Search results

  1. B

    Diagnosed at age 50

    LTA You are not alone with late diagnosis. I just turned 65 and was only diagnosed a year ago. I have DF508 and R117H. With a year of good treatment I feel better that I have in 5 years. My sister died from CF 40 years ago at age 21. I knew I was most likely a carrier with symptoms and have...
  2. B

    Diagnosed at age 50

    LTA You are not alone with late diagnosis. I just turned 65 and was only diagnosed a year ago. I have DF508 and R117H. With a year of good treatment I feel better that I have in 5 years. My sister died from CF 40 years ago at age 21. I knew I was most likely a carrier with symptoms and have...
  3. B

    Diagnosed at age 50

    LTA <br /> <br />You are not alone with late diagnosis. I just turned 65 and was only diagnosed a year ago. I have DF508 and R117H. With a year of good treatment I feel better that I have in 5 years. My sister died from CF 40 years ago at age 21. I knew I was most likely a carrier with symptoms...
  4. B

    50th Birthday for a CFer

    Happy Belated Birthday! Congratulations on the 50th! I just had my 65th birthday May 30th. Talk about old! I was only officially diagnosed with CF last year after years of lung problems. I lost my sister 40 years ago to CF. She was 21 years old. Back then I had sweat test and was told I was a...
  5. B

    50th Birthday for a CFer

    Happy Belated Birthday! Congratulations on the 50th! I just had my 65th birthday May 30th. Talk about old! I was only officially diagnosed with CF last year after years of lung problems. I lost my sister 40 years ago to CF. She was 21 years old. Back then I had sweat test and was told I was a...
  6. B

    50th Birthday for a CFer

    Happy Belated Birthday! Congratulations on the 50th! <br /> <br />I just had my 65th birthday May 30th. Talk about old! I was only officially diagnosed with CF last year after years of lung problems. I lost my sister 40 years ago to CF. She was 21 years old. Back then I had sweat test and was...
  7. B

    Late Diagnosis

    I was diagnosed last year at age 64. Made it to 65 - May 30, 2011. My sister died from CF 40 years ago at age 21. At that point based on sweat test, I was told I was probably a carrier w/symptoms. <br><br>I have struggled with lung problems all my life and basically assumed it was due to CF...
  8. B

    Late Diagnosis

    I was diagnosed last year at age 64. Made it to 65 - May 30, 2011. My sister died from CF 40 years ago at age 21. At that point based on sweat test, I was told I was probably a carrier w/symptoms. <br><br>I have struggled with lung problems all my life and basically assumed it was due to CF...
  9. B

    Late Diagnosis

    I was diagnosed last year at age 64. Made it to 65 - May 30, 2011. My sister died from CF 40 years ago at age 21. At that point based on sweat test, I was told I was probably a carrier w/symptoms. <br><br>I have struggled with lung problems all my life and basically assumed it was due to CF...
  10. B

    Exercise Tolerance

    Hello to all, I am 64 years old and only officially diagnosed with CF last year. For 30 + years I have swum laps 3X A Week for about 40 minutes. This is why I am still on this planet earth. Don't give up swim, run, bike whatever it takes. My FEV hovers around 50 it has been as low as 30. My...
  11. B

    Exercise Tolerance

    Hello to all, I am 64 years old and only officially diagnosed with CF last year. For 30 + years I have swum laps 3X A Week for about 40 minutes. This is why I am still on this planet earth. Don't give up swim, run, bike whatever it takes. My FEV hovers around 50 it has been as low as 30. My...
  12. B

    Exercise Tolerance

    Hello to all, <br /> <br />I am 64 years old and only officially diagnosed with CF last year. For 30 + years I have swum laps 3X A Week for about 40 minutes. This is why I am still on this planet earth. Don't give up swim, run, bike whatever it takes. My FEV hovers around 50 it has been as low...
  13. B

    Sensitivity to Sound with TOBI?

    TO JRB I can say the "ringing in the ears" was quieter a month or so after I stopped the Tobi. Noise sensitivity is about the same. I did get a baseline hearing test done Sept. 2010 so hearing can be evaluated, if I have to take Tobi or other drugs that affect hearing again. My doc wants me...
  14. B

    Sensitivity to Sound with TOBI?

    TO JRB I can say the "ringing in the ears" was quieter a month or so after I stopped the Tobi. Noise sensitivity is about the same. I did get a baseline hearing test done Sept. 2010 so hearing can be evaluated, if I have to take Tobi or other drugs that affect hearing again. My doc wants me...
  15. B

    Sensitivity to Sound with TOBI?

    TO JRB <br /> <br />I can say the "ringing in the ears" was quieter a month or so after I stopped the Tobi. Noise sensitivity is about the same. <br /> <br />I did get a baseline hearing test done Sept. 2010 so hearing can be evaluated, if I have to take Tobi or other drugs that affect hearing...
  16. B

    Sensitivity to Sound with TOBI?

    I have had this same problem "ringing in the ears" and sensitivity to noises like-clanging dishes, leaf blowers etc. I had IV Tobramycin for 14 days and then put on Tobi and had to stop for worry about hearing. I am over 60 so in the high risk group. BMH Ventura
  17. B

    Sensitivity to Sound with TOBI?

    I have had this same problem "ringing in the ears" and sensitivity to noises like-clanging dishes, leaf blowers etc. I had IV Tobramycin for 14 days and then put on Tobi and had to stop for worry about hearing. I am over 60 so in the high risk group. BMH Ventura
  18. B

    Sensitivity to Sound with TOBI?

    I have had this same problem "ringing in the ears" and sensitivity to noises like-clanging dishes, leaf blowers etc. <br /> <br />I had IV Tobramycin for 14 days and then put on Tobi and had to stop for worry about hearing. I am over 60 so in the high risk group. <br /> <br />BMH Ventura
Top