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So I was mixing up my hs this morning. I haven't done it in a loong time because I wasn't really doing it much before and then I got TOBI and just came off my month regime of that - and as long as that took to neb there is no time with kids running around to do the HS too - but now that I am in...

I am thirty today. It's hard to explain to people who act like 30 is getting sooo old that every year older to me is like a big kick in the butt to CF. That's not to say that realizing that my twenties are now a decade gone by that there isn't something bittersweet about getting older, but i...

Two quick questions: 1) About how long does it take ot neb Tobi? I have the Pari Proneb ultra 2)Can I mix Hypertonic Saline with it and do them at the same time? TIA <img src="i/expressions/face-icon-small-smile.gif" border="0">

So, I probably could do a search for this, but with 2 little ones, time is short - a few questions for you all... Went to the clinic - my PFTS are still the same at about 75, so no big changes there. I did mention the bleeding and no one was overly concerned. I brought up getting on TOBi...

Quick question. I have a clinic appt next Friday and I want to get some info here first cuz I feel sometimes like I tell my clinic what to do, instead of the other way around. Anyhoo - I have been taking Creon 20s for years. Recently I went from 4 up to 5 with meals but was still a gassy mess...

So I have a raging sinus infection that quickly spead to my lungs. I got it about 3 days ago. I could tell by how bad I felt that I should get an abx and I happened to have some levaquin here so I started on that. Today is day three of that. Just now I sat down at the computer to do my vest...

Christian, are you here? any news on baby? Just thinking of you!

Everytime I do my vest my nose starts itching so bad it is almost intolerbale and then when i am done I look rudolph-ish. What the hey? Does this happen to anyone esle? I know when I adjust the settings sometimes my skin gets itchy and irritated at first, but I seem to get used to that, but...

I am just copying this from another site I posted it on, but my question is about enzymes and breastfeeding. What did your baby's poop look like? Here was my original post: <i>dd is 6 months old. Today my friend was changing her 5 week old and I got a glimpse of his poop. I know there is a...

My daughter has been exclusively breastfed for 6 months! Hooray! I lost a lot of weight in the beginning, all my pregnancy weight and then a little more, but not enough to put me out of a healthy BMI - just to take the chunk off that I had accumulated before pregnancy. Now I am maintainng...

I think we have done this before, but I con't remember and was thinking I'd like to hear everyones tale of how they were dxed, so if you're so inclined, do share. I was diagnosed with failure to thrive at 6 weeks old. I wasn't gaining weight, crying all the time out of hunger, had developed a...

I need some advice. I don't know what is going on. I have always been pretty stable with weight gain and enzymes have always worked well for me at a relatively low dose. However, I am soooooooo gassy lately. Horribly. For the most part all my bms are normal (sinking, formed, not greasy)...

Had a clinic appt. today (I'll write about it in my blog if you're interested). Was saying I thought I might need another does of antibiotics, but b/c of the breastfeeding, I was limited on what I can and cannot take. So I asked to see my lab sheet that shows my susceptibilites so I could look...

I think I have had a chest x-ray alomst every year since I was small. I haven't had one in a few years though, as I just don't like the idea of getting x-rayed all the time...and I have been pregnant in that time and plus I just am not too compliant about stuff I don't agree with. anyway -...

I have a clinic apt Friday - my last one before I have only my husband's crappola insurance - so I am going to ask for a supply of antibiotics to have around just in case. In my <i>Medications and Mother's Milk</i> book, Hale says that Ofloxacin is a better drug to use for breastfeeding than...

I just got a call from the state insurance I have saying I make too much money....I was up for reeval, and though they told me to call back, I am freaking out that I will get cut off. this couldn't come at a worse time. I had insurance through work, but I have not ben working since Sept, and we...

Anyone ever had to argue or prove they had CF? When my son was a baby he developed meningitis and spent 5 weeks in the hospital. The doctors caring for him asked me numerous times if I was *sure* I had CF....finally I told them my mutations and they left me alone. As grateful as I am to be...

I just wanted to share with you all, since you are probably going to be taking meds at some point during your pregnancy and breastfeeding experiences, that there is a book called "Medicine and Mother's Milk" by Thomas Hale PhD out that gives a lot of great info about meds and safety while...

I am using it right now, hence the palsy in my typinginginging (ha ha). I felt sorta embarrassed to use it at first - this is my first real step towards treatments - but my husband was very reassuring to me and has been great reminding me to do it every day (well for three days anyway!) So what...

how do I go about getting a vest? is it hard to get insurance to pay? how much are they? do you like using it - does it work? what company makes it? thanks!