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I know... i was venting... and a lot of that probably didn't make any sense... The reason they won't give her a bottle... is because by doing that they think that it's causing too much aggravation for her bowels and she's just passing it right through, and not absorbing any of it. Therefore...

Hello everyone, my name is Lindsay and I am new to this forum. My daughter, Erin, was born June 19th... she is almost a month old and she's been in the hospital since she was born. She had a blocked bowel (meconium ileus) and needed surgery the day after she was born. She only weighed 5lbs 1oz...

On http://www.cff.org they say that they have recognized glyconutrients, they are looking more into it and doing research to see if it is a possible cure for cystic fibrosis. It obviously says to not do anything without consulting the CF team working with you or your child. My daughter was...