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  1. B

    We saw the CF specialist

    Hi, I found waiting to be the hard part. I saw that you mentioned nasal potential differencel testing. My son had a borderline sweat and a positive sweate. He was finally diagnosed by nasal differential. It is painless and involves putting small tubes in the nose and running fluids through. My...
  2. B

    We saw the CF specialist

    <p>Hi, <p>I found waiting to be the hard part. I saw that you mentioned nasal potential differencel testing. My son had a borderline sweat and a positive sweate. He was finally diagnosed by nasal differential. It is painless and involves putting small tubes in the nose and running fluids...
  3. B

    Two borderline sweat chloride tests

    Waiting is so so difficult. with my son we went from a positive sweat test, to a negative sweat test, no known mutations, and a positive nasal diferential. Based on his sinus problems (including surgery and polyps) and his history of asthma and hospitalizations when he was younger he was...
  4. B

    Two borderline sweat chloride tests

    Waiting is so so difficult. with my son we went from a positive sweat test, to a negative sweat test, no known mutations, and a positive nasal diferential. Based on his sinus problems (including surgery and polyps) and his history of asthma and hospitalizations when he was younger he was...
  5. B

    Two borderline sweat chloride tests

    Waiting is so so difficult. with my son we went from a positive sweat test, to a negative sweat test, no known mutations, and a positive nasal diferential. Based on his sinus problems (including surgery and polyps) and his history of asthma and hospitalizations when he was younger he was...
  6. B

    Is a sweat test necessary at this point?

    I would have it done. My son is atypical and getting the diagnosis has turned out better than watching him be sick all the time and not knowing why.
  7. B

    Is a sweat test necessary at this point?

    I would have it done. My son is atypical and getting the diagnosis has turned out better than watching him be sick all the time and not knowing why.
  8. B

    Is a sweat test necessary at this point?

    I would have it done. My son is atypical and getting the diagnosis has turned out better than watching him be sick all the time and not knowing why.
  9. B

    worried about Josh

    About a month ago Josh had his regular CF checkup and his lung functions were down below not sure, I think 70 to 75. His doctor put him on antibiotics and increased his xopenex to three times a day (switching to the solution at night), and increased the use of his acapella to 2x a day. He had...
  10. B

    worried about Josh

    About a month ago Josh had his regular CF checkup and his lung functions were down below not sure, I think 70 to 75. His doctor put him on antibiotics and increased his xopenex to three times a day (switching to the solution at night), and increased the use of his acapella to 2x a day. He had...
  11. B

    worried about Josh

    <p>About a month ago Josh had his regular CF checkup and his lung functions were down below not sure, I think 70 to 75. His doctor put him on antibiotics and increased his xopenex to three times a day (switching to the solution at night), and increased the use of his acapella to 2x a day. He had...
  12. B

    Cystic Fibrosis and Arthritis

    When I went to Hopkins for a CF workup they wanted records from my rheumatologist. My son has CF and at Hopkins all CF kids take vitamin D3 (2000 iu) for joint and one health. I found this online: Episodes of joint pain are well recognised in cystic fibrosis (CF), usually starting after ten...
  13. B

    Cystic Fibrosis and Arthritis

    When I went to Hopkins for a CF workup they wanted records from my rheumatologist. My son has CF and at Hopkins all CF kids take vitamin D3 (2000 iu) for joint and one health. I found this online: Episodes of joint pain are well recognised in cystic fibrosis (CF), usually starting after ten...
  14. B

    Cystic Fibrosis and Arthritis

    When I went to Hopkins for a CF workup they wanted records from my rheumatologist. My son has CF and at Hopkins all CF kids take vitamin D3 (2000 iu) for joint and one health. <br /> <br />I found this online: <br />Episodes of joint pain are well recognised in cystic fibrosis (CF), usually...
  15. B

    frustrated again!

    I believe that sinus problems are a symptom of CF. My son is now almost seventeen and was diagnosed with CF in 2005. He has no know mutation but had a history since infancy of lung congestion and sinus problems. By age one he was geting daily neb treatments. His diagnosed came after he had sinus...
  16. B

    frustrated again!

    I believe that sinus problems are a symptom of CF. My son is now almost seventeen and was diagnosed with CF in 2005. He has no know mutation but had a history since infancy of lung congestion and sinus problems. By age one he was geting daily neb treatments. His diagnosed came after he had sinus...
  17. B

    frustrated again!

    <p>I believe that sinus problems are a symptom of CF. My son is now almost seventeen and was diagnosed with CF in 2005. He has no know mutation but had a history since infancy of lung congestion and sinus problems. By age one he was geting daily neb treatments. His diagnosed came after he had...
  18. B

    2% Bactroban as nasal rinse

    I saw a sinus specialist at Hopkins today who works with CF patients. I still have no diagnosis; the adult CF clinic sent me to her as they don't think I have CF. I was using pulmicort in my nose for the last month and today she switched to bactorban 2% mixed in a neil med solution, twice a day...
  19. B

    2% Bactroban as nasal rinse

    I saw a sinus specialist at Hopkins today who works with CF patients. I still have no diagnosis; the adult CF clinic sent me to her as they don't think I have CF. I was using pulmicort in my nose for the last month and today she switched to bactorban 2% mixed in a neil med solution, twice a day...
  20. B

    2% Bactroban as nasal rinse

    I saw a sinus specialist at Hopkins today who works with CF patients. I still have no diagnosis; the adult CF clinic sent me to her as they don't think I have CF. I was using pulmicort in my nose for the last month and today she switched to bactorban 2% mixed in a neil med solution, twice a day...
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