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Sonia, Thanks for the help! It is the adult clinic I was asking about. I always liked the hospital staff & went to the clinic since I was 12. It was mainly the actions of one person that caused me to leave about 8 years ago. Even tho I love the local pulmo doctor, he is not a CF expert. My...

Sonia, Thanks for the help! It is the adult clinic I was asking about. I always liked the hospital staff & went to the clinic since I was 12. It was mainly the actions of one person that caused me to leave about 8 years ago. Even tho I love the local pulmo doctor, he is not a CF expert. My...

Has anyone gone to the University of Utah CF clinic recently? I use to go, but stopped before Dr. Bruce Marshall left. He was a good doctor, but I had trouble with some of the hospital staff and decided to leave the clinic. I recently received a letter to return for annual testing, which I'm...

Has anyone gone to the University of Utah CF clinic recently? I use to go, but stopped before Dr. Bruce Marshall left. He was a good doctor, but I had trouble with some of the hospital staff and decided to leave the clinic. I recently received a letter to return for annual testing, which I'm...

Has anyone gone to the University of Utah CF clinic recently? I use to go, but stopped before Dr. Bruce Marshall left. He was a good doctor, but I had trouble with some of the hospital staff and decided to leave the clinic. I recently received a letter to return for annual testing, which I'm...

My brother who did NOT have CF got pseudumonas aeruginosa in the hospital when he was on a ventilator. He didn't have any lung problems, but had had heart surgery and a stroke. He was able to clear the PA with no problems. I was always glad I hadn't visited him at the hospital because I...

My brother who did NOT have CF got pseudumonas aeruginosa in the hospital when he was on a ventilator. He didn't have any lung problems, but had had heart surgery and a stroke. He was able to clear the PA with no problems. I was always glad I hadn't visited him at the hospital because I...

My brother who did NOT have CF got pseudumonas aeruginosa in the hospital when he was on a ventilator. He didn't have any lung problems, but had had heart surgery and a stroke. He was able to clear the PA with no problems. I was always glad I hadn't visited him at the hospital because I...

I have a temp between 99.7 to 100.7 almost every night, even when I'm on IV's. In the day my temp is usually 97.6 or lower. It gets higher when my infection is more active. What is wierd is my temp also suddenly drops very low around 93.3. I thought it was because I have low blood pressure &...

I have a temp between 99.7 to 100.7 almost every night, even when I'm on IV's. In the day my temp is usually 97.6 or lower. It gets higher when my infection is more active. What is wierd is my temp also suddenly drops very low around 93.3. I thought it was because I have low blood pressure &...

I have a temp between 99.7 to 100.7 almost every night, even when I'm on IV's. In the day my temp is usually 97.6 or lower. It gets higher when my infection is more active. What is wierd is my temp also suddenly drops very low around 93.3. I thought it was because I have low blood pressure &...

Thanks for your help, I'll try finding the natural enzymes Risa suggested. I go to my chiropracter regularly & my next door neighbor owns a health foods store. So hopefully getting them won't be a prob. My diet has always been low fat, high salt. But now I'm afraid to eat any fat. The...

Thanks for your help, I'll try finding the natural enzymes Risa suggested. I go to my chiropracter regularly & my next door neighbor owns a health foods store. So hopefully getting them won't be a prob. My diet has always been low fat, high salt. But now I'm afraid to eat any fat. The...

Thanks for your help, I'll try finding the natural enzymes Risa suggested. I go to my chiropracter regularly & my next door neighbor owns a health foods store. So hopefully getting them won't be a prob. My diet has always been low fat, high salt. But now I'm afraid to eat any fat. The...

Hi! My name is Faith. I know there is a lot of knowledgable CF on this website & please I'd like your advice. My Ultrase MT 20 enzymes have never been very effective, but now have completely stopped working. A GI doctor, who is not familiar with CF prescribed Panokase-16. He gave me the idea...

Hi! My name is Faith. I know there is a lot of knowledgable CF on this website & please I'd like your advice. My Ultrase MT 20 enzymes have never been very effective, but now have completely stopped working. A GI doctor, who is not familiar with CF prescribed Panokase-16. He gave me the idea...

Hi! My name is Faith. I know there is a lot of knowledgable CF on this website & please I'd like your advice. My Ultrase MT 20 enzymes have never been very effective, but now have completely stopped working. A GI doctor, who is not familiar with CF prescribed Panokase-16. He gave me the idea...

who are you Thanks for the topic. I have been wanting to introduce myself, but didn't quite know how. My name is Faith I'm a girl Age 33 Born & raised in Utah, USA Double F508 genes Height almost 5'7", weight almost 92lbs Lungs are my least affected area. FEV1 42% My sinuses have tried...

Hi! My name is Faith. I'm new to the Forum, but not to GoLytley and bowel obstructions. What has worked best for me is prunes. I have to eat a lot tho. My suggestion for gas is simethicone. It sells under brand names like Gas-X, but can be bought under store names for cheaper. I like...

Hi! My name is Faith. I'm new to the Forum, but not to GoLytley and bowel obstructions. What has worked best for me is prunes. I have to eat a lot tho. My suggestion for gas is simethicone. It sells under brand names like Gas-X, but can be bought under store names for cheaper. I like...