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    Is anyone participatingin any studies?

    SeanP, how is your son doing with the denufosal study? We're thinking about it again. We tried once and he screened failed. PFTs weren't consistant. He doesn't want to which is making it hard. Laurie darin 9 w/CF Owen 2 w/o CF
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    Daily medications

    I also forgot enzymes multi vitamin fish oil supplements
  3. D

    Daily medications

    I also forgot enzymes multi vitamin fish oil supplements
  4. D

    Daily medications

    I also forgot enzymes multi vitamin fish oil supplements
  5. D

    Daily medications

    I also forgot enzymes multi vitamin fish oil supplements
  6. D

    Daily medications

    I also forgot enzymes multi vitamin fish oil supplements
  7. D

    Daily medications

    I also forgot enzymes multi vitamin fish oil supplements
  8. D

    Daily medications

    Hi my son Darin is on: Pulmozyme twice a day Flovent and albueterol inhalers twice a day vest zithromax 3x a week zyrtec singular Hypertonic Saline every other month
  9. D

    Daily medications

    Hi my son Darin is on: Pulmozyme twice a day Flovent and albueterol inhalers twice a day vest zithromax 3x a week zyrtec singular Hypertonic Saline every other month
  10. D

    Daily medications

    Hi my son Darin is on: Pulmozyme twice a day Flovent and albueterol inhalers twice a day vest zithromax 3x a week zyrtec singular Hypertonic Saline every other month
  11. D

    Daily medications

    Hi my son Darin is on: Pulmozyme twice a day Flovent and albueterol inhalers twice a day vest zithromax 3x a week zyrtec singular Hypertonic Saline every other month
  12. D

    Daily medications

    Hi my son Darin is on: Pulmozyme twice a day Flovent and albueterol inhalers twice a day vest zithromax 3x a week zyrtec singular Hypertonic Saline every other month
  13. D

    Daily medications

    Hi my son Darin is on: Pulmozyme twice a day Flovent and albueterol inhalers twice a day vest zithromax 3x a week zyrtec singular Hypertonic Saline every other month
  14. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is...
  15. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is...
  16. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is...
  17. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is...
  18. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is...
  19. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is...
  20. D

    Mother of a 10yr old girl with CF - looking for a comrade

    Hi Melissa, My son Darin is 9. He'll be 10 in September. We live in PA. Getting treatments in can be diffcult. We try to do them first thing and then he has the rest of the day to play and then at night time. Occasionly, inhalers in between. He doesn't always want to do it, but he knows...
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