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He has already had the full panel ambry testing and the deletion/detection testing finding only the Delta F508 gene. That's why they want to do all this other testing, I think they are still trying to rule out CF. Hopefully if this Pnuemovax works then he should be better????? I have not...

He has already had the full panel ambry testing and the deletion/detection testing finding only the Delta F508 gene. That's why they want to do all this other testing, I think they are still trying to rule out CF. Hopefully if this Pnuemovax works then he should be better????? I have not...

He has already had the full panel ambry testing and the deletion/detection testing finding only the Delta F508 gene. That's why they want to do all this other testing, I think they are still trying to rule out CF. Hopefully if this Pnuemovax works then he should be better????? I have not...

UPDATE: I am not sure about this one and some of you may have heard of this mroe then me. They tested Trevor's Pnuemonococcal Antibodies (23) and all of them were abnormally low. They are scheduling Trevor to have a pnuemovax and then they will check his levels again and if they have not...

UPDATE: I am not sure about this one and some of you may have heard of this mroe then me. They tested Trevor's Pnuemonococcal Antibodies (23) and all of them were abnormally low. They are scheduling Trevor to have a pnuemovax and then they will check his levels again and if they have not...

UPDATE: I am not sure about this one and some of you may have heard of this mroe then me. They tested Trevor's Pnuemonococcal Antibodies (23) and all of them were abnormally low. They are scheduling Trevor to have a pnuemovax and then they will check his levels again and if they have not...

UPDATE: We went to the CF/pulmonolgist on Friday. He checked Trevor's PFT's and oxygen levels and reported to me they were fine. He spent quite a long time with us while we went over every detail that I have been telling all of you. Dr. Mahesh said that it is obvious that something is wrong...

UPDATE: We went to the CF/pulmonolgist on Friday. He checked Trevor's PFT's and oxygen levels and reported to me they were fine. He spent quite a long time with us while we went over every detail that I have been telling all of you. Dr. Mahesh said that it is obvious that something is wrong...

UPDATE: We went to the CF/pulmonolgist on Friday. He checked Trevor's PFT's and oxygen levels and reported to me they were fine. He spent quite a long time with us while we went over every detail that I have been telling all of you. Dr. Mahesh said that it is obvious that something is wrong...

my son also takes Miralax on a daily regular basis, he has been hopitalized for this too...He also told me to have a set time of day that he should sit on the toliet and not strain but just sit there to stimulate his natural responses (he was 6-8 yr old at the time) that helped some...

my son also takes Miralax on a daily regular basis, he has been hopitalized for this too...He also told me to have a set time of day that he should sit on the toliet and not strain but just sit there to stimulate his natural responses (he was 6-8 yr old at the time) that helped some...

my son also takes Miralax on a daily regular basis, he has been hopitalized for this too...He also told me to have a set time of day that he should sit on the toliet and not strain but just sit there to stimulate his natural responses (he was 6-8 yr old at the time) that helped some...

I have a three year old and he is a dragon tales and noddy freak, loves them, but he also could watch frosty the snowman all day long(what gives) and cars of course.

I have a three year old and he is a dragon tales and noddy freak, loves them, but he also could watch frosty the snowman all day long(what gives) and cars of course.

I have a three year old and he is a dragon tales and noddy freak, loves them, but he also could watch frosty the snowman all day long(what gives) and cars of course.

OKOK-they did use a little coil thing with blue dye in it??? is this not the usual way to do a sweat test? Jennifer

OKOK-they did use a little coil thing with blue dye in it??? is this not the usual way to do a sweat test? Jennifer

OKOK-they did use a little coil thing with blue dye in it??? is this not the usual way to do a sweat test? Jennifer

OkOK-I am trying to quote what you said about chloride/sodium levels.............sorry I am not too good at navigating yet.... I have the seat tests in fron of me and here is what they say total vol, right arm 60 ul sweat cl, right arm 47 meq/l total vol, left arm 55 ul sweat cl, left arm 39...

OkOK-I am trying to quote what you said about chloride/sodium levels.............sorry I am not too good at navigating yet.... I have the seat tests in fron of me and here is what they say total vol, right arm 60 ul sweat cl, right arm 47 meq/l total vol, left arm 55 ul sweat cl, left arm 39...