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<b>*warning, long post* sorry for that...</b> First of all, thanks very much for the message to my previous post. They were very sweet and I know they have helped me. So i made it home yesterday evening from my 3 days of tests. On Tuesday i saw my doctor, but only for a minute or so. He asked...

Tomorrow i will have my clinic visit and will have a lovely little holiday in the hotel again. And with that i really mean i will be 'admitted' to a hotel. I have my tests schedualed till thursday so i will stay in the hotel opposite the hospital for 2 nights. My sis lives in the city but will...

<b>I will copy and post what i wrote on Risa's txbuddies.. It was a tough clinic visit.. Lots to think about in the coming weeks.. My tx doctor is going to talk with the lungdocs from the hospital, to see if they can find maybe anything more that is going on, or maybe what they can do for me and...

Hi I can maybe help you a little with you question about transplant. With CF they usually transplant both lungs, so i doubt your doctor would want to transplant only your right lung. This is because when you would transplant the right lung, that new lung could get infected very quickly with...

So i have a question I've had a lungtx.. but am still in need of puffers and am on nebs now too since one week ago. My FEV1 without anything is about 1.20, with my puffer (Serevent, that a longworking form of Salbutamol) it goes upto about 1.50 at most. Now with my nebs (Ipramol, a...

I thought i'd give an update on how things are going overhere. I'll give a new update about Marie too, in 'her' thread. I have been very tired the past week and my sinusinfection didn't seem to clear while on Cipro (as well as mono i think that is still acting up). My mom had an appointment...

Sort of said everything in the title... I'm watching tv and just passed CNN where it is breaking news. Apparently a car has exploded.. Rami, hope you can check in here to say you are ok!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dailymail.co.uk/pages/live/articles/news/news.html?in_article_id=481423&in_page_id=1770&ico=Homepage&icl=TabModule&icc=picbox&ct=5">http://www.dailymail.co.uk/pag...Module&icc=picbox&ct=5</a>

Hey all i haven't been writing much the past few weeks, but i have been checking the boards and reading up on mostly everything Just thought i'd let you all know what is going on overhere. Don't know if i already told you but my pft's were the same as in june when i was in clinic. 1.30 and...

One year ago today, well yesterday our time now as it's past 12 and i'm just in bed after a busy day :-), i got my call. Saying they possibly had new lungs for me! It was 4.45 in the morning. The ambulance came to pick me up and we were at the hospital by 7.30. I went into theatre at 13.00 and...

Last week there was good news. Yesterday, when i was at Centerparcs for a day where my good friend from England is now with her family (she has CF too) i received a text message from Marie. She had bad news. The infection has gotten worse again... She can't see anything again with her left...

Please can you all cross you fingers, or pray for Marie? I like to believe it will help, if you all sent her positive thoughts This weekend she woke up with a swollen, red eye and she couldn't see with it.. The next day she went to the ER, was sent to another bigger hospital and from there to...

I wanted to post a picture of my scar in a post in the transplant section.. Only for a day or two.. I'm going to take it off and when it is off you can ask me for the adress to my photobucket.. So i posted it but it was soo big! How do i resize it? How do i get it a lot smaller? Thank you to...

I heard this on the news this morning and was wondering if that is close to Rami? I just tried to look for a topic online and saw that there were injuries but luckily noone died.. Rami, i hope you are still ok overthere! It must be so scary sometimes

I was just wondering something. I read a topic about pred today and someone said there won't be a problem about eating again now that the child had to start pred. I know about that side effect but my question is, does everyone have this??? Cause really i don't. Have been on pred since my tx...

Hey all! It's my birthday! Well, not yet in the US, but overhere it is <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's 0.22am now, March 29! And i'm 23 now! Who would have thought?! I'm so happy! My mom and dad just got up to my room and sang happy birthday for me! <img...

I've had my sinus surgery yesterday, finally. Ofcourse i wasn't really looking forward to it but was happy it was finally going to happen. Sometimes it's a oneday thing but i was admitted to the hospital the day before and had to stay for 2 nights. So i was admitted on Thursday. And went to the...

Things are still the same really.. but i'm home again now. My doctor had a few tests back today. The bloodtests, that showed EBV for the first time. Needs to be below 2 like it has been till now but was 9 now.. So i have to go back every 2 weeks now to let that get checked. I didn't have EBV...

So i did my pfts at about 5 this afternoon. And they were down <img src="i/expressions/face-icon-small-sad.gif" border="0"> I called my transplant clinic right away and luckely i could still speak to someone from the team. She said that i had to go to my gp and let her listen to my lungs...

Hi all I've been away to London England for 5 days. Just as we were going on the train to leave again and go home my phone rang. It was Marie, she said she was called for her transplant!!! This was yesterday feb 1 at about noon. Her sister called me again at about 10 last night to tell that...