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  1. W

    CF moms

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  2. W

    mutations

    I was wondering if people might give me a brief list of their mutations and a health assessment (like: have had transplant; PFTS are in this range; have B. cepacia or pseudenomas; etc.) . I ask for a few reasons: 1) curiosity; 2) I know I am delta f508 and that my other mutation (I think) is...
  3. W

    laughter - the best medicine - and it might help clean out your lungs while you're at it!

    laughter - the best medicine - and it might help clean out your lungs while you're at it! I was thinking that I'd like to laugh. and I am a firm believer of being able to laugh at myself. So I was wondering if anyone had any funny Cf stories to share? I have a hard time making things I type...
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    I hate CF and I want to complain (long tirade ensuing)

    I am going to complain for a moment. How often does everyone go to the CF clinic? I have some issues about the Cf foundation's guidlelines as I don't feel that they are individualized at all and rather treat us all as if our illness is exactly the same. For example, I go the the clinic 2x...
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    what is b. cepacia?

    What is b. cepacia and how can you get it? I have read a lot of people's comments who say they developed it. Can I avoid developing it?
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    unwanted weight

    I am new here and I have been posting like crazy because I never talk to people about my CF and the few people that I know with it are "sick." I have read about so many healthy people here, it's great! Anyway - what I'd like to know is about weight. I am actually a little overweight (in my...
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    homeopathic/ natural remedies

    What natural remedies and homeopathy has anyone tried with good results? I have tried: curcumin 2x day raw garlic (supposed to be a mucous thinner) - 1 clove per day whole foods supplements (like Juice-Plus) - 1 pill per day echinacea/goldenseal - when sick cayenne - no longer taking I can't...
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