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Hello all, This is just a very belated 'thank you' for all your comments and posts regarding my lung transplant back in the summer. I read them at the time, but adjusting back into 'normal' life took a while, and I was in a bit of a whirlwind getting used to everything back then. Today I had...

As part of a radio competition, callers were asked to get a celebrity to call in and talk to the dj or leave a message. A vote would take place and the winning celebrity would get 10k to give to charity and the caller would get 10k as well. Anyway, a certain gentleman, Graham Marsh, who had a...

A friend of mine, and a respected member of the cf community over here sadly passed away on Thursday. Mary posted here once or twice and her partner Alan did too. While they didnt post often, they read quite a bit. Mary was awaiting a double lung transplant and campaigned and promoted organ...

Well a few weeks ago I asked your opinons on skydiving post transplant. Having since had medical advice from transplant docs, I was told that in a year's time, all going well, I would be allowed to do a skydive <img src="i/expressions/face-icon-small-smile.gif" border="0"> Of course, there are...

Ok, so I've had this CFRD thing for about 6weeks now. And for maybe the last two weeks my sugars were very good. Then on Thurs I began to feel like I should be taking more creon (if you catch my drift) and my sugars have been slowly getting higher and higher. Over here we measure them...

Hi, I'm hoping to have my mickey button removed soon as since my transplant I no longer need feeds. The thing is I've been tube fed through my tummy since I was about 4years old, so my hole is about 15years old! I'm wondering for anyone who has had it removed is there much leakage, did you need...

Hi guys, Just writing to thank you all for the prayers, comments, thoughts and posts you left while I was in England! I got home this morning and am doing well! It was exactly a month ago today I got called and I'm looking forward to starting to live life again!!<img src=""> Hope everyone is...

I take insulin, on average once a day, for my diabetic tendincies. Anyway I find it easiest to give the injection on the right side of my tummy. At the hospital they always told me 'make sure you alternate the site of injection'. I used to move it around, even to my thighs, but the area in my...

Happy St. Paddy's day to everyone! x

Emily, I know you were at disney earlier in the year, and you said you got a wheelchair? Du know how much it cost to rent, would you recommend it, du have to book it in advance and (finally!) does it limit you to what youwant to do?

I'm sure this has been brought up before, but I've just started college and making all new friends and am wondering how I should bring up the fact I have cf...You see Im not at the wheelchair-o2 dependent stage but am also not at all at the stage where I can get away with hiding it either. I...

Hi I found out a few months back that I had had a cyst on my sinus when I was young, (as in <i>cystic</i>fibrosis) They told me that it was pretty rare for people with cf to actually get cysts like that, just wondering has anyone else ever had this?

Hi I know this was asked a while ago but I cant find it. Anybody know where she is,how she's doing, does she ever post here anymore?

<img src="i/expressions/present.gif" border="0"> Hey, its my birthday today!! Despite being on ivs, Im really happy! Just thought I'd share that with you all!! Yayy <img src="i/expressions/present.gif" border="0">

Ok I'm pretty certain that you're not supposed to drink while on ivs but does anyone know does that mean STRICTLY no alcohol at all? Also since the ivs stay in your system for a while after you finish your course has anyone been told whether you need to wait a few days before drinking once you...

Yes, I do. Its natural when you have lungs that are affected by cf because they're not usually as good as everyone elses. They usually have loads of 'gunk' in them and this can make you breathless because it restricts your breathing. ( hence the physiotherapy to try to keep it clear) x

diabetes Suddenly I have a huge appetite. I just ate a have tube of pringles (usually I manage 2 or 3) I have been having huge portions and seconds in the last few days and am feeling hungry a lot ( I can usually go a day eating nil). Anyway when I had my last infection, I was having these...

Hi all, just wondering if anyone had ever been on this iv before and what your experiences were with it. I was put on it 2weeks ago as the other ivs werent working..I'd never heard of it before and to be honest I don't really feel its working. Anyway any replies much appreciated...<img...

Hi Im wondering if anyone can give me any information on this. I have a lung function of 41% (MY PFTS) and read somewhere here that you can't ski on anything less then 50%. Now I'm wondering if I can try and find somewhere thats not so high up but when reading through these I'm wondering how...

Guys theres a trip to these old caves coming up in our frid group, but someone said I shouldnt go cas I could catch pneumonia. Is this because its real damp there or does anyone know?