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  1. K

    Annual visits are utterly exhausting

    We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting. We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been...
  2. K

    Annual visits are utterly exhausting

    We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting. We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been...
  3. K

    Annual visits are utterly exhausting

    We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting. We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been...
  4. K

    Annual visits are utterly exhausting

    We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting. We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have been...
  5. K

    Annual visits are utterly exhausting

    We are really fortunate to live close, so we don't have a "long" day so much as it is just mentally and emotionally exhausting. <br /> <br />We were diagnosed the day after school started, and so the annual visits have been in late August. Thus the excitement and joy of a new school year have...
  6. K

    Seriouslyn

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i> Why do they just assume we have no idea what we are doing? Sharon, mom of Sophia, 8 and Jack, 6 both with cf, Grant, 1 without cf</end quote></div> Yeah - not only do the moms/dads know what we are doing, but so...
  7. K

    Seriouslyn

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i> Why do they just assume we have no idea what we are doing? Sharon, mom of Sophia, 8 and Jack, 6 both with cf, Grant, 1 without cf</end quote></div> Yeah - not only do the moms/dads know what we are doing, but so...
  8. K

    Seriouslyn

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i> Why do they just assume we have no idea what we are doing? Sharon, mom of Sophia, 8 and Jack, 6 both with cf, Grant, 1 without cf</end quote></div> Yeah - not only do the moms/dads know what we are doing, but so...
  9. K

    Seriouslyn

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i> Why do they just assume we have no idea what we are doing? Sharon, mom of Sophia, 8 and Jack, 6 both with cf, Grant, 1 without cf</end quote> Yeah - not only do the moms/dads know what we are doing, but so do...
  10. K

    Seriouslyn

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i> <br /> <br />Why do they just assume we have no idea what we are doing? <br /> <br />Sharon, mom of Sophia, 8 and Jack, 6 both with cf, Grant, 1 without cf</end quote> <br /> <br />Yeah - not only do the moms/dads...
  11. K

    3 in 1...Gallstones, pen pals and telling your child the outcome

    I can offer one thought about the gallstone issue - my daughter is on Ursodiol because she had high liver enzymes upon diagnosis. Research that I have done on Urso is that it's main use in the non-cf world is to dissolve cholesterol gallstones. "Ursodiol desaturates bile, solubilizing...
  12. K

    3 in 1...Gallstones, pen pals and telling your child the outcome

    I can offer one thought about the gallstone issue - my daughter is on Ursodiol because she had high liver enzymes upon diagnosis. Research that I have done on Urso is that it's main use in the non-cf world is to dissolve cholesterol gallstones. "Ursodiol desaturates bile, solubilizing...
  13. K

    3 in 1...Gallstones, pen pals and telling your child the outcome

    I can offer one thought about the gallstone issue - my daughter is on Ursodiol because she had high liver enzymes upon diagnosis. Research that I have done on Urso is that it's main use in the non-cf world is to dissolve cholesterol gallstones. "Ursodiol desaturates bile, solubilizing...
  14. K

    3 in 1...Gallstones, pen pals and telling your child the outcome

    I can offer one thought about the gallstone issue - my daughter is on Ursodiol because she had high liver enzymes upon diagnosis. Research that I have done on Urso is that it's main use in the non-cf world is to dissolve cholesterol gallstones. "Ursodiol desaturates bile, solubilizing...
  15. K

    3 in 1...Gallstones, pen pals and telling your child the outcome

    I can offer one thought about the gallstone issue - my daughter is on Ursodiol because she had high liver enzymes upon diagnosis. Research that I have done on Urso is that it's main use in the non-cf world is to dissolve cholesterol gallstones. "Ursodiol desaturates bile, solubilizing...
  16. K

    Emily has stopped eating/ Miralax questions

    Our daughter has had ongoing horrible stomach problems so last March we finally had a gastrografin enema done. No structural problems, just a lot of stool backed up and the procedure itself pretty much took care of that. We are now on a "maintenance" dose of Miralax. We have adjusted the...
  17. K

    Emily has stopped eating/ Miralax questions

    Our daughter has had ongoing horrible stomach problems so last March we finally had a gastrografin enema done. No structural problems, just a lot of stool backed up and the procedure itself pretty much took care of that. We are now on a "maintenance" dose of Miralax. We have adjusted the...
  18. K

    Emily has stopped eating/ Miralax questions

    Our daughter has had ongoing horrible stomach problems so last March we finally had a gastrografin enema done. No structural problems, just a lot of stool backed up and the procedure itself pretty much took care of that. We are now on a "maintenance" dose of Miralax. We have adjusted the...
  19. K

    Emily has stopped eating/ Miralax questions

    Our daughter has had ongoing horrible stomach problems so last March we finally had a gastrografin enema done. No structural problems, just a lot of stool backed up and the procedure itself pretty much took care of that. We are now on a "maintenance" dose of Miralax. We have adjusted the...
  20. K

    Emily has stopped eating/ Miralax questions

    Our daughter has had ongoing horrible stomach problems so last March we finally had a gastrografin enema done. No structural problems, just a lot of stool backed up and the procedure itself pretty much took care of that. <br /> <br />We are now on a "maintenance" dose of Miralax. We have...
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