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  1. K

    OT.... American Idol...

    This is so totally off topic... But who do you think will win Idol (and don't say David!) <img src="i/expressions/face-icon-small-smile.gif" border="0"> I think Archuletta, however that is spelled, I think he out-sang Cook tonight?!?! Anyone else have comments? I can't wait till tomorrow!!!!! Kelli
  2. K

    cfhusband.blogspot.com....Gwyneth is home

    Hey Everyone, I glanced here to see if anyone else let you know that baby Gywneth is now home with Nathan and Tricia. Check out their website at www.cfhusband.blogspot.com Yeah baby!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Kelli
  3. K

    GAS (prices I'm talking about)

    Totally off topic.... But where do you live and how much is gas? I live in OH and gas this morning was $3.35 or so, great for right now. Well after work when I went to fill up, it had jumped to $3.65. ACK. It was horrible. And I was actually mad at the pump for even offering to let me buy a car...
  4. K

    today's dr appt....

    OK, so I've felt like crap for 5 days now. First it was congestion in my head...then it moved to my chest. I decided to go to the local doctor to see if we could do anything before I have to go to clinic to have it checked....that would be mistake number one. The doctor doesn't even LOOK at my...
  5. K

    Living Will

    Not to be morbid here....but I feel like I need to set up a living will. Just for the sake there is so much 'drama' in my family, I want everything in place before I die so the decisions were made by ME. (plus that will probably be easier on my family in the long run). Does anyone know how to...
  6. K

    Tricia's lung transplant....

    Hey everyone, I've been checking this all night and just checked again. Tricia's surgery is complete, Nate will hopefully get to see her soon. Be sure to check out their blog. PRAISE GOD!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Kelli 30 f CF
  7. K

    New vest denied by insurance...what do I do??

    Hi everyone, So I got a call from Hill-Rom yesterday saying that my insurance denied my new vest (yes the one I am using, they took my old one back). So I asked what I can do about it and basically I can fight that claim. She said to purchase the vest is $6,000. Um, I really don't want to do...
  8. K

    SEVERE pain in right lung...

    Hey Everyone, Please help. I have horrible pain in my right upper lung (almost feels like a cramp). It takes my breath away,I can't even cough because it hurts so bad! I was sneezing really bad before bed last night and once it felt like I almost hyperextended when I inhailed (hard to explain)...
  9. K

    Just started HTS

    I just started HTS and don't know what to expect. I'm a little wheezy, it did make me cough but not a ton. I'm thinking this will be more effective in the a.m. In what order do I do HTS, albuterol & Pulmozyme? Also, they didn't send any new device for me to use. Do I use the Pari LC PLUS...
  10. K

    Vertigo....

    Ok, well I've been having dizzy spells, like horribly bad!!! I feel like I've just gotten off a merry-go-round that was going super fast, it's a weird sensation, almost like being drunk. But it only lasts for a few seconds. It scares me to drive! But it ususally happens when I'm in front of the...
  11. K

    Do medical professionals have the right to ask...

    This seems to happen all the time to me, anytime I go in for anything medical I show them my insurance and Medicare card. SO many people have asked me "What is that for or Why do you have that?" (except for CF clinic, they know, obviously). Do they have the right to ask that? For example at...
  12. K

    Bumps in my nose...

    Ok, today I have bumps in my left nostril. Gross I know. They don't hurt, I just feel stuffy on that side. I swabbed it with peroxide and then put Vicks up there. They look like little blisters... of course I can't get a great look at it. But does anyone know what this might be? I googled it...
  13. K

    BCMH..anyone familiar?

    I am trying to get on BCMH so I can drop Medicare. Is anyone familiar with BCMH I know they will cover CF even into adulthood but was wondering if any of you have any personal experience to let me know what to expect. I don't know exactly 'what' they cover. Should I drop my Medicare...
  14. K

    Which insurance is primary & how do I straighten this out

    Ok, Here we go again! I have insurance (Anthem Blue Cross Blue Shield) from my husband since he works full time and buys this insurance for us.... Then on the other hand... I have Medicare. So my huge problem is that pharmacies are calling me asking or telling me that one is primary, etc etc...
  15. K

    Should I continue to work?????

    Hey everyone, My husband and I talked tonight that he is going to hire someone to help with his work load, he is super crazy busy, he works 7 days a week (own our own company), we don't see eachother a whole lot, (other than we work together, he is pretty much busy all the time) etc. So I...
  16. K

    How do you feel when SOME ONE else tells others you have CF?

    OK, well where I work (with my husband) we use a temp agency for our employees so we have basically 1 contact person there. She is new, the other lady left not long ago. Well she's knows I've been away from work due to being sick but that was all she knew. Today I e-mailed my husband (from...
  17. K

    My PFT went up...finally

    Hey Everyone, Ok, I went back to clinic today after being there a week ago. My PFT started at 40, went to 48, dropped to 43 then today is was......55! Yes, thank you God. He answered my prayers (actually I was more like begging). I was SO EXCITED for today! I was scared to death but after PFT...
  18. K

    On IV's but PFT's falling

    Hi Everyone, I've been on home IV's for 2 weeks. I have not missed a single dose, I have been doing my vest, etc. So my beginning PFT (fev1) was 40, after week 1 of IV's it went to 48, after week 2 of IV's it's down to 45. So after working my butt off to get myself better, I have nothing to...
  19. K

    Getting Sick From Having Port Accessed?

    OK, well went to clinic yesterday and they want to start meds. So I got my port accessed (in my chest) and that went just fine. Well I'm still waiting for my meds to show up (I'm doing meds at home.....so I haven't started anything) and I'm so sick. I did this last time. I have fever (100.9)...
  20. K

    ALBUTEROL.....changes

    Hey Everyone, I went to clinic yesterday (after not being there in ages!!) and the dr. asked if I needed refils. So I told him I needed an Albuterol inhailer script. Well he goes on to tell me that everything is reformulated due to not putting CFC's (I think) into our enviornment. So now...
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