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Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.

Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.

Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.

Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.

Awww man - I am so sorry to hear this! I hope they figure it all out and get her to where she feels better. Pronto. You guys need a longer and better break from all of this nonsense. I hate CF. Many Hugs and Prayers being sent your way.

Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...

Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...

Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...

Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...

Our daughter presented only with GI issues but her growth chart percentiles were <i>falling</i>, not maintaining at a steady (albeit low) percentile. There is a difference. Also, she was constantly hungry and her BM's were bulky and greasy (sorry TMI) and lots of tummy distension, pain. All...

This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.

This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.

This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.

This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.

This is such sad news but now he is free from pain. I am glad I saved a couple of bits of his incredible writing, wish I'd saved more. Peace Q.

Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...

Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...

Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...

Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. Of all the meds she is on, the Urso gave us the most problem because of the need for...

Non-formulary Drug Hey Liza - Katy took 3 ml of 50 mg/ml Urso so I think that's the same dose as your DS but its early. Over the summer the doc switched her to a 250 mg tablet. She is right at 50 pounds. <br /> <br />Of all the meds she is on, the Urso gave us the most problem because of the...