Search results

  1. L

    Clubbed toes

    Hi all, I just want to say that my fingers and toes have always been clubbed, from diagnosis at 2 when my lung function was fine, to today at 32, with FEV1 in the 50's. Clubbing has not correlated with lung function for me. Just another part of my body people think is weird and I hate, along...
  2. L

    Clubbed toes

    Hi all, I just want to say that my fingers and toes have always been clubbed, from diagnosis at 2 when my lung function was fine, to today at 32, with FEV1 in the 50's. Clubbing has not correlated with lung function for me. Just another part of my body people think is weird and I hate, along...
  3. L

    Clubbed toes

    Hi all, <br />I just want to say that my fingers and toes have always been clubbed, from diagnosis at 2 when my lung function was fine, to today at 32, with FEV1 in the 50's. Clubbing has not correlated with lung function for me. Just another part of my body people think is weird and I hate...
  4. L

    getting a port on friday

    Hey Erin! I just want to say that I understand how nervous/anxious you are. I was the same, if not worse! I was convinced that I was going to die (I actually wrote a letter to all my loved ones, in case I didn't make it...I tend to catastrophize when I'm worried!), and I was terrified at the...
  5. L

    getting a port on friday

    Hey Erin! I just want to say that I understand how nervous/anxious you are. I was the same, if not worse! I was convinced that I was going to die (I actually wrote a letter to all my loved ones, in case I didn't make it...I tend to catastrophize when I'm worried!), and I was terrified at the...
  6. L

    getting a port on friday

    Hey Erin! <br />I just want to say that I understand how nervous/anxious you are. I was the same, if not worse! I was convinced that I was going to die (I actually wrote a letter to all my loved ones, in case I didn't make it...I tend to catastrophize when I'm worried!), and I was terrified...
  7. L

    considering a 3rd - need advice

    accidently posted my response to the "moderator", no idea how to retrieve or copy it, sorry
  8. L

    considering a 3rd - need advice

    accidently posted my response to the "moderator", no idea how to retrieve or copy it, sorry
  9. L

    considering a 3rd - need advice

    accidently posted my response to the "moderator", no idea how to retrieve or copy it, sorry
  10. L

    breathlessness

    Hey Erin <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you know if your doctors have ruled out aspergillus? I know when I first cultured it back in 2008, I was feeling terrible, but in a different, more asthmatic way (and I don't have asthma). I did 4 rounds of antibiotics...
  11. L

    breathlessness

    Hey Erin <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you know if your doctors have ruled out aspergillus? I know when I first cultured it back in 2008, I was feeling terrible, but in a different, more asthmatic way (and I don't have asthma). I did 4 rounds of antibiotics...
  12. L

    breathlessness

    Hey Erin <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br />Do you know if your doctors have ruled out aspergillus? I know when I first cultured it back in 2008, I was feeling terrible, but in a different, more asthmatic way (and I don't have asthma). I did 4 rounds of...
  13. L

    My CF friend is in surgery!

    Wow! That is awesome!
  14. L

    My CF friend is in surgery!

    Wow! That is awesome!
  15. L

    My CF friend is in surgery!

    Wow! That is awesome!
  16. L

    my 1st time port access...no luck and horribly painful!

    So glad it went well for you today! I think you will love having a port. I was so hesitant to get one, but it was the best decision for me! Sometimes when I am de-accessed, I get some blood, but I wouldn't say it's a lot. How much would you say there was?
  17. L

    my 1st time port access...no luck and horribly painful!

    So glad it went well for you today! I think you will love having a port. I was so hesitant to get one, but it was the best decision for me! Sometimes when I am de-accessed, I get some blood, but I wouldn't say it's a lot. How much would you say there was?
  18. L

    my 1st time port access...no luck and horribly painful!

    So glad it went well for you today! I think you will love having a port. I was so hesitant to get one, but it was the best decision for me! <br />Sometimes when I am de-accessed, I get some blood, but I wouldn't say it's a lot. How much would you say there was?
  19. L

    September 11

    I remember my boyfriend came in to wake me up, saying that America was being attacked. We watched on the news, it felt absolutely surreal. At the time, I was attending university in the small town of Lethbridge, Canada, but I was so scared. I felt that if the US was being attacked, ***** was...
  20. L

    September 11

    I remember my boyfriend came in to wake me up, saying that America was being attacked. We watched on the news, it felt absolutely surreal. At the time, I was attending university in the small town of Lethbridge, Canada, but I was so scared. I felt that if the US was being attacked, ***** was...
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