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Hey folks, I am going to the gyno tomorrow. Yes I get to wear the paper-nipple-cutter (aka...white 'sheet' made of paper to keep you warm and private...had to be invented by a guy). And I get to be up close and personal to freezing cold 'duck lips' (spectulum...once again, probably made by a...

Hello Everyone, Just wanted to say a big HAPPY BIRTHDAY to my niece Olivia. She is 8 today and she also has CF. She is strong, smart, healthy and happy to be an 8 year old now. If you'd like to send her a b-day wish, I'd like to print them out for her. <img...

There are so many things we NEED on a daily basis. What could you live without but wouldn't want to. Here are a few of mine... Coffee candles hand lotion chapstick internet Why don't you tell us what you wouldn't want to live without? Might make us laugh. Remember, these are things we don't...

Hello all, I am flying to FL with my niece. We both have CF. What precautions do you take when flying with another CF'er? I don't want to be right on top of her and breathing on each other & I don't want to pass anything along to her. Are masks good enough? We can both wear one. I just don't...

Hey Everyone, I am prone to bleeding, it comes and goes as it pleases. Well I re-started Pulmozyme and BAM! I'm bleeding again. Does this happen to others? It seems like Pulmo. aggrivates something in my chest. Since I'm prone to bleeding it's not scary but should I back off and wait awhile...

Hello, I was just reading a post about grandparents and it got me thinking. My great grandma is in a nursing home (assisted livng but basically same thing). I know people aren't great about handwashing etc., and when one person gets sick there is just goes around and around. (Like a dorm). But...

Ok, this is a weird subject, I'll admit it. When I exhale or cough, I feel like my 'exhale air' has a weird taste/smell to it. I ask others if I have bad breath because that is what it seems like. The people I ask say "No" but I just 'feel' different. Is this a sign of infection? Do any of...

Hello, I saw on our news last night that you can use goodsearch.com to find stuff on the internet (I'm not great w/computer stuff). But you go on the website and you can put what charity you the money to go for. Everytime you click on that link (set it up as a default on your computer) a penny...

Hello, I have recieved some private messages (thank you to those of you who sent them). Well after I read them I cannot find them again. Can you tell me where to find them on here. My home computer has been acting up and isn't working 1/2 the time. And if I click to read a message, after I get...

Hello, I just called the (CF) hospital and checked to see if I could get a handicapped sticker (since it has been -30 degrees here). When I talked to the social worker, she said that the dr's don't like to give out handicapped stickers. They like the CF'er to get exercise and walk to thru the...

I was just curious to see, when you were diagnosed, did they tell you how old they 'predicted' you to be? I was diagnosed at 10 and they said I'd live to be 18. Well, well, well, I'm 29 now and going strong. I want to strangle the person who tried to tell me when to die. No one has that kind...

Hi, I was wondering how you post a photo of yourself (or other CF'er) on here. Thanks, Kelli

Hello everyone, I have a question as to what hypertonic saline is. It is on my Physical Therapy report that I am currently on this med, however, I have no idea what it is. I'm sure I don't take it (I think I would know this) and the PT girl, is a complete MORON! It also says I take Fortaz, I...

Hello Everyone, I got a call from my brother-in-law this a.m. at 7 that I needed to go over and get their kids (3 of them) because my sister was going into labor. So I race over (she lives 2 streets away) and changed the kids clothes, got them ready. So I take them back to my house, call my mom...

Hello, I am 29 and my FEV1 is 59%. I am (a week) late for my period. What IF I am pregnant? What are the odds that I will be ok to deliver? For any of you who have kids, what was your lung function like before, during, after the baby? I'm freaking out! Any advice would be appreciated. ~Kelli

Hello everyone, There may be posts on this already but I wanted to know how you guys feel and how how handle things when you are not satisfied with your clinic protocals,etc. Last time I went to clinic, I was less than trilled! I don't have cepacia but I was put on the cepacia hallway due to a...

My PFT (FEV1) has been at 39% and steadily going down. I started to work out at Curves (I hope I can put that on here). Well after a month or so I had another appointment at the hospital. My PFT went from 39% to 59%. I was so happy that finally something that I did had a major impact on my...