Search results

  1. L

    Bugs

    most of the bugs we get only make CFers sick because we have so much mucus which allows it to colonize, thats why only CFers can't be around each other but we aren't a risk to "healthy" people.
  2. L

    Bugs

    most of the bugs we get only make CFers sick because we have so much mucus which allows it to colonize, thats why only CFers can't be around each other but we aren't a risk to "healthy" people.
  3. L

    Bugs

    most of the bugs we get only make CFers sick because we have so much mucus which allows it to colonize, thats why only CFers can't be around each other but we aren't a risk to "healthy" people.
  4. L

    Bugs

    most of the bugs we get only make CFers sick because we have so much mucus which allows it to colonize, thats why only CFers can't be around each other but we aren't a risk to "healthy" people.
  5. L

    Bugs

    most of the bugs we get only make CFers sick because we have so much mucus which allows it to colonize, thats why only CFers can't be around each other but we aren't a risk to "healthy" people.
  6. L

    How important is it that your child KNOWS they have CF?

    I always knew I had CF and it seems like you are taking the right approach by not dwelling on it but still keeping him informed. It helps in the long run to be accepting of it and it makes it easier for him to explain it to people as he grows up. You should answer his questions honestly but also...
  7. L

    How important is it that your child KNOWS they have CF?

    I always knew I had CF and it seems like you are taking the right approach by not dwelling on it but still keeping him informed. It helps in the long run to be accepting of it and it makes it easier for him to explain it to people as he grows up. You should answer his questions honestly but also...
  8. L

    How important is it that your child KNOWS they have CF?

    I always knew I had CF and it seems like you are taking the right approach by not dwelling on it but still keeping him informed. It helps in the long run to be accepting of it and it makes it easier for him to explain it to people as he grows up. You should answer his questions honestly but also...
  9. L

    How important is it that your child KNOWS they have CF?

    I always knew I had CF and it seems like you are taking the right approach by not dwelling on it but still keeping him informed. It helps in the long run to be accepting of it and it makes it easier for him to explain it to people as he grows up. You should answer his questions honestly but also...
  10. L

    How important is it that your child KNOWS they have CF?

    I always knew I had CF and it seems like you are taking the right approach by not dwelling on it but still keeping him informed. It helps in the long run to be accepting of it and it makes it easier for him to explain it to people as he grows up. You should answer his questions honestly but also...
  11. L

    Make a Wish

    I have very good lung function at present (fev1 81%) however, at the time of my wish almost 4 years ago now, I had been in and out of the hospital a lot. My family and I were hesitant about going through with a wish when it was first suggested because we felt that I wasn't as sick as some...
  12. L

    Make a Wish

    I have very good lung function at present (fev1 81%) however, at the time of my wish almost 4 years ago now, I had been in and out of the hospital a lot. My family and I were hesitant about going through with a wish when it was first suggested because we felt that I wasn't as sick as some...
  13. L

    Make a Wish

    I have very good lung function at present (fev1 81%) however, at the time of my wish almost 4 years ago now, I had been in and out of the hospital a lot. My family and I were hesitant about going through with a wish when it was first suggested because we felt that I wasn't as sick as some...
  14. L

    Make a Wish

    I have very good lung function at present (fev1 81%) however, at the time of my wish almost 4 years ago now, I had been in and out of the hospital a lot. My family and I were hesitant about going through with a wish when it was first suggested because we felt that I wasn't as sick as some...
  15. L

    Make a Wish

    I have very good lung function at present (fev1 81%) however, at the time of my wish almost 4 years ago now, I had been in and out of the hospital a lot. My family and I were hesitant about going through with a wish when it was first suggested because we felt that I wasn't as sick as some...
  16. L

    I am in hospital

    Carly, I sympathize with you as I was in this same exact situation about 7 years ago. I was diagnosed with cepacia as well and was scared to death. But now I'm HEALTHIER than I was back then and it hasn't caused me any problems. In order to keep it under control it is important that you do what...
  17. L

    I am in hospital

    Carly, I sympathize with you as I was in this same exact situation about 7 years ago. I was diagnosed with cepacia as well and was scared to death. But now I'm HEALTHIER than I was back then and it hasn't caused me any problems. In order to keep it under control it is important that you do what...
  18. L

    I am in hospital

    Carly, I sympathize with you as I was in this same exact situation about 7 years ago. I was diagnosed with cepacia as well and was scared to death. But now I'm HEALTHIER than I was back then and it hasn't caused me any problems. In order to keep it under control it is important that you do what...
  19. L

    I am in hospital

    Carly, I sympathize with you as I was in this same exact situation about 7 years ago. I was diagnosed with cepacia as well and was scared to death. But now I'm HEALTHIER than I was back then and it hasn't caused me any problems. In order to keep it under control it is important that you do what...
  20. L

    I am in hospital

    Carly, <br />I sympathize with you as I was in this same exact situation about 7 years ago. I was diagnosed with cepacia as well and was scared to death. But now I'm HEALTHIER than I was back then and it hasn't caused me any problems. In order to keep it under control it is important that you do...
Top