Search results

  1. L

    Patiently Waiting for a Call

    Exactly Lindsey....my doc set me straight. She reminded me that my donor and family made the choice to donate. They were giving me the greatest gift one can give another willingly--it was their last great thing they did. We shouldn't feel guilty over such a gift. The problem arises because we...
  2. L

    Patiently Waiting for a Call

    Exactly Lindsey....my doc set me straight. She reminded me that my donor and family made the choice to donate. They were giving me the greatest gift one can give another willingly--it was their last great thing they did. We shouldn't feel guilty over such a gift. The problem arises because we...
  3. L

    Patiently Waiting for a Call

    Exactly Lindsey....my doc set me straight. She reminded me that my donor and family made the choice to donate. They were giving me the greatest gift one can give another willingly--it was their last great thing they did. We shouldn't feel guilty over such a gift. The problem arises because we...
  4. L

    Patiently Waiting for a Call

    Wow, John. You are an amazing friend! I was admitted on October 17th and got my first call about 10 days later. I got my second call a couple days after that, and a third call a couple days after that and the final call about 4 days after that. (whew)... That said, I wish your friend luck. It's...
  5. L

    Patiently Waiting for a Call

    Wow, John. You are an amazing friend! I was admitted on October 17th and got my first call about 10 days later. I got my second call a couple days after that, and a third call a couple days after that and the final call about 4 days after that. (whew)... That said, I wish your friend luck. It's...
  6. L

    Patiently Waiting for a Call

    Wow, John. You are an amazing friend! I was admitted on October 17th and got my first call about 10 days later. I got my second call a couple days after that, and a third call a couple days after that and the final call about 4 days after that. (whew)... <br /> <br />That said, I wish your...
  7. L

    Prograf Dose

    My Prograf is free.... Astra Zenica may be able to help :) Seriously, though. They have an amazing program for us. They cover all my prograf expenses. I'm on 6mgs 2x/day since I was about a month out. The actual "dose" doesn't matter. It's the amount that your body absorbs and uses. They...
  8. L

    Men with CF who have had children using ICSI

    Are you suggesting that there is an inherent flaw in ICSI or that sons of CF'ers may develop an issue or that sons of CF'ers concieced from ICSI will have an issue? Thanks.
  9. L

    Men with CF who have had children using ICSI

    Are you suggesting that there is an inherent flaw in ICSI or that sons of CF'ers may develop an issue or that sons of CF'ers concieced from ICSI will have an issue? Thanks.
  10. L

    Men with CF who have had children using ICSI

    Are you suggesting that there is an inherent flaw in ICSI or that sons of CF'ers may develop an issue or that sons of CF'ers concieced from ICSI will have an issue? Thanks.
  11. L

    Approved For SSDI

    For those who have trouble with SSDI, I would recommend getting a doc that "gets ***** done". I was approved in 3 months, no hassle, no questions. The doctor is the one who writes how "bad" we are. With CF, ANY good doc should be willing to fudge the numbers to MAKE SURE YOU'LL GET APPROVED. I...
  12. L

    Approved For SSDI

    For those who have trouble with SSDI, I would recommend getting a doc that "gets ***** done". I was approved in 3 months, no hassle, no questions. The doctor is the one who writes how "bad" we are. With CF, ANY good doc should be willing to fudge the numbers to MAKE SURE YOU'LL GET APPROVED. I...
  13. L

    Approved For SSDI

    For those who have trouble with SSDI, I would recommend getting a doc that "gets ***** done". I was approved in 3 months, no hassle, no questions. The doctor is the one who writes how "bad" we are. With CF, ANY good doc should be willing to fudge the numbers to MAKE SURE YOU'LL GET APPROVED. I...
  14. L

    To do or not to do

    Ldude....nicely said. When my FEV1 got into the 20's, my denial was snapped when I couldn't even pick up my one year old son. Life wasn't fun anymore. I was glad I was well into the TX evaluations/education/listing process. PS. Dying from end stage lung disease SUCKS. Like I said, I was...
  15. L

    To do or not to do

    Ldude....nicely said. When my FEV1 got into the 20's, my denial was snapped when I couldn't even pick up my one year old son. Life wasn't fun anymore. I was glad I was well into the TX evaluations/education/listing process. PS. Dying from end stage lung disease SUCKS. Like I said, I was...
  16. L

    To do or not to do

    Ldude....nicely said. <br /> <br />When my FEV1 got into the 20's, my denial was snapped when I couldn't even pick up my one year old son. Life wasn't fun anymore. I was glad I was well into the TX evaluations/education/listing process. <br /> <br />PS. Dying from end stage lung disease SUCKS...
  17. L

    To do or not to do

    My advice....go thru the evaluation process and get listed. What can it hurt? If you get the call, you can always say no. But at that time, as your health declines, you may want a TX. It's good to have the option. Doing nothing will leave you with no options. I have a 2 year old son (1 when...
  18. L

    To do or not to do

    My advice....go thru the evaluation process and get listed. What can it hurt? If you get the call, you can always say no. But at that time, as your health declines, you may want a TX. It's good to have the option. Doing nothing will leave you with no options. I have a 2 year old son (1 when...
  19. L

    To do or not to do

    My advice....go thru the evaluation process and get listed. What can it hurt? If you get the call, you can always say no. <br /> <br />But at that time, as your health declines, you may want a TX. It's good to have the option. Doing nothing will leave you with no options. <br /> <br />I have a...
  20. L

    2011ALex Award

    WOW.....what a tremendous honor! WAY TO GO!!! Congratulations, Piper....you deserve this! Frank wrote me a letter just before the marathon....what a great guy!
Top