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  1. L

    FEVER

    I think you should check with your doctor again. Yes, babies DO get strep ( your little one has been exposed if his sister has had it in the last week), the fever has been going on for 3 days and now there is a rash. Remind your doctor about your daughter just getting over strep and I would go...
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    Moving out

    I was looking for this topic when I came to the forums the past few days. I knew it had to be here somewhere! Andrew turns 18 in March and I have been spending alot of time thinking about how to best give him the independence he is craving while at the same time, keeping myself in the loop as...
  3. L

    Moving out

    I was looking for this topic when I came to the forums the past few days. I knew it had to be here somewhere! Andrew turns 18 in March and I have been spending alot of time thinking about how to best give him the independence he is craving while at the same time, keeping myself in the loop as...
  4. L

    Moving out

    I was looking for this topic when I came to the forums the past few days. I knew it had to be here somewhere! Andrew turns 18 in March and I have been spending alot of time thinking about how to best give him the independence he is craving while at the same time, keeping myself in the loop as...
  5. L

    To "Make-A-Wish" or Not

    To "Make-A-Wish My 17 year old son w/CF was reffered for a wish a few years ago. He is still very healthy and even ran Varsity Cross Country Track throughout high school. I was floored whe we recieved a letter from "Make A Wish" saying that he had been referred. To this day, we do not know who...
  6. L

    To "Make-A-Wish" or Not

    To "Make-A-Wish My 17 year old son w/CF was reffered for a wish a few years ago. He is still very healthy and even ran Varsity Cross Country Track throughout high school. I was floored whe we recieved a letter from "Make A Wish" saying that he had been referred. To this day, we do not know who...
  7. L

    To "Make-A-Wish" or Not

    To "Make-A-Wish My 17 year old son w/CF was reffered for a wish a few years ago. He is still very healthy and even ran Varsity Cross Country Track throughout high school. I was floored whe we recieved a letter from "Make A Wish" saying that he had been referred. To this day, we do not know who...
  8. L

    LEVAQUIN~LEVOFLOXACIN

    My 17 y.o son w/CF has been prescribed Levofloxin a number of time ( not for PA ) and has done well on it as far as getting rid of the infection, he does however have a side effect on it that he hates. The doctor told us that they do see the reaction once in a while and he usually has to...
  9. L

    LEVAQUIN~LEVOFLOXACIN

    My 17 y.o son w/CF has been prescribed Levofloxin a number of time ( not for PA ) and has done well on it as far as getting rid of the infection, he does however have a side effect on it that he hates. The doctor told us that they do see the reaction once in a while and he usually has to...
  10. L

    LEVAQUIN~LEVOFLOXACIN

    My 17 y.o son w/CF has been prescribed Levofloxin a number of time ( not for PA ) and has done well on it as far as getting rid of the infection, he does however have a side effect on it that he hates. The doctor told us that they do see the reaction once in a while and he usually has to...
  11. L

    For the mothers out there....

    When Andrew was a baby and first diagnosed he too was on Viokase and it literally buned his little butt. ( We used to call him baboon butt -- LOL ) We left his bottom open to sir as much as possible, but, the ostomy nurse at the hospital also suggested using a Barrier cream like ostomy...
  12. L

    For the mothers out there....

    When Andrew was a baby and first diagnosed he too was on Viokase and it literally buned his little butt. ( We used to call him baboon butt -- LOL ) We left his bottom open to sir as much as possible, but, the ostomy nurse at the hospital also suggested using a Barrier cream like ostomy...
  13. L

    For the mothers out there....

    When Andrew was a baby and first diagnosed he too was on Viokase and it literally buned his little butt. ( We used to call him baboon butt -- LOL ) We left his bottom open to sir as much as possible, but, the ostomy nurse at the hospital also suggested using a Barrier cream like ostomy...
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