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The CF clinic gave Ethan Sky a Pari LC star instead of a Pari LC plus. Does anyone know the difference??? Is there one that is better??? Also how does everybody clean there nebs and store them throughout the day to keep them as sterile as possible? Thanks, Missa

Does anybody have some info or opinions on doing Infant PFTs. They want to do it on my almost 1 year old. I am a little nervous about the chloral hydrate and just the process of getting him to exhale and stuff. Thanks, Missa

I don't know if this is a stupid question.... I don't want to throw these things away as they seem like they would be recyclable...but I don't know, maybe because of the germ issue, its not allowed.... Any thoughts??? Thanks, Missa

Hi guys, I am getting rid of a couple cases of Nutren Jr with fiber. We tried it and decided we wanted to make our ouwn supplements. I just ask that you pay shipping. I am not sure what that cost will be, but if you are interested, I will check it out. I do live in Phoenix, so if you are in...

I know I should be posting on the nutrition section, but if you are like me, I only have time to look at one forum, so I hope to get some parents input. We just started Ethan on Nutren Jr, which he seems to be doing good on. My concern, is the sugar content. I would like to find something low...

Has anyone heard about these products?? I found them at SPROUTS. They are rasberry flavored little "candies" that provide probiotics. They are individually packaged, which I would assume keeps them fresh longer (especially when placed in the freezer). They also are made with Xylitol, which I...

When did the docs start mentioning the possibility of a feeding tube. What perentile were your kids in....what kind of health were they at???? They are talking about it for Ethan Sky and I am not sure we are at that point. How do you do enzymes when they are feeding all through the night...

We are very close to having our second child and I am having trouble getting everything taken care of for getting him tested for CF as soon as possible. A question I have not been able to get answered...... I have read on the forum that they test the cord blood...my medical knowledge tells me...

When I was pregnant with Ethan Sky my insurance company told me about life insurance I could get on him even before he was born. We have another child on the way in September and am wondering if this is something that i should do, knowing the possibilities of it having CF. Has anyone done...

1. do they screen for cf in New Mexico? 2. when they screen for cf, how many mutations are they screening for and is it different in each state? Thanks, Missa

Ethan Sky seems to have a big change in poops when we change elevations. He goes from 2 poops a day to having up to 4 poops and they are sometimes greasy. Does anybody else see this change??? Any suggestions??? We travel from 2500 ft to 6000 ft every 3 months, so I would like to find...

Does anyone use any natural ways to decrease stomach acid. Ethan Sky is only 2 and I really don't want to start him on zantac yet....Just wondering if there is anything out there that is a natural alternative???

My understanding is that ethan sky can never be without insurance in order to keep him insured.. any suggestions on steps to take to make sure this happens when the job switch happens? Also anyone know about cf doctors in New Mexico...we will be in silver city (2 hrs NW of Las Cruces)?

Ethan is 2 years old and is doing great, but I was wondering if any of your kids are on a multi-vitamin in addition to the vitamax. We are currently in between doctors, because of the wonderful world of insurance, so I can't ask them. Thanks, Missa

Does anyone see a chiropractor on a regular basis for their CF symptoms. I just took Ethan Sky to a Light Force chiropractor and call me crazy but I am seeing an improvement in his digestive symptoms. The light force, basically means he does no popping, just light manipulating. The...

We live in phoenix, arizona and the weather is getting quite yucky....115 with 11% humidity. I am very hesitant to give him pedialyte or any of the generics because of the added sugar. Ethan Sky's nutritionist wasn't very helpful in giving any alternates. I have seen products like smart water...

my 15 month old is yet to have any lung symptoms. but i want to protect him to the most highest degree. i have already received valuable info in this forum that the ionic breeze is not good for his lungs. now i would like to know if humidifiers or vaporizers are helpful, harmful, is one...

My son is 15 months old. On sputum test #1 he came up positive for staph, #2 clean, #3 positive for pseumdomonas a & staph, #4 positive for klebsiella pneumoniae only. He presents with no lung symptoms, has never been on antibiotics and is just on enzymes. My questions are....how accurate do...