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  1. B

    Josh is n the hospital

    thanks ...will keep everyone posted. Being able to talk/ post to you guys really helps!
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    grades are down UPDATE

    Josh managed to take his finals this week. I did talk to the principal and he will make accomodations for finals with a letter from his doctor. If he tanks his finals they will adjust them to reflect his normal work. He missed two finals today. I got the letter today; the CF  clinic social...
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    grades are down UPDATE

    Josh managed to take his finals this week. I did talk to the principal and he will make accomodations for finals with a letter from his doctor. If he tanks his finals they will adjust them to reflect his normal work. He missed two finals today.I got the letter today; the CF clinic social worker...
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    grades are down UPDATE

    <BR>Josh managed to take his finals this week. I did talk to the principal and he will make accomodations for finals with a letter from his doctor. If he tanks his finals they will adjust them to reflect his normal work. He missed two finals today.I got the letter today; the CF clinic social...
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    Josh is n the hospital

    <P>Josh was admitted to the hospital yesterday evening. I took him to CF clinic one week earlier than the 4 week check up as he was coughing more.  Lung functions were at 61. He will be here for about a week, maybe he will be disharged as early as Tuesday. His PICC line ws put in today and...
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    Josh is n the hospital

    <P>Josh was admitted to the hospital yesterday evening. I took him to CF clinic one week earlier than the 4 week check up as he was coughing more. Lung functions were at 61. He will be here for about a week, maybe he will be disharged as early as Tuesday. His PICC line ws put in today and...
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    Josh is n the hospital

    <P><BR>Josh was admitted to the hospital yesterday evening. I took him to CF clinic one week earlier than the 4 week check up as he was coughing more. Lung functions were at 61. He will be here for about a week, maybe he will be disharged as early as Tuesday. His PICC line ws put in today and...
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    In search of support for my daughter.

    I am so sorry that you guys are going  through this now. It does seem like it will never end. I was a single mom for about 7 years after my husband lost his battle against cancer. Josh was just 2 when he died. his fther traveled alot so I often felt like a single mom anyway. Josh was sich quite...
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    In search of support for my daughter.

    I am so sorry that you guys are going through this now. It does seem like it will never end. I was a single mom for about 7 years after my husband lost his battle against cancer. Josh was just 2 when he died. his fther traveled alot so I often felt like a single mom anyway. Josh was sich quite a...
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    In search of support for my daughter.

    <p>I am so sorry that you guys are going through this now. It does seem like it will never end. I was a single mom for about 7 years after my husband lost his battle against cancer. Josh was just 2 when he died. his fther traveled alot so I often felt like a single mom anyway. Josh was sich...
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    School grades are down

    This may sound like "the dog ate my homework" but I have noticed that Joshua's grades have gone down over the last month. He is not in danger of failing anything for the year but his performance is not what it has been over the previous quarters. He has been on antibiotics since his visit to...
  12. B

    School grades are down

    This may sound like "the dog ate my homework" but I have noticed that Joshua's grades have gone down over the last month. He is not in danger of failing anything for the year but his performance is not what it has been over the previous quarters. He has been on antibiotics since his visit to...
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    School grades are down

    <p>This may sound like "the dog ate my homework" but I have noticed that Joshua's grades have gone down over the last month. He is not in danger of failing anything for the year but his performance is not what it has been over the previous quarters. He has been on antibiotics since his visit to...
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    worried about Josh

    yep...........Dr. Zeitlin did his diagnostic workup and that is who we almost always see. He has another appt. for followup on June 8. Hope its a good one and he ddoesn't have . to go to the hospital. He seems the same to be at his peak flows are at 500 and sometimes 550.
  15. B

    worried about Josh

    yep...........Dr. Zeitlin did his diagnostic workup and that is who we almost always see. He has another appt. for followup on June 8. Hope its a good one and he ddoesn't have . to go to the hospital. He seems the same to be at his peak flows are at 500 and sometimes 550.
  16. B

    worried about Josh

    yep...........Dr. Zeitlin did his diagnostic workup and that is who we almost always see. He has another appt. for followup on June 8. Hope its a good one and he ddoesn't have . to go to the hospital. He seems the same to be at his peak flows are at 500 and sometimes 550.
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    worried about Josh

    thanks for the advice and tips. It is so nice to hear from people who have already "walked there. I hadn't thought about having to give the meds, I thought a visting nurse would handle that. I don't think there has been much of a change in his lung functions as he still isn't going outside when...
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    worried about Josh

    thanks for the advice and tips. It is so nice to hear from people who have already "walked there. I hadn't thought about having to give the meds, I thought a visting nurse would handle that. I don't think there has been much of a change in his lung functions as he still isn't going outside when...
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    worried about Josh

    thanks for the advice and tips. It is so nice to hear from people who have already "walked there. I hadn't thought about having to give the meds, I thought a visting nurse would handle that. I don't think there has been much of a change in his lung functions as he still isn't going outside when...
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    We saw the CF specialist

    Hi, I found waiting to be the hard part. I saw that you mentioned nasal potential differencel testing. My son had a borderline sweat and a positive sweate. He was finally diagnosed by nasal differential. It is painless and involves putting small tubes in the nose and running fluids through. My...
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