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Emily (Angel) got her transplant
Hi all, i know Emily didn't post much overhere, but she did post a few times. She had her transplant Thursday januari 4th, untill now she's doing well. Emily has her own blog and started a transplant awareness campaign with her friend (also with CF) Emma. <a target=_blank... -
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Question for all
I've got a question for all of you. A CF doctor from the childrens clinic i used to go to called me about 2 months ago. And said that at their university of medicine they are having a special topics week(s) and that it's about CF. He was going to give one lecture and asked if i wanted to come... -
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Aspergillus, ABPA
Hi all, i have a questions for a friend of mine. She has two girls with CF. Her youngest, who is almost six is diagnosed with ABPA. She was diagnosed with it in 2005 and treated successfully from May till July of that year. But now it's back again and she is on 20mg of Prednison again as of... -
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Aspergillus, ABPA
Hi all, i have a questions for a friend of mine. She has two girls with CF. Her youngest, who is almost six is diagnosed with ABPA. She was diagnosed with it in 2005 and treated successfully from May till July of that year. But now it's back again and she is on 20mg of Prednison again as of... -
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Marjolein at home!!
Marjolein got home earlier this evening (well, only for the weekend as she has to undergo some tests next tuesday and wednesday). We're back home packed with LOTS of meds. There was a whole welcome committee awaiting us, waving with flags. They had decorated our house, and there were loads of... -
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No pseudomonas vaccine
I just saw a newsitem somewhere on internet about the vaccine against Pseudomonas Aeruginosa. <i>Crucell stopt with the development of a vaccine against Pseudomonas Aeruginosa in patients with Cystic Fibrosis. From tests on 476 patients from four countries, of which a part got a placebo...