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  1. P

    Sinus dryness from Oxygen

    My sinuses have always caused me great misery & pain. I have had at least 10 massive surgeries on all four sets of sinuses. Several to save my life and sight. The last in 2000 was an frontal obliteration that had complications. I now have a large painful bump on my forehead. It looks like I...
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    University of Utah CF clinic

    Just wanted to update a bit. I finally got so sick that I had to go back to the CF clinic. They admitted me directly from the clinic in to the hospital. A portion of my lung had collapsed & my PFT had fallin to only 23%. My weight was only 88 lbs. I was a walking skeleton! I liked all...
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    University of Utah CF clinic

    Just wanted to update a bit. I finally got so sick that I had to go back to the CF clinic. They admitted me directly from the clinic in to the hospital. A portion of my lung had collapsed & my PFT had fallin to only 23%. My weight was only 88 lbs. I was a walking skeleton! I liked all...
  4. P

    University of Utah CF clinic

    Just wanted to update a bit. I finally got so sick that I had to go back to the CF clinic. They admitted me directly from the clinic in to the hospital. A portion of my lung had collapsed & my PFT had fallin to only 23%. My weight was only 88 lbs. I was a walking skeleton! I liked all...
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    Cipro

    Does anyone have a problem with Psuedomonas showing sensitive to Cipro in the lab, but then it doesn't work in the body? I have had this problem for years. The CF doctors have often insisted I try Cipro, but it never works and delays treatment for weeks sometimes. I have even tried IV Cipro...
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    Cipro

    Does anyone have a problem with Psuedomonas showing sensitive to Cipro in the lab, but then it doesn't work in the body? I have had this problem for years. The CF doctors have often insisted I try Cipro, but it never works and delays treatment for weeks sometimes. I have even tried IV Cipro...
  7. P

    Cipro

    Does anyone have a problem with Psuedomonas showing sensitive to Cipro in the lab, but then it doesn't work in the body? I have had this problem for years. The CF doctors have often insisted I try Cipro, but it never works and delays treatment for weeks sometimes. I have even tried IV Cipro...
  8. P

    We are 6 months

    Your babies are adorable! Their smiles are infectious & brightened my day right up! You have a wonderful family & should be proud! Faith w/CF 33
  9. P

    We are 6 months

    Your babies are adorable! Their smiles are infectious & brightened my day right up! You have a wonderful family & should be proud! Faith w/CF 33
  10. P

    We are 6 months

    Your babies are adorable! Their smiles are infectious & brightened my day right up! You have a wonderful family & should be proud! Faith w/CF 33
  11. P

    diagnosis story

    I'll try to make a long story short. I wasn't diagnosed until age 12 because CF runs in my family. I was my mother's healthest child (6 kids) until age 2 when my nose started running & would not stop. I was a thin child, but so were by siblings. As long as I can remember I have had terrible...
  12. P

    diagnosis story

    I'll try to make a long story short. I wasn't diagnosed until age 12 because CF runs in my family. I was my mother's healthest child (6 kids) until age 2 when my nose started running & would not stop. I was a thin child, but so were by siblings. As long as I can remember I have had terrible...
  13. P

    diagnosis story

    I'll try to make a long story short. I wasn't diagnosed until age 12 because CF runs in my family. I was my mother's healthest child (6 kids) until age 2 when my nose started running & would not stop. I was a thin child, but so were by siblings. As long as I can remember I have had terrible...
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    University of Utah CF clinic

    Your information is appreciated <img src="i/expressions/face-icon-small-smile.gif" border="0"> I will make an appointment Monday. The person I had problems with was part of the hospital staff, not the CF clinic. I do not know if this person is still there. That is one reason I am so nervous...
  15. P

    University of Utah CF clinic

    Your information is appreciated <img src="i/expressions/face-icon-small-smile.gif" border="0"> I will make an appointment Monday. The person I had problems with was part of the hospital staff, not the CF clinic. I do not know if this person is still there. That is one reason I am so nervous...
  16. P

    University of Utah CF clinic

    Your information is appreciated <img src="i/expressions/face-icon-small-smile.gif" border="0"> I will make an appointment Monday. The person I had problems with was part of the hospital staff, not the CF clinic. I do not know if this person is still there. That is one reason I am so nervous...
  17. P

    Hello im just in need of some advice? Not sure if its silly or not

    I don't know if you have CF or not, but it sounds like you might have an untreated sinus infection. They will cause both pressure and pain. Doctors tend to under estimate sinus infections, esp when the frontal sinuses are involved (they cause pain and pressure on the forehead). Please make...
  18. P

    Hello im just in need of some advice? Not sure if its silly or not

    I don't know if you have CF or not, but it sounds like you might have an untreated sinus infection. They will cause both pressure and pain. Doctors tend to under estimate sinus infections, esp when the frontal sinuses are involved (they cause pain and pressure on the forehead). Please make...
  19. P

    Hello im just in need of some advice? Not sure if its silly or not

    I don't know if you have CF or not, but it sounds like you might have an untreated sinus infection. They will cause both pressure and pain. Doctors tend to under estimate sinus infections, esp when the frontal sinuses are involved (they cause pain and pressure on the forehead). Please make...
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    University of Utah CF clinic

    Sonia, Thanks for the help! It is the adult clinic I was asking about. I always liked the hospital staff & went to the clinic since I was 12. It was mainly the actions of one person that caused me to leave about 8 years ago. Even tho I love the local pulmo doctor, he is not a CF expert. My...
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