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  1. M

    Feet Swelling Question

    We were on vacation the past week and it was HOT (temperature wise). I don't usually have problems with swelling even during the summer. Saturday and Sunday my left foot and calf area got puffy. The other foot was just a touch puffy not nothing like the left foot. As soon as we got out of...
  2. M

    Vitamin K Supplement

    I started taking Vitamin K about a month ago.... I don't think I am taking enough still seem to have very thin blood. I am taking GNC Vitamin K 100 (100 mcg). How much is normal for CFers to take?? Thank for your help!
  3. M

    Chicken Pox Exposure

    I have already had the chicken pox (when I was 19 years old). I had them bad!! So I am immune. My son has had the first chicken pox vaccine... has not had the follow up booster. He best buddy has been exposed to them... will get them very shortly. Here is my question(s): Do I need to be...
  4. M

    Vest Tubing-- where to buy

    I am getting a used vest on Tuesday and it needs new tubing. I was wondering if any of you who live near Denver can tell me the best place to buy new tubing. Apria?? Home Health Care store?? I am new to the vest so a bit "un-knowledgeable". Thank for your help!
  5. M

    MSRA

    Someone we know found out that I have MSRA and now they are are freaked out that I could have gave it to their children. I have had MRSA for years (20 years)... this is not something new. I take the necessary precaution not to transmit it. No one near and dear to me has gotten it (hubby...
  6. M

    Laryngitis

    Do any of you get Laryngitis?? I got it last summer and looks like I am getting it again. Same time of the year. I am not taking nebs or inhalers. No sore throat yet.... just coughing and loosing my voice. Not coughing up antything.... pretty dry and irritating. The last time this happened...
  7. M

    Osteoporosis-- beginning symptoms??

    I am starting to wonder if I have the beginnings of osteoporosis. I know I need to get the necessary testing but... in the mean time... what symptoms should I be looking for?? I already have CF related arthritis-- in my shoulders,feet, hips and hands and now my knees. My toes break very...
  8. M

    Germ issues-- Help!

    We just got a call from hubby's grandma, she may have cancer yet again (possible breast). We are leaving tomorrow to spend a week with her... Do I need to be concerned that my pseudomonas and MRSA will put her at risk?? I may be overly concerned but she is old and frail. Will check here...
  9. M

    Aloe Vera

    I was told this weekend Aloe Vera capsules are good for the body (immune?? digestion??). I haven't sat down to research it for myself. Has anyone here taken it and gotten positive results?? How much do you take?? Plan to do my own research but would love your opinions/hear your experiences.
  10. M

    Perfume

    I haven't worn perfume in a very long time (years???)... I put some of the other day and I had trouble breathing. I had to go and wash it off (the best I could). Any one else experience this with perfume??
  11. M

    Augmentin- Side effects??

    I haven't taken Augmentin in a very long time (I think I was in grade school). I am 1/2 way through my dose and I am so sick of this antibiotic. I get incredibly fatigued about 2-3 hours after taking it. My mouth gets dry and my mouth tastes horrible. I have even loss my appetite about...
  12. M

    Bloated- Help!

    The day or so after Christmas I started having constipation issues. Took some Colace" and liquid stuff to move things along. That seems to work to some degree now... I am so bloated it isn't funny. No pain (don't think I am impacted-- especially since things have been moving slowly)...
  13. M

    Went to Mayo Clinic Cystic Fibrosis Center

    I will be moving to them (Mayo clinic) in a few months-- when we move. Are they nice??
  14. M

    Setting boundaries

    Let me start by saying "I am not a germ-freak". But... my friend keep bring their kids over to our house sick( or they invite us over) but don't tell us the kids have been sick. We have expressed to them before how important maintaining my health is (and protecting my lungs). They just don't...
  15. M

    Fun Game moved here

    I have been asked to move this week's blogging game to the forums... What are your 4 most favorite movies?? Mine are Breakfast at Tiffany's, Sabrina, French Kiss and Roman Holiday. P.S. If you share them on my blog yesterday share them again or not (its up to you). <img...
  16. M

    Check out my blog

    Others have stated they wished there were ways we could get to know each other better. I came up with an idea.... I will be posting a fun game/silly question on my blog each week on Thursday or Fridays. Come over and answer this week's silly question... This weeks question is about what super...
  17. M

    Hemoptysis and Sleeping

    I hope I spelled it right <img src="i/expressions/face-icon-small-happy.gif" border="0"> How do you sleep at night-- propped up/elavated?? I keep sliding off the pillows at night and end up by morning almost lying flat. It is very frustrating. I understand the importance of doing it but I...
  18. M

    Organizing a Wrap Around Event

    I was told this was a good place to post this question... I am new to planning wrap around events for CF fundraising. I am planning a CF walk in my community. This is my first time (hopefully not my last) planning such an activity. If anyone who has experience planning such an event and has...
  19. M

    I missed Great Strides Walk

    I snoozed and we missed out on being able to walk in our town's Great Strides Walk. Can people fundraise and coordinate their own private Great Strides walk?? I go to a church that is big on helping in the community-- I might get a lot of interest from them in participating. I emailed...
  20. M

    coughing up blood- new to this

    First time coughed up blood yesterday -- very scarry for me and family.<img src="i/expressions/face-icon-small-shocked.gif" border="0"> I have mild case of CF and mostly digestive problems. I have been pushing myself (stress, lots of activities) and messed up mentrual cycles. I use the cold...
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