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  1. V

    cf childrens book- kyle's first crush - profit to cf

    My daughter has writen a book to tell her class mates what CF is and how she feels about it and the way they treat her . But I haven't been able to find out how to publish it. Can you give me some instes on how.
  2. V

    cf childrens book- kyle's first crush - profit to cf

    My daughter has writen a book to tell her class mates what CF is and how she feels about it and the way they treat her . But I haven't been able to find out how to publish it. Can you give me some instes on how.
  3. V

    cf childrens book- kyle's first crush - profit to cf

    My daughter has writen a book to tell her class mates what CF is and how she feels about it and the way they treat her . But I haven't been able to find out how to publish it. Can you give me some instes on how.
  4. V

    Any similar stories?

    Hi, I'm new to this site also but I know all to well the time, stress and love it takes to deal with a child with CF. I was perhaps the luckiest of all to find out that before my daughter was born that she was CF. My daughter's father had a daughter with CF and I mention it to my OBGYN and he...
  5. V

    Any similar stories?

    Hi, I'm new to this site also but I know all to well the time, stress and love it takes to deal with a child with CF. I was perhaps the luckiest of all to find out that before my daughter was born that she was CF. My daughter's father had a daughter with CF and I mention it to my OBGYN and he...
  6. V

    Any similar stories?

    Hi, I'm new to this site also but I know all to well the time, stress and love it takes to deal with a child with CF. I was perhaps the luckiest of all to find out that before my daughter was born that she was CF. My daughter's father had a daughter with CF and I mention it to my OBGYN and he...
  7. V

    Paul Harvey Show

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rarab43</b></i> If he was talking about the drug for CF and Duchene MD then it is already in trials and is PTC124 and is only for those who have nonsense mutations. My son was in the trial year before last and will enroll in the...
  8. V

    Paul Harvey Show

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rarab43</b></i> If he was talking about the drug for CF and Duchene MD then it is already in trials and is PTC124 and is only for those who have nonsense mutations. My son was in the trial year before last and will enroll in the...
  9. V

    Paul Harvey Show

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rarab43</b></i> If he was talking about the drug for CF and Duchene MD then it is already in trials and is PTC124 and is only for those who have nonsense mutations. My son was in the trial year before last and will enroll in the...
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