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  1. M

    CF Survey

    12 1/2 1.male 2.white 3.3 4.2 5.5 or more 6.41-50 7.no 9.He has an IEP 10.yes 11.Frequent breaks, He leaves class a few minutes eariler than everyone to allow time for him to get up and down the flights of stairs and to go get his enzymes 12.no 13.yes 14.the boys bathroom doesn't...
  2. M

    CF Survey

    12 1/2 1.male 2.white 3.3 4.2 5.5 or more 6.41-50 7.no 9.He has an IEP 10.yes 11.Frequent breaks, He leaves class a few minutes eariler than everyone to allow time for him to get up and down the flights of stairs and to go get his enzymes 12.no 13.yes 14.the boys bathroom doesn't...
  3. M

    tummy problems

    Hi, my son has the same problem also. He is 12 y/o he takes his enzymes with every meal and he is also on lactulos(poopy med) twice aday and he drinks a liter of nulytley(major poopy med) every week which he hates! Your daughter may need to be on a poopy med everyday until things get figured...
  4. M

    tummy problems

    Hi, my son has the same problem also. He is 12 y/o he takes his enzymes with every meal and he is also on lactulos(poopy med) twice aday and he drinks a liter of nulytley(major poopy med) every week which he hates! Your daughter may need to be on a poopy med everyday until things get figured...
  5. M

    tummy problems

    Hi, my son has the same problem also. He is 12 y/o he takes his enzymes with every meal and he is also on lactulos(poopy med) twice aday and he drinks a liter of nulytley(major poopy med) every week which he hates! Your daughter may need to be on a poopy med everyday until things get figured...
  6. M

    Need your advise...help

    my son has had 14 sinus surgeries over 12 years of life. He uses astelin and rhinacort along with the sinus rinse (which he hates). He says the rinse when coming out of his mouth leaves it tasting like the ocean for a couple of hours.
  7. M

    Need your advise...help

    my son has had 14 sinus surgeries over 12 years of life. He uses astelin and rhinacort along with the sinus rinse (which he hates). He says the rinse when coming out of his mouth leaves it tasting like the ocean for a couple of hours.
  8. M

    Need your advise...help

    my son has had 14 sinus surgeries over 12 years of life. He uses astelin and rhinacort along with the sinus rinse (which he hates). He says the rinse when coming out of his mouth leaves it tasting like the ocean for a couple of hours.
  9. M

    cf centers

    My son goes to Pediatric Pulmo at the Toledo Hospital in Ohio it is 10minutes away now that we moved closer and is the only one near us.
  10. M

    cf centers

    My son goes to Pediatric Pulmo at the Toledo Hospital in Ohio it is 10minutes away now that we moved closer and is the only one near us.
  11. M

    cf centers

    My son goes to Pediatric Pulmo at the Toledo Hospital in Ohio it is 10minutes away now that we moved closer and is the only one near us.
  12. M

    To: Parents of CF babies under 6 months of age

    When my son was an infant he cough alot and very loudly and always junky sounding. I'm not sure about the tummy rumbling. Maybe his formula is causing him to experience gas or bloating.
  13. M

    To: Parents of CF babies under 6 months of age

    When my son was an infant he cough alot and very loudly and always junky sounding. I'm not sure about the tummy rumbling. Maybe his formula is causing him to experience gas or bloating.
  14. M

    To: Parents of CF babies under 6 months of age

    When my son was an infant he cough alot and very loudly and always junky sounding. I'm not sure about the tummy rumbling. Maybe his formula is causing him to experience gas or bloating.
  15. M

    Rough few days...

    my son had lung issues since birth he was on vent for 6 months in nicu before being weaned to cpap then to oxygen. He was discharged home at 7 1/2 months home on oxygen, apena monitor, and suctioning of his lungs every 2 hours. His twin brother passed at 11 days because his lungs were so bad and...
  16. M

    Rough few days...

    my son had lung issues since birth he was on vent for 6 months in nicu before being weaned to cpap then to oxygen. He was discharged home at 7 1/2 months home on oxygen, apena monitor, and suctioning of his lungs every 2 hours. His twin brother passed at 11 days because his lungs were so bad and...
  17. M

    Rough few days...

    my son had lung issues since birth he was on vent for 6 months in nicu before being weaned to cpap then to oxygen. He was discharged home at 7 1/2 months home on oxygen, apena monitor, and suctioning of his lungs every 2 hours. His twin brother passed at 11 days because his lungs were so bad and...
  18. M

    new GI

    GI doc called today his liver enzymes are 4x the normal limit. So they want to start him on actigal which he was on in the nicu and then for 5 years before they stopped it. Not sure why they stopped it. He has already been tested for allergies to everything. He is only allergic to all the strong...
  19. M

    new GI

    GI doc called today his liver enzymes are 4x the normal limit. So they want to start him on actigal which he was on in the nicu and then for 5 years before they stopped it. Not sure why they stopped it. He has already been tested for allergies to everything. He is only allergic to all the strong...
  20. M

    new GI

    GI doc called today his liver enzymes are 4x the normal limit. So they want to start him on actigal which he was on in the nicu and then for 5 years before they stopped it. Not sure why they stopped it. He has already been tested for allergies to everything. He is only allergic to all the strong...
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