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  1. L

    coffee pot question

    Wow, I have had a Tassimo coffee brewer for about 3 years now, I leave water in the resevoir for use all day long. I never thought of this as a gross thing to do.
  2. L

    Daughter in hospital

    I see that this thread is 2 weeks old now, I hope your daughter is doing better. I just wanted to add my feelings on this topic, as the CF patient, as I think I've learned a lot about my parents and how they handle things. My dad is the fixer. He doesn't want to be around if he can't fix it...
  3. L

    Daughter in hospital

    I see that this thread is 2 weeks old now, I hope your daughter is doing better. I just wanted to add my feelings on this topic, as the CF patient, as I think I've learned a lot about my parents and how they handle things. My dad is the fixer. He doesn't want to be around if he can't fix it...
  4. L

    Daughter in hospital

    I see that this thread is 2 weeks old now, I hope your daughter is doing better. <br /> <br />I just wanted to add my feelings on this topic, as the CF patient, as I think I've learned a lot about my parents and how they handle things. <br /> <br />My dad is the fixer. He doesn't want to be...
  5. L

    Trying to understand Appetite loss

    I never thought about why I lose my appetite when I'm really sick, but it is kinda weird. Proxy, like you, I LOVE food. I want it all the time, I think about it all day, eating is my favorite hobby. But when I'm really sick, I don't want to eat.
  6. L

    Trying to understand Appetite loss

    I never thought about why I lose my appetite when I'm really sick, but it is kinda weird. Proxy, like you, I LOVE food. I want it all the time, I think about it all day, eating is my favorite hobby. But when I'm really sick, I don't want to eat.
  7. L

    Trying to understand Appetite loss

    I never thought about why I lose my appetite when I'm really sick, but it is kinda weird. <br />Proxy, like you, I LOVE food. I want it all the time, I think about it all day, eating is my favorite hobby. But when I'm really sick, I don't want to eat.
  8. L

    PICC lines and recess?

    I just want to add my experience with PICC lines (before I got my beloved port!): I tried to work out once, and by the end, the insertion site was leaking blood and obviously required a new dressing. The picc was still working, but I was kinda freaked out by the blood. Also, the line can move...
  9. L

    Aquagenic Palmar Wrinkling Thread Disappeared?

    I've been wondering about another thread that disappeared as well. Is there a reason/explanation for this?
  10. L

    Aquagenic Palmar Wrinkling Thread Disappeared?

    I've been wondering about another thread that disappeared as well. Is there a reason/explanation for this?
  11. L

    Aquagenic Palmar Wrinkling Thread Disappeared?

    I've been wondering about another thread that disappeared as well. Is there a reason/explanation for this?
  12. L

    Problems w/ joints or bones?

    There are certain joint/bone issues associated with CF. I have had bouts of achy joints accompanied by a red, raised, painful rash since I was about 12. It has improved over time (less frequency), but seems to come about during stressful times, perhaps correlating with an exacerbation. I take...
  13. L

    Problems w/ joints or bones?

    There are certain joint/bone issues associated with CF. I have had bouts of achy joints accompanied by a red, raised, painful rash since I was about 12. It has improved over time (less frequency), but seems to come about during stressful times, perhaps correlating with an exacerbation. I take...
  14. L

    Problems w/ joints or bones?

    There are certain joint/bone issues associated with CF. I have had bouts of achy joints accompanied by a red, raised, painful rash since I was about 12. It has improved over time (less frequency), but seems to come about during stressful times, perhaps correlating with an exacerbation. I take...
  15. L

    Need some advice

    Hi Jen, I just want to say that I understand the stress and heartache you are going through to some extent. I do not have children, but my ex and I recently broke up after a 12 year relationship. I understand wondering what you have to offer to someone new, at this phase of your life, at this...
  16. L

    Need some advice

    Hi Jen, I just want to say that I understand the stress and heartache you are going through to some extent. I do not have children, but my ex and I recently broke up after a 12 year relationship. I understand wondering what you have to offer to someone new, at this phase of your life, at this...
  17. L

    Need some advice

    Hi Jen, <br />I just want to say that I understand the stress and heartache you are going through to some extent. I do not have children, but my ex and I recently broke up after a 12 year relationship. I understand wondering what you have to offer to someone new, at this phase of your life, at...
  18. L

    Greatful?!?

    Wow, I agree with Bjoern89 completely. If taking care of yourself and exercising were all it took, a lot of my friends would still be alive, and I would be dead long ago. Sorry, Enzo, that's not how CF works. Some will live to be 60, but there are still children dying of CF everyday. It's...
  19. L

    Greatful?!?

    Wow, I agree with Bjoern89 completely. If taking care of yourself and exercising were all it took, a lot of my friends would still be alive, and I would be dead long ago. Sorry, Enzo, that's not how CF works. Some will live to be 60, but there are still children dying of CF everyday. It's...
  20. L

    Greatful?!?

    Wow, I agree with Bjoern89 completely. If taking care of yourself and exercising were all it took, a lot of my friends would still be alive, and I would be dead long ago. Sorry, Enzo, that's not how CF works. Some will live to be 60, but there are still children dying of CF everyday. It's...
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