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Hi All, I am sad to be the bearer of bad news this morning but I wanted you to know this: There was very disappointing news regarding the Inspire clinical program for denufosol.The trial did not achieve its primary endpoint for lung function improvement. Press release: <a target=_blank...

Hi All, I am sad to be the bearer of bad news this morning but I wanted you to know this: There was very disappointing news regarding the Inspire clinical program for denufosol.The trial did not achieve its primary endpoint for lung function improvement. Press release: <a target=_blank...

Hi All, <br /> <br />I am sad to be the bearer of bad news this morning but I wanted you to know this: <br /> <br /> <br />There was very disappointing news regarding the Inspire clinical program for denufosol.The trial did not achieve its primary endpoint for lung function improvement. <br...

It does look like there was promise but research halted due to lack of efficacy per the CFF drug pipeline. :-( Maybe they'll keep working on it.

It does look like there was promise but research halted due to lack of efficacy per the CFF drug pipeline. :-( Maybe they'll keep working on it.

It does look like there was promise but research halted due to lack of efficacy per the CFF drug pipeline. :-( <br /> <br />Maybe they'll keep working on it.

Tell them you've invited one of your friends over who just happens to be a cop... :-) Good luck!

Tell them you've invited one of your friends over who just happens to be a cop... :-) Good luck!

Tell them you've invited one of your friends over who just happens to be a cop... :-) Good luck!

I am so surprised and bummed by this! I talked to her several times in the past about CF fundraising. Geez- I'd like to go to the memorial, too. Thx for posting this-

I am so surprised and bummed by this! I talked to her several times in the past about CF fundraising. Geez- I'd like to go to the memorial, too. Thx for posting this-

I am so surprised and bummed by this! I talked to her several times in the past about CF fundraising. Geez- I'd like to go to the memorial, too. Thx for posting this-

This info might help clarify (or might confuse even more). It's an info sheet for another "level" of CF called CFTR- related metabolic syndrome. Many general docs don't know about it. It was just brought to the forefront as a "classification" at the CF conference last year (2009). Talk with your...

This info might help clarify (or might confuse even more). It's an info sheet for another "level" of CF called CFTR- related metabolic syndrome. Many general docs don't know about it. It was just brought to the forefront as a "classification" at the CF conference last year (2009). Talk with your...

This info might help clarify (or might confuse even more). It's an info sheet for another "level" of CF called CFTR- related metabolic syndrome. Many general docs don't know about it. It was just brought to the forefront as a "classification" at the CF conference last year (2009). Talk with your...

"Is there any indication that VX770 will impact pancreatic sufficiency in addition to lung function?" I presented a talk at Dr. Orenstein's clinic a couple of weeks ago (he is the one who wrote THE BOOK on CF) and I asked this very question of him. Here's what he said: We don't really know...

"Is there any indication that VX770 will impact pancreatic sufficiency in addition to lung function?" I presented a talk at Dr. Orenstein's clinic a couple of weeks ago (he is the one who wrote THE BOOK on CF) and I asked this very question of him. Here's what he said: We don't really know...

"Is there any indication that VX770 will impact pancreatic sufficiency in addition to lung function?" <br /> <br />I presented a talk at Dr. Orenstein's clinic a couple of weeks ago (he is the one who wrote THE BOOK on CF) and I asked this very question of him. Here's what he said: <br /> <br...

Hi All, I was "inspired" to write a short little article (I also posted it as a blog). I hope you like it. Hugs, hope, and happy holidays! Lisa <b>Giving Our Children Gifts for a Lifetime: Using Tough Situations as Teachable Moments</b> by Lisa C. Greene A mom of a ten-year-old boy with...

Hi All, I was "inspired" to write a short little article (I also posted it as a blog). I hope you like it. Hugs, hope, and happy holidays! Lisa <b>Giving Our Children Gifts for a Lifetime: Using Tough Situations as Teachable Moments</b> by Lisa C. Greene A mom of a ten-year-old boy with...