124 as close as I can my little girl has one of the X mutations, I have talked with doctors in Alabama and Jeruselem, and the drug is very promising - they will soon start trials on ages 5 and up. Just thought I would let you know a little of what I have found...

Rebecca, Hi my daughter is also very pancreatic insufficient. What is MRSA, is that staph? My little girl weighs 28lbs, that is a good idea about going once a year to a research clinic. I am also currently waiting on a call from JOHN HOPKINS, I know they do alot of research. Maci is in...

Rebecca, Hi my daughter is also very pancreatic insufficient. What is MRSA, is that staph? My little girl weighs 28lbs, that is a good idea about going once a year to a research clinic. I am also currently waiting on a call from JOHN HOPKINS, I know they do alot of research. Maci is in...

Rebecca, Hi my daughter is also very pancreatic insufficient. What is MRSA, is that staph? My little girl weighs 28lbs, that is a good idea about going once a year to a research clinic. I am also currently waiting on a call from JOHN HOPKINS, I know they do alot of research. Maci is in...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Risa</b></i> I am Jewish and have delta F508 and G542X</end quote></div> Hello - Have you had a transplant, and what do you recommend we do to try and keep our children healthy? My husband has the gene W1282X, but we are not sure...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Risa</b></i> I am Jewish and have delta F508 and G542X</end quote></div> Hello - Have you had a transplant, and what do you recommend we do to try and keep our children healthy? My husband has the gene W1282X, but we are not sure...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Risa</b></i> I am Jewish and have delta F508 and G542X</end quote></div> Hello - Have you had a transplant, and what do you recommend we do to try and keep our children healthy? My husband has the gene W1282X, but we are not sure...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> Hopeful, My daughter is also 4 with the same mutations as your daughter. She gets the W1282X from me. How is your daughter doing healthwise, if you don't mind me asking.</end quote></div> My daughter has been...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> Hopeful, My daughter is also 4 with the same mutations as your daughter. She gets the W1282X from me. How is your daughter doing healthwise, if you don't mind me asking.</end quote></div> My daughter has been...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> Hopeful, My daughter is also 4 with the same mutations as your daughter. She gets the W1282X from me. How is your daughter doing healthwise, if you don't mind me asking.</end quote></div> My daughter has been...

This is my first time to post but mom little girl has Df508 and W1282X, but on the positive side of things they are doing alot of research on the X mutation right now. I feel real confident that things are going in the right direction with this new drug ptc124. It is in stage 2b trial and they...

This is my first time to post but mom little girl has Df508 and W1282X, but on the positive side of things they are doing alot of research on the X mutation right now. I feel real confident that things are going in the right direction with this new drug ptc124. It is in stage 2b trial and they...