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Tom, really sorry to hear this bad news. Keep the faith, tomorrow is another day, prayers to you all and hoping something turns your way xxx

Tom, really sorry to hear this bad news. Keep the faith, tomorrow is another day, prayers to you all and hoping something turns your way xxx

Thanks Art....and yes, Vertex is a tablet, not an inhalation. One tablet, twice a day. I think the dose my son is on is 150mg x2 (that might be wrong, but somewhere in the vicinity).

Thanks Art....and yes, Vertex is a tablet, not an inhalation. One tablet, twice a day. I think the dose my son is on is 150mg x2 (that might be wrong, but somewhere in the vicinity).

Thanks Art....and yes, Vertex is a tablet, not an inhalation. One tablet, twice a day. I think the dose my son is on is 150mg x2 (that might be wrong, but somewhere in the vicinity).

sorry, is that the 'W' mutation?

sorry, is that the 'W' mutation?

sorry, is that the 'W' mutation?

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br><br>Vertex are going to make the 770 available for people who have critical disease.<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br><br>Vertex are going to make the 770 available for people who have critical disease.<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br><br>Vertex are going to make the 770 available for people who have critical disease.<br>

the vx770 directly targets g551d (and possibly other mutations). It works, and people taking it are now through the 48 week trial and about three months onto the open label. My son is completely healthy, hasnt been sick since he started in Nov 2009, fev1 hovering around 89% (he's 32 and been in...

the vx770 directly targets g551d (and possibly other mutations). It works, and people taking it are now through the 48 week trial and about three months onto the open label. My son is completely healthy, hasnt been sick since he started in Nov 2009, fev1 hovering around 89% (he's 32 and been in...

the vx770 directly targets g551d (and possibly other mutations). It works, and people taking it are now through the 48 week trial and about three months onto the open label. My son is completely healthy, hasnt been sick since he started in Nov 2009, fev1 hovering around 89% (he's 32 and been in...

but ofcourse Nicole, that would have to be his choice when he got older, not yours ;-) the vertex drugs do not use stem cells.

but ofcourse Nicole, that would have to be his choice when he got older, not yours ;-) the vertex drugs do not use stem cells.

but ofcourse Nicole, that would have to be his choice when he got older, not yours ;-) the vertex drugs do not use stem cells.