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Weight gain wise .... is it better to have more fat or protein...or is it just the calories that affects the weight gain? We are adding an extra 80 calories to his snack time and he is very tired of pecans and i am sure string cheese is going to get tiresome also!!! blessings, missa

We are starting the process and just wanted to know if anyone found items that worked well in our high calorie/fat world. Both boys definitely have issues with gaining weight, so I don't want to jeopardize their health in this.. blessings, missa

Okay, so in Arizona, we are pretty used to the dryness. But we have some kind of weather system coming in that is bringing moisture. Can the moisture make the noses run and then of course give them a little congested cough because of the post nasal drip??? blessings to all, missa

Is there any way I can change my e-mail address in my profile without having to create a new username???? blessings, missa

i found a great deal on pari lc nebs on ebay. They have quite a few and they are advertised as 7.95 but make an offer. I offered $6 and they took it. I wonder if they would take even a lower offer. Shipping is $4.50 for the first neb and then 75 cents with each additional one. blessings, missa

i found a great deal on pari lc nebs on ebay. They have quite a few and they are advertised as 7.95 but make an offer. I offered $6 and they took it. I wonder if they would take even a lower offer. Shipping is $4.50 for the first neb and then 75 cents with each additional one. blessings, missa

So the docs are saying Ethan Sky's PFTs are concerning, i believe under 80. Being only 5 years old, i don't even know if he comprehends how to do them correctly. But the doc is saying a hospitalization is needed if his PFTs don't go up tomorrow. I just don't know if it is right to do a...

I am going crazy with all the different purifiers out there. So many brands, so many types. I am interested in the UV, as it says it kills bacterias and viruses. But I thought UV is not good for us, as is the reason we have UV protection on our sunglasses???? I am liking the idea of a...

I am going crazy with all the different purifiers out there. So many brands, so many types. I am interested in the UV, as it says it kills bacterias and viruses. But I thought UV is not good for us, as is the reason we have UV protection on our sunglasses???? I am liking the idea of a...

I am going crazy with all the different purifiers out there. So many brands, so many types. I am interested in the UV, as it says it kills bacterias and viruses. But I thought UV is not good for us, as is the reason we have UV protection on our sunglasses???? I am liking the idea of a...

So Caleb choked on peanuts on Thursday...he coughed it out and threw up. He now has a congested cough. I am wondering if the peanut thing caused inflammation and if that is why he is congested. I am giving him albuterol, as he is wheezing too and ibuprofen in hopes it will decrease the...

Okay, so now Caleb has cultured Pseudo. I kinda expected it because his breath was smelling weird and he did have a little cough every once in a great while. Now, after being on Tobi and Cipro for about a week, he has got a pretty good cough going on. My hope, is that this means the pseudo is...

Well, we just found out that Ethan Sky's vest should be cycling for it to have the best effect. We have had it for 6 months now and it has been at 12 hz. What are the cycles you use???? Blessings, Missa

I have been off and on using a humidifier for the dry weather. But I freak out thinking about the bacterial issues, so I have to wash it like crazy after each use and it has just become a pain. I am wondering if I am worrying too much. I am wondering if there are other options for the stuffy...

We just went to clinic yesterday and our nutritionist seems very excited about this specific probiotic. She said at the CF conference they gave a class on probiotics. They are saying that they are finding that lactobacillis gg is the specific probiotic that seems to really be making a...

We have to get blood work done on Ethan and I have no idea how to prepare him. Do you just take them to the lab and tell them right before they do the poke? Do you tell hours, days, weeks before the poke? Please help....I don't want to traumatize him anymore than he already has been...

I found a great recipe for whole wheat bread made with yogurt (in the bread machine). It called for non-fat yogurt and I instead put in the greek yogurt with 18g fat/cup. The kids love it. It is great for sandwiches and toast. We also discovered a great popcicle recipe.... coconut milk and...

So we went to soccer practice on Saturday and it sure did look like one of Ethan's teammates was sick and of course I cringed when I saw this. Well today, Ethan is all stuffed up and Caleb's nose is running now too. They could very well not have gotten sick from this soccer kid, but also it is...

Has anyone found out how hot these "sterilizers" get????? I know there is a certain temp you need to get to to kill off pseudo etc. How many nebs can you fit in each one??? Can you put the pari masks, bubble masks and the little blue "things" in them ???? To those with 2 CFers how do clean...

Does anyone do anything for your young ones before a throat culture? to make sure that they are not just getting whatever is hanging around in their mouths. I was thinking of having Ethan take a drink of water and then let up a good cough before the culture as he still doesn't understand the...