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  1. E

    Boiling nebs?

    Darn Hard Water....we have that problem!!! We do one of two things. Either we use tap water and add in some vinegar. Or we buy bottled water, it doesn't have to be distilled water. Jeff, I believe the risks of not sanitizing and drying your nebs after each use, is bacteria growing in the...
  2. E

    Boiling nebs?

    Darn Hard Water....we have that problem!!! We do one of two things. Either we use tap water and add in some vinegar. Or we buy bottled water, it doesn't have to be distilled water. Jeff, I believe the risks of not sanitizing and drying your nebs after each use, is bacteria growing in the...
  3. E

    Joint pain

    It could be both...the antibiotics and growing pains. The thing that solved the pains for my oldest was magnesium. check out my blog for all the great info I found on magnesium. I would say that magnesium is very important for all CFers to take...
  4. E

    Joint pain

    It could be both...the antibiotics and growing pains. The thing that solved the pains for my oldest was magnesium. check out my blog for all the great info I found on magnesium. I would say that magnesium is very important for all CFers to take...
  5. E

    How far do you travel to get to your clinic?

    6 hour flight from big island, hawaii to phoenix, az <img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. E

    How far do you travel to get to your clinic?

    6 hour flight from big island, hawaii to phoenix, az <img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. E

    Breastfeeding help please!

    I am with Caroline!!! Once you start exclusively pumping, your milk is more likely to diminish quickly!! Once you get back to work, I believe it would help alot if he latched on a couple times a day. It will take a little work, but he should be able to latch on "normally" with a little extra...
  8. E

    Breastfeeding help please!

    I am with Caroline!!! Once you start exclusively pumping, your milk is more likely to diminish quickly!! Once you get back to work, I believe it would help alot if he latched on a couple times a day. It will take a little work, but he should be able to latch on "normally" with a little extra...
  9. E

    Can we select who our son sees at CF Clinic?

    Sounds like we have similar social workers, Sarah <img src="i/expressions/face-icon-small-smile.gif" border="0"> Yes, we have opted out of seeing social workers. I usually just tell our nurse, who we would like to see. blessings, missa
  10. E

    Can we select who our son sees at CF Clinic?

    Sounds like we have similar social workers, Sarah <img src="i/expressions/face-icon-small-smile.gif" border="0"> Yes, we have opted out of seeing social workers. I usually just tell our nurse, who we would like to see. blessings, missa
  11. E

    sodium bicarbonate

    We also had a significant increase in weight...7 or 8 pounds...PRAISE GOD!!! I think we are the only ones also, that are taking sodium bicarbonate in our clinic...the nurse sounded pretty stunned at the progress when I talked to her last. Not sure how to administer them with a g-tube...I would...
  12. E

    sodium bicarbonate

    We also had a significant increase in weight...7 or 8 pounds...PRAISE GOD!!! I think we are the only ones also, that are taking sodium bicarbonate in our clinic...the nurse sounded pretty stunned at the progress when I talked to her last. Not sure how to administer them with a g-tube...I would...
  13. E

    sodium bicarbonate

    I am one of the mamas that raves about sodium bicarbonate. The doctor prescribes it for us. It comes in a 650mg tablet and for my 4 year old, we give him 1/4 of the pill. We actually were able to decrease the amount of antacid both boys were taking and their stools are great. And I rarely...
  14. E

    sodium bicarbonate

    I am one of the mamas that raves about sodium bicarbonate. The doctor prescribes it for us. It comes in a 650mg tablet and for my 4 year old, we give him 1/4 of the pill. We actually were able to decrease the amount of antacid both boys were taking and their stools are great. And I rarely...
  15. E

    Breastfeeding help please!

    If he is nursing every hour or so, you may want to do 1/2 of the zenpep capsule. Did they give you a maximum amount per day that he could have. Too many enzymes could cause tummy issues. If you are concerned about your production, there are some pretty yummy teas at the natural food stores...
  16. E

    Breastfeeding help please!

    If he is nursing every hour or so, you may want to do 1/2 of the zenpep capsule. Did they give you a maximum amount per day that he could have. Too many enzymes could cause tummy issues. If you are concerned about your production, there are some pretty yummy teas at the natural food stores...
  17. E

    Gas/stomach woes from NAC

    I have been trying to start it with my 7 year old. Everytime I start it, his poops go absolutely crazy. I have not gotten brave enough to go beyond a couple days with him on it. blessings, missa
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    CF center(s) in Phoenix, AZ

    Okay Jeana, I will answer what I can??? We live in Hawaii now, but we are from AZ and my boys 4 and 7 are still followed at Phoenix Children's Hospital. I believe Dr. Gong is working in the adult center and that is who we see when there. He is a very nice guy. Most often very down to...
  19. E

    CF center(s) in Phoenix, AZ

    Okay Jeana, I will answer what I can??? We live in Hawaii now, but we are from AZ and my boys 4 and 7 are still followed at Phoenix Children's Hospital. I believe Dr. Gong is working in the adult center and that is who we see when there. He is a very nice guy. Most often very down to...
  20. E

    Need some info on Nevada

    We are trying like crazy to get back to the mainland!!! But the hardest part we will encounter is making sure we can afford the medical care or that we can get assistance from the state. If anyone has lived or lives in Nevada, we would love as much info as you can give. Would you mind telling me...
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